kam
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Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
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This thread is to focus on the can do's in our lives whatever that might be to keep the body and brain moving and life a bit more sane.
I noticed we had a new person last week but my health was not doing well enough to read his or her posts.
Just wanted to welcome him or her and hope this thread helps you as it has helped us.
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kam
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Able to cruise in power chair with friend out on the forest developement area.
My friend brought along some granite spray paint and we were able to go to the place we saw awhile back that had been defaced with nasty words.
It made me so happy to see her spraying over the black letters and ugly words.
You would not know it was spray paint unless you saw it go on. It blended right in with the large boulder.
She ran out so hoping my health is doing well enough next time to take a picture of her defacing the defacing.
Pretty weak today and dizzy. So the plan is to rest, eat, rest, eat, rest, you get the picture.
I was too weak yesterday to eat much. Today I made the chocolate almond milk, almond butter, etc smoothy.
As I am typing this I think I forgot to write on the board I took meds. Health can not recall most of the time if I took them or not so write on the board.
Also hoping to get cleaned up and to pack a bag for camping. Last time I was thinking I needed to pack a smaller bag but not so sure ..mabye just try and put less in the bag I do pack or use my suitcase instead of the duffy bag...looking for something that ltakes less room.
Clothes wise it has worked out well except for the time everything got wet that I was wearing...
...brain was not working well with the rain and adjusting..we are supposed to get rain Wed and Thursday 60% chance. So, do need to prepare fro rain this time...bring poncho and something to cover the pfower chair...
Covered it with tall kitchen bags earlier this week for a short time when we had a down pour and that worked out OK
But, when I tried that when I was camping...it di dnot keep the seats dry for some reason
Just use plstic bags to cover seat ..bottom and back and joy stick.
Not sure why it id dnot work out whiel camping and everythign got socaked.
Might try it again..Guess I need to go ahead and charge a cover fo thr elift...
Last time while camping, I would take power chair to the bathroom during a break in the storm but not make it back in time...I just couldn't seem to get it right
maybe a pee botle for the tent this time.
TMI??
AT least it would keep me and the power chair form getting soaked
Bathroom was very close so taht wasn't it
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hiker53
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Kam--Thanks for starting the thread with such a lovely picture and a positive message.
Poured rain here this morning, so your comments on raining while camping were appropriate.
Expecting severe storms later.
Am totally worn out from oiling furniture yesterday. Cleaned out a few files this morning and did my Bible study. Skipped church as the thunderstorms were happening as I was ready to go out the door. Small hail.
I am getting rid of my teaching transparencies as everything is digital now and we don't have overhead projectors.
I sadly recycled all my AAA travel books, highway maps and hiking trail maps from places I have traveled. They are outdated
and from a time I cannot go back to. (pre-Lyme) I do have the photographs from each trip, though.
Hope to get to the library in-between rainstorms and ride the exercise bicycle.
Have a great week and do just do what you can do!
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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lpkayak
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Woo hoo kam...what a pic!
Im a mess. Guy gutted bath and filled my clean house with dust and mold spores
I think i found a good guy to fix ut tomorriw. Ive been cleaning and prepping and my mouth is tingling frim something. Mold or chemicals. Hope this is last messy thing.
Hiker...i know about hanging on to things hoping to use agin...still have horse and kayak stuff but gradually getting rid ofcit. Its hard
Hope your safe tonight
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
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I still wish I had kept my reins for the horse. They were a really nice set of reins. Saw some at a feed store that kind of looked like them but not as nice...very costly...had no idea
Braided reins.
Most things I have let go of I do not miss. I do not think I let go of the reins. I think they were in the storage unit that got loaded into someone elses truck (stoled my things)
Ok Got on this thread to help me get some cob webs out of head. Laying in bed with eyse closed.
I was able to take Rosie out for the cruise in the housing develpement in the forest. Able to call her and have her come close to me or I should say closer as she does not go very far from me out there....
when a car drove by twice and a guy walking his dog he got form the shelter came by.
Guy walking his dog stoppped to tell me he got caught in the rain recently at Spirit Rock and was an hour and a half away from home.
So was soaking wet when he got home. I was amused. Been there myself when I use to be able to get out more and did not know about the monsoons around here.
I get soaked just going around the apartment complex in my power chair at times when it startes to pour.
Got up to do a few things but then person I hired came and taht di dme in. She wanted to go over the grocery list and ask me questions.
Brain can not handle questions for very long plus my brain kept switching channels..had touble focusing.
So basically laying here trying to revoer form that.
But, was doing well enough to type out a to do list for her and a grocery list.
She is here 2 hrs. The caregive will be here for 1 hour tomorrow and be able tro do more thing son the list.
Good news is I will have food.
