posted
I'm sorry for bothering everyone with yet another post, a dumb one at that.
I'm so lonely. I don't have anyone to talk to, A lot of people around me, but no one I can really talk to. No one understands, and every time something new happens they're like "it's just lyme, take a pain pill".
Like right now, I'm having extreme right-sided chest pain that has me screaming when I breathe too deep or move the wrong way. What is that??? What if it's not "just Lyme"? This is hitting the 10 out of 10, yet I should just take a pain pill because it's just Lyme.... I've had serious pain but not one like this where I lose all control and scream.
I'm 29, my single mom died when she was 37. I wish she were here. She had cancer, I had no idea what her pain must've been like, but I do now. She would understand this pain.
Yesterday my 2-year-old told me "I need you dada" and wouldn't let go of me. He keeps me going, him and his older brother. But I'm getting sicker and sicker, and no one around me will acknowledge that because they don't want to believe it. I have to lie flat 23 to 23.5 hours a day now. Are other people this sick?
I don't wanna die. I just want to get well and be the dad and husband that God has called real men to be. I'm trying so hard, but I can't get rid of this awful yeast so how am I supposed to treat Lyme? I'm rifing, can't use hyperbaric because my heart can't handle it, don't know what else to do.
Sorry to rant on. I just gotta talk somewhere. I hate needing support. I've always been the one to give support, not take it. Now here I am, being a burden to you all. Sorry I hope to be on the other side of the fence again one day.
Posts: 748 | From Texas | Registered: Feb 2015
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
I used to have severe chest pains exacerbated by movement. It turned out to be costochondritis.
Others here are struggling with yeast too.
You might want to post this in Medical. That way you'd get more of a response.
Hang in there!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6147 | From Columbus, GA | Registered: Jul 2004
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posted
Thanks, Alaska Lone Wolf. I've posted most of this in medical before, and got some good yeast tips, just none of them are working. And maybe this is just chostrocondroitis, I hope so.I really just needed to unload more than anything.
Posts: 748 | From Texas | Registered: Feb 2015
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posted
Sounds terrible, Sam .. in all aspects. So sorry to hear about your mother dying at such a young age. That has got to be very difficult for you. (even now)
Right sided chest pain? Do you have any ideas on that? Chostochronditis was my first thought also. Is that what it feels like?
Are you taking anything for inflammation, like curcumin or turmeric? Wobenzyme?
The yeast problem is a big one. What are you doing for that? Is your doctor helping you with it?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
It definitely is still difficult. I was 20 when she died, and my little brother was 9. I've been raising him ever since. He just graduated high school, and I couldn't even be there for him because I can't sit up. Sorry to tell a sob story, I've never unloaded like this before in my life. I guess it's all built up,
I guess the pain feels like it could be chostrocondroitis, this pain is a lot different from my left-sided pain. This is very sharp and worse with breathing, whereas my left-sided pain is sharp/dull/pressure all-in-one. But my liver hurts bad too and I wonder if the pain is radiating up from there. It's in my right shoulder and jaw too.
Just about everything I eat is covered in turmeric, not sure if that counts but think it does.
The doc is helping with yeast. 200mg diflucan daily, 4 nystatin tabs daily, he told me to take a product called "Yeast Cleanse" that I have yet to take because it contains tea tree oil, and everything I read says not to ingest tea tree oil. I'm taking digestive enzymes, oregaresp, doing the tesla wand, rifing, no carbs, no sugar. I've eaten raw garlic, coconut oil, Apple cider vinegar, have taken olive leaf extract. This stuff just won't die.
Posts: 748 | From Texas | Registered: Feb 2015
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
My first thought was pleurisy.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
Have you considered something like going to the ER to rule out anything else going on, as in you asked what if it's not just Lyme? Sure, Lyme could be causing chest pain but so can other things as well.
You can talk here - we've all been through the ringer here -
Posts: 13116 | From San Francisco | Registered: May 2006
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
I thought costochondritis too at first. When i get chest pain i take extra reflux meds and if that doesntbstop it i take muscle relaxant like flexeril or skelaxin. If its costo it gets better with with the muscle relaxant
By th way this is exactly the place you should come to unload verbally. Thats why we re here thats why i need lymenet too
It does seem like you are very sick. I know texas is a hard place to get lyme tx. Do you have a llmd?
The part about pain up arm and jaw makes me think you should be seen. I agree pleuracy should be ruled out too.
Who helps take care of you now...keep talking to us!
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
I know. I thought of pleurisy too. I've had it before...but the pain was not on one side.
Makes me think your stomach may be inflamed. I know I wouldn't be able to take all of the things you are taking. Maybe you could try leaving off the apple cider vinegar and see if it helps any?
God bless you for taking good care of your little brother. So sorry you couldn't go to his graduation.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
Wow - you're on an awful lot of stuff Sam, as Lymetoo said, I would never ever be able to tolerate all that. Sometimes even gut issues can feel like heart ones (best to get yourself checked out though).
