Topic: N. I. H. In MD east coast My brother wants me to go there for a week
Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
May I say I'm pe'od. I don't want to go to Maryland it's Gov. And now they are involved. Snap.
Would love your ideas.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
I've already been Dx in 1999 and 2000 and years following them. I'm want to go all natural as in Herbs, acupuncture, light, and healthy foods that I'm not able to prepare. etc.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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posted
Tell him they won't treat you anyway. They don't believe in chronic Lyme.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
I know and now they have addy and zip code Im now in their system. HOW DO I FORGIVE HIM????
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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posted
That doesn't mean you have to do anything, right?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
No but they are sending all the paper work to fill out. Ugh
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Don't go if you don't want to. You're an adult.
It sounds like you don't want to make waves with your brother, but remember, YOU come first.
If you don't want a big confrontation about the whole thing, just don't fill out the paperwork.
When he tries to set a date, just say, "I'll think about it and get back to you." or "There's something else I want to check out first, I'll get back to you afterwards."
Don't give a specific day or deadline. Just say,"I don't know yet. I need more time. I'll let you know when I want to go." Be kind, yet FIRM with your tone.
Don't give into pressure. Get off the phone or change the topic if you need to. You can always say something like, "I don't feel like talking about that right now." No need to give an explanation. Repeat it til he gets it.
If he doesn't, just say you have to get off the phone.
posted
You don't have to do anything if you don't want to go.
In the meantime, keep getting clear about what you would like to do.
Posts: 13116 | From San Francisco | Registered: May 2006
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
He did this because he cares about you and thinks NIH will help.
But they won't. They have an in-house lyme study that has been going on for years and never helped us. The person who runs the study publishes with Steere, Wormser, all the bad guys.
It will be very hard for your brother to understand this. Not sure it is even worthwhile to try to explain, leaving that up to you.
But it will take a lot of energy to travel that far and it will not help you or the lyme cause. This NIH study is being done to pretend to address lyme disease issues, but it doesn't. If the govt health agencies were actually honest and trying to help, our situation would be very much better.
Don't know if you know any AIDS history, but they also brought up the rear on that disease.
Posts: 2888 | From USA | Registered: Mar 2004
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