Hoping to take a much needed shower today, I was on the way to getting more treats in the car for Rosi when she showed up...so still need to do that so I have them on hand while out cruising with rosie
Also hoping to pack the clothing bag for camping still.
And I would like to put my clean clothes away.
And address envelope and get treatment plan to primary care doc ...kind of too late for that since she is referring me to an infectious disease doc now.
I most likely will need to just focus on eating breakfst on my net get up...and then maybe tonight be able to take the shower..
the going over the grocery list and the questions did me in ..used up whatever water in the pail i had to do a few things this am.
Trying to decide about whether to go camping tomorrow if health is up to it.
It is a 60% chance of rain on Wed and Thursday.
I am OK with bein gin the tent when it is raining...but the sound of the rain on the tent is too much even with ear plugs and ear protection muffs...I think...I can not recall why it did nto work out last time and I had to coem home.
When health was doing better the sound was not a problem....but keeping dry was..espcially the power cahir...but can put it in the toilet room if health is doing well enough to walk back to tent the few steps needed.
Adjusting ...we all make adjustemnts now to manage this.
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aklnwlf
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Monday-Whew, I'm dragging butt today but several of my co-workers are super hungover!
Did everything I mentioned on Friday and got home around 10:30 last night from Atlanta.
I had such a good time at the restaurant!
They had appetizers on beds of ice. Small lobsters, raw oysters and crab legs. Platters of chicken satay and fried calamari also.
We had a limited preset menu to order from so I chose the clam chowder as a first course and grilled scallops as my second.
Sides of mac/cheese and lobster, mashed potatoes with cream cheese, creamed spinach, creamed fresh corn off the cob were brought in large serving bowls around the table set for 30.
Dessert was brought out last on platters and shared along with fresh coffee. They brought key lime pie, strawberry cheesecake and chocolate cake and ice cream.
.....and there was an open bar......
Now, what in the world can I do to work all that off? Might have to take my towels off the stair climber!
Have a wonderful day everyone!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6144 | From Columbus, GA | Registered: Jul 2004
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lpkayak
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My regular guys are back. I dont play the maiden in distress card very often. And in 40 yrs of hiring workers the guy that filled my house with mold is only the second i have fired.
The first ran over my septic tank with a bulldozer and told me not to worry about it
These guys apilogized. They said they were too busy so turned the phone off for a week to catch up
Whatever. The guy i fired said i had to have a skinney tub. These are fitting in a wider whirl pool im nit sure why i got contractors discount without contractor but i did
The bad wall is half built and the tub will be here in the morning and the day is only half over. I finally sat down...hope to nap
House is dusty, maybe moldy, but i have machines going and when i catch my breath i can start cleaning again. It shouldnt take that long cuz i just did it
Im happy. Even if my mouth is still tingling.
Ak...you used as much energy as me working to eat and have fun!
Kam...glad your out and about. Im nit sure if ID doc wil be good or bad thing...hope its good
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hiker53
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Kam--Camping in the rain does not sound like fun. I never camped much.
I preferred to stay at a B & B and eat a full breakfast and then hike all day and come back to a comfy bed. LOL
AK--Food sounds wonderful. I didn't realize you were close to Atlanta.
I called my brother yesterday to tell him I might try and come down in early July or early August (Atlanta), but he will be in WI in July and is coming here in August.
I went through all my old supplements and old prescriptions and took the ones that cannot go into the water to the drop off at the police station.
Felt good to get rid of all those.
Now am cleaning out boxes and shelves. A lot needs to go into work, but my classroom is not available due to waxing the floors.
Got the mammogram today. I can tell I am stronger as I did not need to sit down for it this year. Already have the results and all is well. Thanks, God.
Heating up outside. Don't know if I will get my walk in or not.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
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Im here too, tutu. I coukdnt get on for awhile but i think the moldy movie was too much for my phone
Carpenter guys are gone til tomorriw
Digging guy hasnt shown up. Hes suppised to find main drain so we can.make an access if they get plugged again. It will be easier esp if its winter
He is also suppised to find the hole the mice get in that the guy was suppised to close up last winter. Didnt know tul yesterday he didnt
Im tired. And hungry. Ettas beat. We will both be asleep before the sun i guess.
My elec bill is usually. 100. It was 155. Last month from heat wave and all air machines on. I guess
I hope it will go down soon with new fridge.
Hiker you are a purging fool...i wish i could get into that frame of mind
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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hiker53
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LP--I have yet to tackle the basement utility room or any of my clothes.
I have clothes sized pre-lyme, lyme, and postlyme--LOL.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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lpkayak
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I have totes of cothes in 5 sizes. Obviousy im.not into fashion...just function
Today i paint in clothes i worked in 10-15 years ago...still have the hat i usedcwhen on doxy and still required to take kids out to play on tick infested grass
I s prayed new wood with special non chemical mold deterrent
Did one load laundry
Took two hour nap. Now ready for real sleep...will shower at kitchen sink in the morning...lol. ITS WORTH IT!
Hiker...at the rate your going you ll have it done by the fourth
I need to ice my hands. Nite
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Get rid of the clothes! If you haven't worn it in a year, out it goes!!
Now I DO HAVE a few things I haven't worn in a year.. like special dressy things (esp for winter).. but my closet in our new place is quite small. I HAVE to purge.
We have a nice consignment shop here and I take things there or give to a charity thrift shop.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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aklnwlf
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Tuesday-Seriously looked at my stair climber this morning. Having some joint swelling and pain so am a little leary of getting on there.
Will give it a shot then and if it causes problems I might have to look into swimming. I hope that's not an issue with my psoriasis.
Kam-I loved the pic that you posted for the week. I'm wondering where it's at. It would be awesome to see that beautiful place!
Kayak-Are you going with the whirlpool tub? Did you find out if you can use the Epsom salt in it? I'm turning green over here!
Hiker-I didn't realize you have family in Atlanta. One of my friends lives in Cumming and I'm visiting her the last weekend of this month. She's turning the big 6-0 and we're supposed to go dancing! Hope my ankles hold up!
TuTu-I try to purge my things too. I used to hold onto clothes thinking I'd lose weight and would be able to wear them. I held onto a size 11 slim Levi jeans for at least 5 years. Didn't want to give those up!
Hope everyone has a fantastic day!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6144 | From Columbus, GA | Registered: Jul 2004
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hiker53
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AK-my brother lives in Marietta with his wife. They are retired, but always seem to be working on the house.
I got myself ready to mow with sunscreen (zinc oxide) and then put on some Deet. Not sure I should mix the two.
However, the rose geranium essential oil made me a little loopy last week while I was mowing.
Plenty hot and humid outside today. We've had 4-5 inches of rain the past few days and are expecting more tomorrow evening through next Monday.
Going to be very buggy around here.
I am just going to do one load of laundry and a little cooking today.
The woman who cleans my house once a month agreed to do the windows again. That is a big chore and I expect it will take her 3-4 hours. So, I'd better stop at the bank, so I can pay her.
Off to shower away the mowing grime.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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kam
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Tuesday: did the cruise in the forest thing at dawn ish ...so glad i figured out that if i left teh power chair on th elift i could cruise with rosie vs just driving out there and reclining in the car.
nice place to be ..such beauty
typing with eyse closed
caregiver was here this am..got a lot done again in the horu she is here
what else?
I was able to put away some clothes and pick up just a bit.
Seems like I have done more but I gues not.
Able to have two bowls of the pasta salad and 1/2 of teh chicken thigh.
Finished off a pitcher of the lemond cucumber drink eysterday
Hoping to finish off another one today and focus on eating well again today.
Able to get plastic bags over cushion on power chair in case we do get the rain that is predicted plus covered up the joy stick but not so sure how good of a job i did with that.
hoping to check on potte dplansts and see if they need watering today
tried to get up and do a few things but had to get back donwn.
I was able to put just a few dishes awya that the caregiver washed. HOpign to put more away later.
I would like to wash teh bedspread and the coat when health allows.
Wwatching Naked and afraid on TV...kind of like us they are in a survivor mode but so tahnkful we are able to control temperatures adn bugs
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hiker53
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Kam--sounds like a productive today.
I hear the Southwest is going to get a lot of rain due to the tropical storm from the Baja.
Glad you can go "cruising" with Rosie.
Check back later.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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Sounds like things are going well for most of us. Hoping kayak is OK still.
I went for a follow up appointment with my neurologist today. My friend took me so we could have a little outing today. It was fun, but she likes to shop and I drop. LOL ..!!
I'm released from the neuro now that he found the sinus infection and that is being handled by the ENT. By the way, I asked the neuro if I had any brain lesions from Lyme. (I had always wondered.)
He showed me one little area that looked fuzzy, but he said that overall my brain looks good! Woot.
The ENT ordered a CT scan of my sinuses. We will see if he needs to go in and cut a bit more so my sinuses will drain more effectively. So it will be another week or so before I will know more.
I'm pooped from two trips to the nearby city in the past two days.
OH... We saw "Keystone Cops" today when we stopped to get gas. About 4 police cars kept circling our area and they kept going back and forth and around and around. Then these two guys that looked like SWAT men came into the convenience store while my friend was in there and I was in the car.
One of them came out with two Cokes and drove off in his private car. I was getting nervous there for a bit because we wondered if they were chasing bank robbers or something!
Then as we got on the HWY to come home, we saw an ambulance and 3 police cars under the overpass that was right there. So we THINK maybe the dispatcher told them the wrong direction or something. It was weird and wild!
We even thought maybe someone had stolen one of the police cars and the others were chasing him!! LOL!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kam
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GM LNetters. They are coming to pick up equipment on Friday so not sure if I will have access to internet or not.
I have yet to decide. Guessing yes for now but will see what I can find that is less costly.
Problem is the other brands are a 2 yer contract and I do not want to go with that.
Might just shut off TV and land line and keep internet.
Brain is not doing well this am as usual.
But, I was able to be on my feeet for est 10 min in the forest. So nice to walk in the forest after a rain.
I was weak and dizzy but doing well enough tot ake a few pics.
Less rining or volume in the aars too while in the forest.
Brain is not working well enough to figure out what to try and do this morning yet. Breakfast is next.
Rest. Ghen maybe try getting up again and see if I can do something.
POwer chair stayed dry last night while on lift. I covered the joy stick and cushions with plastic trash bags.
No wind last night so tI think that helped.
Have two new neighbors. Slugs. They were crossing the handicap ramp this am after I came back from teh walk. They were lucky I was not in my power chair as that would have been tricky trying not to squish them.
Air conditoning units al ready running this am under my window. Thankfully it is not as bad in the bedroom but still messes with my brain.
At least I do not need to put on the ear protection muffs while in the bedroom. REst of the apartment ..yes...need to block out sound as much as possible but can still hear the units even with ear protection.
Want to go camping to get to the quiet but next two weeks it looks like it is going to be hot, hot, hot...too hot for me to go comaping.
MIght be a bit better in Chirstopher Creek but so far having troubl egetting the correct temp for hta tarea.
Weather apps either can not find christoperh creek or are showing the same temps as here...thought it was a bit cooler in christopher creek but nto sue how much cooler.
Have pasta salad and chicken thighs to eat today. This is good.
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kam
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Tutu..read the last part of your post. Funny but also know it was not funny until you figured things out.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
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I have clothes too...just a few ...that I wore pre lyme...not ready to let them go yet. Still hoping.
I think if I got off of the gabapetin my size would go back down.
And I did not know until being sick so long that elastic in skirts do not last forever. HA!
Still keeping skirt. If I do wear it again some day maybe I will have new elastic put in...fabric still looks good...they were a good quality brand but not even sure if that company still exists.
It was one that started from their garage...so if it does still exist guessing it was bought out like so many other good names
It seems when things get bought out the clothing product is not so good after that.
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aklnwlf
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Wednesday-Thank God, half way done with the week. Planning on going to Applebee's with co-workers tonight. I'm pooped and my joints are aching but am going to try and make it.
Well, still no exercise today. Did get topical psoriasis meds yesterday and sprayed some on my swollen ankles hoping on the off chance that it might help some. We'll see.....
Hiker-Wonder what was up with the geranium oil? Believe it or not, I'm envious that you're able to cut your grass. If my joints don't improve my yardwork days might be over.
Kam-I potted some plants this year and they're doing awesome. They're all by the door to my front porch and make me happy. Adds color and pep to my otherwise drab trailer.
TuTu-I hope you find out what's going on with your sinuses soon. I've had lots of problems with mine but could just be inflammation issues.
I hope everyone has a great day!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6144 | From Columbus, GA | Registered: Jul 2004
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quote:Originally posted by kam: Tutu..read the last part of your post. Funny but also know it was not funny until you figured things out.
-
Heehee... Yep!
AK.. We know what's wrong .. just need to find the solution so it goes away and stays away.
Hope everyone has a great day!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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hiker53
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Mowing in the heat yesterday wiped me out.
Walked this morning and only made it 20 minutes and I stopped hallway to talk to a neighbor about her roses.
It is 94 and humid. So windy this morning that I could not wear my ball cap. An ugly furry black spider with yellow dots fell out of a tree on my head and down to my shoulders.
Thankfully it fell off onto my carpet once I was home and I was able to whack it. Otherwise I am sure it would have enjoyed tasting my skin.
I am not a spider fan.
Ran a few quick errands, but except for Bible study tonight I am laying low today.
May have a buyer for my piano. My energy healer said her son may want it. He is a musician and piano tuner, so I hope my piano passes muster.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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lpkayak
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hi my friends i started to read your posts...as usual i have a lot to say but no time tutu was messaged pics (thousand words)
im ok ettas ok thats about it...
i am living in dusty moldy mess with no shower and mold doc appt on fri(they are like llmds...2-3 hr appt) her patients seem to love her - two hour drive toward MA...not the direction i like to go...mountains, woods and beach are what this country girl prefers
i think i am bringin in the biggest tote i can find to kitchen. puttin a tarp and quilt under it using the thing i rinse dishes with (word retrieval?) to wet myself down...soap up...and rinse off. could be worse.
i am disgusting becasue house air is extra dirty...some air machines not working...blah blah blah
hope it will all be good in the end
my oldest son is racing cars in MA over the weekend. he was supposed to sleep here but wont come cuz i dont have shower. i dont blame him theres a chance i will go watch him race but it really isnt spectator friendly and im in ruff shape...so probably wont
i have doc appt in nj next week and that will be another 2 hr appt and hard drive and sleep over...but hes the one that has helped me the most so far so gotta do it
and i get to see my grand daughter and other son
are you still green ak? would this be worth it to you? im looking forward to being bored again.
my red roses bloomed...my yard is looking good my best bed is so close to the big machines putting drains in just got a call truck is being delivered to me in an hour...almost all my complaints adderssed...the big ones for sure
see you soon...send me any extra energy you have!
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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lpkayak
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Well all my horses are back in the barn. Truck looks good and feels better but i dudnt get a chance to check everything out. I picked up wall siding for bath. And sealed subfloor.
Then at 9 pm i had hotdogs for supper and a rest and um.about to get up and spray inside bath walls with this stuff that prevents mold
Im.just tememberung my hangibgvplants need water. They were very wimpy. So will do that. Then get up at 4-5 to seal one more time so it dries before guys get here
Tomorrow i need to get clean.and organized for doc appt on fri so i dont waste my time with her
Dr s has come up with accurate blood tests so i guess the tx for mold is easier to prescribe than lyme tx. Its hard to go thru tho...herxes and need much detox
But the blood tests show you getting better too. So many things are really hard with lyme. You never know if you are doing the rught thing or if/when it will cime back
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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aklnwlf
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Thursday-Alas, no exercise. Joints are still iffy.
TuTu-I'm keeping my fingers crossed!
Hiker-If a spider fell on me, I'd be screaming and jumping up and down. Don't like them at all. Sometimes if I find a giant web outside near the trailer I try to move the spider with a tree limb to another area. If it's in the house I have to get the hubs.
Kayak-We're on the same page again. We went to Bob's Victory Grill last night and I got a hotdog with home made chips. Had one Yuengling and was able to keep everything under $10.
Also, not so green after reading what it takes to do such an extensive remodel. Can't wait to read when it's done and you're reaping the benefits.
I hope everyone has a wonderful day!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6144 | From Columbus, GA | Registered: Jul 2004
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lpkayak
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posted
I am so incredibly exhaustd. I didnt sleep at all. I tried fir an hour 3 times but eyes wouldnt close. Restless legs too sooooo exhausted. Ettas going nuts with all activity. Hope she settles down soon so i can sle er p. Need pedi before doc tomorrow. It will be embrrassing if i dont get it
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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kam
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posted
just able to scan some of your posts...looks like we all are keeping on peace ilgrims. s
Typing with eysec closed.
I really need to get a hospital table to put the computer screen so I can have the screen in fron t of me.
Just took a couple of excedrin to see if it will help me be abl eto do some thing around here. But, lately it has not helped that much and maybe even made the brain feel more strange...tricky figuring things out.
Went out to the forest housing area this am. Nice out. Had the place to myself. Never know when you go out there what it will be like as far as dog walkers and toehr peole in the area.
I had the brain glitch when I got ready to go but thought ti might be the usual brain glitch about did I check to make sure the power chair was clamped down.
I recalled checking it so thought all was fine.
Got home and the brain glitch was that I Had forgot to put the arm that broke snuggly under the other arm so it did nto bouche off.
It was hanign by wires when I got back...not good. It had bounced off.
I had even forgot to put it in the seat and was having trouble with it falling off when I was in the power chair using it this am.
I will not be able to get it fixed until next month's budget.
It broek when I fell sideways in the power chair and hit the dirt.
I was able to fill the sink up with hot, suday water and dirty dishes but not doing well enough to washt eh disehse.
And I was able to get the two bagss out to get ready to pack clothing for camping but that did me in and I am resting now.
I have never seen slugs around here but altely have seen a few going across the handicap ramp in the am and evening.
Must be a slug feast in town.
I think I may have won some hearing aids.
Next step is to contact the business and see. I know some of the free hearing aid promo's are not really free hearing aids as there is a business locally that tries to get customers that way.
This one is down in the valley 2 hours away. So, I want to make sure before I have some drive me down there that these are indeed free.
Took the curtains down in the bedroom so I could see out the window.
Need to put other curtains back up that allowed me to pull them aside so I could see out when health is doing well enough.
Lots to do around here...well..not lots..if I were well...most likely could get things down in a couple of days if I were well. ..or even a morning
Time to take Rosie out for a cruise in the power chair.
If there are neighbors sitting out under the new entry way covering...I will once again need to cup my hands behind my ears to hear what they are saying and to keep it short.
But, thankful I am still able to talk or listen to neighbors for a short time now since teh fire.
And the runny noise is no longer happening..so there was somethign in my apartment or something int he complex that was making the brain and health worse.
Still not doing as well as I did at the hotel but have yet to figure out why.
NO air conditioning units on yet this am but they will be starting up soon. That is a factor that messes with my brain.
[ 06-11-2015, 02:14 PM: Message edited by: kam ]
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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hiker53
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posted
A tad cooler today. I did a snail pace walk for 20 minutes, but did not use my trekking poles the entire time.
Kam--so a slug fest at your place, huh? Must be humid.
LP--hope you get your needed rest, so you can drive safely to your dr. appt.
Ak-What is a Yuengling?
Tutu--how's the exercise coming?
Off to play dominoes this afternoon with a few teacher friends. I always lose, but it is fun.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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posted
Kayak .. hope you get some rest!! and a pedi!
Kam.. hope you can find a hospital table .. maybe call a hospital to see if they have any? Worth a try!
AK .. tomorrow is Friday!
Hiker.. Dominoes! Which game do you play?
I did 18 minutes on the machine yesterday and 15 laps. Doing virtually nothing today except some paper work.
Tomorrow I plan to see hubby's show again.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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hiker53
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Tutu--I have no idea what game of dominoes it is. You draw 9, play off a number and can build one train.
I totally ruled dominoes today. First time I have ever won.
Stopped at the grocery store on the way home, but forgot the onions to make spaghetti sauce. Will stop by tomorrow or Saturday.
Gas went up 27 cents in one day. Totally ridiculous. Every time there is a special event in town gas goes way up. And the special Olympics are here this weekend.
Knew I should have stopped yesterday. LOL
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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lpkayak
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i think its about ten hours since i posted ...this turned out to be bad day ... not as bad as first but pretty bad work did get done by helper but he had a really hard time and it took him 6 hrs to do what the boss could do in two but the boss has to keep someone else happy...i stole him from them with emergency
today i realized it doesnt look like these guys closed the hole yet so a skunk or fox or many mice could come on in
i will be gone when they get here tomorrow etta will be locked in only room they dont use 2-3 hours after i leave my friend will come see how guys are doing and take etta out to play and pee for awhile i did get my pedi but i am disgusting and need to do what my list says...i hope i can find the folder i have for this doc with all my mold testing
i ate good toningt grilled chic and lettuce and tomato and coleslaw-good coleslaw
and i got my meds from new primary but it looks like insurance changed and i am paying way more...i need calculator to figure it out
ok ... didnt rread your posts...just had to stop in here at my happy place...to get grounded and knock these things off list
see you soon take care be safe i think my daughters in dallas...im glad the weather isnt as bad as it was there
posted
Sounds scary, kayak! Hope the house is fine when you get back home.
hiker .. I think there's a domino game called "Train." Also one where you get points for scoring multiples of 5.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
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My friends...i am so feeling like only you get me. Please think of me this morning. This appt is so important. I need to not mess it up cuz it has been a long wait to get here and i need answers
I will draw from your positive thoughts and wishes to get thru
all around me are still sending me messages that im faking or over reacting or just plain crazy
I need to feel your understandi.g and acceptance
Ten days with no shower...five days using portapotty....house fullof dust and pollen...maybe a little mold but i dont think much
Etta just ate a little piece of rock wool insulation that floated down
Cant lock door...it broke...now big toilet pipe in slab might be broke
Im heat intolerant bad and no room has good air and a good place to sit or lie
I need your prayers. I ll let you know when im home safe
Pray worker calms down and just does what needs to be done
Pray my friend has strength to cover what i should be doing for the hours i am gone
And pray she gets what is going on with me
And please pray etta i ok until this day is over
Thank you. L N is a really special place you know. Very special
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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hiker53
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LP-Consider yourself covered in prayer. I know God will take care of you and your home.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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kam
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Kayak..sending my imaginary limo over with the crew needed to do what needs to be done...so make a list for them
You my friend are going away from it all for a while. Some place where you will be pampered, indoor plumbing, air conditioning and you can have Etta with you.
Some much needed R&R.
You are getting very close to getting all things done. I assume. As that is when most people have this I can't do this anymore attack.
So hang in there. Going to my prayer site next to pray for you.
Do not worry. It is just a place (guidepost) where I can pray anoymously ....I need to type things out now to pray...not able to pray in my head or verbally)
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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kam
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Well. TV Tivo was turned off yesterday but I still was able to watch TV. The cable guy is coming tomorrow to pick up the equipment so I will not have TV then.
A friend was helping to pay for cable but she is retiring this year so is downsizing. Nice friend. So thankful that she helped keep me connected.
She is just going to a table herself ipad for entertainment and the internet.
I am going to just internet for now and using old computer Doc Dave provided. Amazed it is still going. Cool.
Took Rosie out to pee this am. Next get up and go is out to the forest housing developement area to cruise in power chair.
It is heating up here. Tried to stand and do a few things this am but wasn't able to do anything...standing thing did not work.
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kam
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Hoping to get bedspread back on bed, and make bed...able to wash bedspread last night then hang over shower to dry..
hoping to see how to clean rain proof coat..i assume i just need to empty pockets and put it in the washer...
HOping to get power chairs charged
Looked on line for more choices for covers for the power chair on the lift...but struggling to know what to get...
nice they have reviews as that helps me know if i want to go that way or not...so far have not found one with good reviews
i know the one at the local power chair store was $300 vs the $100 average on line....but I also would need to purchase something to tie the cover down..it connects to the lift
Rain is coming again...I am not sure which day..but need to watch out for it so I can cover power chair seats and joy stick with trash bags.
Any movement is too much lately...so spend most of the day laying in bed
Hoping to be able to take a shower while caregiver is here for the hour.
Maybe today is Friday?? I need to double check.
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hiker53
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Kam--Today is, indeed, Friday. I am sure AK is doing her happy dance.
Hope your caregiver is productive today.
I went to the neurologist this morning for my yearly check. I have had tingling in one foot since Lyme started, but it has gotten worse.
Numbskull MD said it was my shoes and the heat.
Am trying Tesla violet wand on my abdomen for the first time to help my digestive system. Say a prayer it does not make me sick.
Only did 30 seconds and then worked on some lymph nodes to dump any toxins that appear.
Very rainy again today. The pattern is to continue for all of June. Rain every day--ugh!
Back later.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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aklnwlf
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Friday-Not feeling to hot today. Am glad it's Friday but not doing my happy dance.
Swelling in lower legs and having stomach pain and cramps. Went to walk in clinic last night and doc gave me rx for water pills, prilosec and a sleeping pill.
Ever since I took Otezla for a couple days I haven't been feeling well. Also started Cucurmin and Bromelain around the same time. Going to stop the new supps too and see if there upsetting my stomach.
Kayak-Do you feel something in your hand? Well, it's my hand! I'm holding your hand right now to help you get through your stuff and your hand is comforting me to get through mine. I'm here for ya!
Kam-Your slug story reminded me of when I lived in Okinawa Japan and they had giant snail season. Freaked me out to see snails everywhere.
BTW, good luck with the hearing aids! I might have to get one for my right ear in the near future.
Hiker-You are getting a lot done, what with cutting grass and walking too! BTW, Yuengling is a beer that's not to expensive.
Also I got my tesla wand yesterday and need to reread your instructions on how to use it. Thanks so much because what came with the product wasn't very clear on proper use. Do you use talcum powder like they suggest? I don't have any but do have non-gmo cornstarch.
TuTu-Glad some of us are getting to work out! Enjoy your hubby's show today.
Hope everyone has a terrific weekend!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6144 | From Columbus, GA | Registered: Jul 2004
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hiker53
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Trying to find a "fun" ringtone that is free and the good ones are not free. Tis the way of the world.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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lpkayak
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im back. im ok. soon i will be really better.this is environmental medicine doc. sorta new i think there are ten in usa and ten more being trained not as expensive as llmd but more than primary
she has been llmd ten years i think and enviro doc 4 yrs after exam and tests in office she said she is very sure i am not detoxing lyme or mold she believes i will be a whole lot better in a year tx starts out slow with welchol or csm and then depending on reaction different meds or therapies specific protocol to follow...i dont know it yet...but you must meet certain goals before moving to next
i am so hopeful i was crying and shaking when i got there-late ...lost...
she was so smart and kind and caring and professional she knows most llmds...we connected immediately...felt like chat with friend...but one who really knew the answers
my first words to her were :i dont really think i have lyme or mold problem...i just think the tx messed me up and i need to get back on track
she said...in a calm caring way i tested lower on the most important test than anyone she ever had
that means im holding on to toxins and will show improvement when i let them go
so very hopeful
my friend took etta to her house and they had a wonderful time
the workers i thought were quitting on me fixed the toilet that broke and moved tub in - its not hooked up yet i have weekend to catch up on sleep and they will hopefully finish mon and tues i didnt want them here for 3 days i am out of town next week to see chiro
this doc taught me so much but i cant write it..soooo exhausted your prayers worked..kams limo is outside waiting ...thankyou talk to you again soon
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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hiker53
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lp-YAY! Sounds like you are going to be in healing mode and not a killing mode.
That is excellent.
Rest, my dear, rest.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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kam
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sign..what a relief LP good to hear
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kam
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i was a slug today too..good idea about going to a place that has wireless.
I downloaded some apps that I was charged for but they do not work...I assume it is because a wireless connection is needed.
cable guy was supposed to be here today to pick up equipment but no one showed or called.
I still have some channels on TV and others are not working...so looks like I will have the tV for the weeknd I guess.
Computer is still working too as far as internet so this is good and phone.
got up several times to try and do something but was not able.
I was able to put a few of the dishes away that the caregiver wshed.
And send an email to the local hospice place asking if they had any used hopsital tables or bed tables for sell.
I also can send an email to the care center.
And the hsopital.
Then maybe I will not need to type iwth my eyes closed as the screen will be righ tin front of me.
Have cooler on today. MOnsoons season starts on Monday.
Brain is being weeird.neighbor asked me once again if she could go with me to the forest area when I go.
I told her once again that my health needs to improve first and it is not safe to have her in the car with me until health is better.
I think her brain doesnlt work so well either...she keeps asking and I keep telling her hte same thing.
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kam
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Wow. Did not know that Japan got giant snails season.
SAw something on FB about san diego area getting an abundance of crabs wshed ashore.
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posted
Hey gang!! Good to read all the news.... I MUST get to bed now but wanted to check in. LONG LONG day for me.
(AK .. Bromelain kills my stomach. I can take curcumin, but only with food.)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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kam
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posted
Saturday:
Able to drive out to shoofly indian ruins and cruise in power chair to site I use to walk to...had to wear ear protection muffs as it was a rough ride with lots of noise.
Hot out all ready at 7 am.
Was not feeling well but thankful I was at least doing well enough to get out of the house/apartment.
Resting now. I have things I would like to do but still doing that thing where getting up to be on my feet and move about is not working.
AT least I can sit and ride in the car and sit and ride in the power chair.
STill have clean hair which is nice but body feels like it needs another shower.
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lpkayak
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i slept pretty well but my body is really screwed up havent been eating or taking meds right or even going to bathroom right with porta potty in my bed room and men walking around and swearing and doing man stuff all over the rest of the house
i like men in general...raised 3 boys...love my grandson...but sheesh...so loud and messy...wears me out...along with bulldozers and back hoes on my front lawn 6:30-4:30 every day
my body parts keep going into bad spasms and i had what seemed like a pancreatitis attack for many hours last night...but im resting and eating right and things are getting back to normal
i must clean up a few of messes guys left and water flowers esp newly transplanted ones and talk to sewer man about how to make drain access that doesnt require digging thru 7 feet snow and 18" frozen growund...and get air machines working again...they need daily maint on humid days
ettas still tuckered out from play day with my frined that has much energy and a cat...im so glad she had a good day and wasnt bad for my friend wh is much more of a cat person
couldnt read most of your posts yet...but the numbskull md got me to stop and read. i know. I KNOW! my friend type chat with new doc was about that type of stuff...she was ranting...about so many suffering when that kind of stuff goes on
take care...see you soon
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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hiker53
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Used the tesla wand yesterday and it did wipe me out last night and early this morning.
Since it is going to rain all week, I did get out and mow the lawn. I just mowed Tuesday but it needed it again.
Very hot and humid and now I have the heat headache.
Doing laundry now--always toss the mowing clothes in the wash on hot water and dry on high. I immediately take a shower, too.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8885 | From Illinois | Registered: Aug 2004
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posted
Doing OK over here. Got some rain today. We hadn't had any in close to two weeks...back when we almost got "too much!"
Watching Urban Cowboy and then a documentary about the movie. It's been 35 years since the movie was made!! It started a "country western" revolution back then.
I read a great article about the movie and it's made it all so much more interesting for me. I haven't seen the movie in at least 20 yrs. It's the movie that launched the careers of Mickey Gilley and Johnny Lee .. not to mention helping John Travolta's a bit!
PS. .. It's on CMT if you're interested.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lpkayak
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I ended up sleeping alot today. But also ate and took meds right and am feeling better. Also did laundry, gave etta a bath, sorta washed me at the kitchen sink....i should probably pick up many packs of wipes...thats how i kept clean after surgery
Also ozoned house...and made a ruff plan for getting ready to drive to nj wed
When.showingvneighbor the tub i saw it had two jets in back. I really wanted them there but sales person said they would be 1000. More and 4-6 wk wait I dont know what happened But its fine with me
My lawn will not get mowed this week or next. Parts of it are too tall already. But there is no way. When i get back from nj it will be cstch up time
Nite
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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