I often go off everything (speak to your doc) and let my system calm down a bit and add things back a little at a time. I truly don't think there's a need to kill your system trying to get better. It can also affect our mood.
I'm so sorry for your life challenges.. so much sadness, I can relate to some level. Very lonely here too, sometimes that can make you feel like you're dying.
Glad you reached out, sending you gentle hugs.
Posts: 394 | From Southeast | Registered: Oct 2012
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posted
I've been to candida support groups - it takes a while to lick it - you need, first of all, to be on a nonyeast diet to starve the yeast of its food.
Be good to yourself during this healing time. You're doing the best you can. And keep chatting here - we all will respond.
Posts: 13116 | From San Francisco | Registered: May 2006
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
hang in there. your little one it telling you just that. just remember to never give up. it is worth the fight. pain can be so horrible. it can make you stronger if you realize that it can.
I am sorry you feel alone. it is a part of tick disease, sadly. just know that I and many many others are with you. we are alone, but yet together. I know that is easy to say an dhard to actually live with, but it does help a little jsut to know many others are just like you, no?
on your bad days, weeks, months, just remember that it CAN get better and chances are in your favor that it will. especially if you don't let anyone tell you that it won't.
find what works for YOU to get well. no matter how slow or long it may seem, if you stick with it you will see changes and even a slight change is a change. we must all hang in there together and not give up. not let the disease win. no.
my kids are much older than yours, but they too are one huge factor as to why I do not ever give up.
I hope you find relief as fast as possible. all thebest to you
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I never even heard of chostrocondroitis before! and I think that is what I had. al the years before tx. lots of sharp stabbing pain when I moved. all wnet away from my tx, and also I think allergy tx helped as well. not sure this is what I had or if those tx really were what did it. I have done so much so it's hard to judge.
they thought I had pleurisy too. and all the other things always came up neg also.
I hope you find relief as soon as possible. is it worse with things you eat?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Ann-Ohio
Frequent Contributor (1K+ posts)
Member # 44364
posted
I had this. It is in the cartilage between your ribs and where your ribs attach to the breastbone. It is painful to the touch, as well as hurting terribly when you move.. Here are the remedies from the Mayo Clinic site:
posted
10 out 10 pain. Liver hurting as well as your chest. These really need to be evaluated. It could be 'just lyme' however, Lyme can and Will cause damage to organs and tissue that need to be addressed by conventional doctor knowledge and testing.
Please, see your doctor now, not later. Or really, the ER if the pain is 10/10. After pain level of 10, pain level 11 means you can't even call for help because you are passed out and/or well, dead.
Very concerned for you.
Edessa
Posts: 138 | From Eden Prairie, MN | Registered: Dec 2011
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posted
Thanks everyone, I really appreciate all the support here, so much!
The chest pain never goes away, on the right or left sides, just keeps getting worse altogether. I had an echo two days ago, supposedly my heart is still ok. I've been to the ER so many times in the past year, I'm done with ERs. I can't sit up in a waiting room anymore. If I really had to go I guess I'd just call an ambulance since I can't really sit up.
I tried zanaflex, that was a mistake. It sent my resting heart rate up to 160 and upright heart rate to 200. After a couple of hours it finally improved.
I do have a good LLMD thankfully. I've actually seen 4 within the past few months and I finally picked one (I think!).
My wife takes care of me and our kids. She had to quit her job and we moved in with her parents.
I haven't taken all of those things at the same time, just some combination of those things over the past several weeks. When one combo doesn't work out I'll swap one herb for another, and so forth. No combination has really seemed to help yet. My stomach is really handling it all pretty well. I'm on a great diet, too, so I don't know how this stuff keeps growing! Taking so much Diflucan does concern me though. I started the Yeaat Cleanse despite my Tea Tree concerns, so maybe that will help.
After reading some more, I'm not sure chostrocondroitis fits. The pain goes all the way through to my shoulder blade in the back and the pain is further away from the breastbone. The left-sided pain definitely is something different.
My chest feels like it's a water balloon that has been slowly inflated for the past year. The whole thing feels so full now, no room for my lungs, no room for my heart, the pressure is tremendous and never goes away, but it's worse when I'm upright. If it were just pain, then ok, I'd deal with it somehow. The tremendous pressure on my heart and lungs is what's most unbearable altogether.
I do thank God for my kids. If it weren't for them, I'd be more like Job and crying out for the rocks to fall on me and crush me. This is unreal, I've lost my health and home, but thankfully I haven't lost my kids like Job did. That poor man went through so much. Those babies are so precious, I've just gotta raise them up teaching them Truth.
Today was the first day that I really didn't care whether I lived or died, then I felt so guilty later for feeling like that. I can't leave my kids and wife here. I constantly hit new "lows" all the time. I'm supposed to start Flagyl tomorrow, yea fun. I just hope it helps.
Thank you all so much for talking to me sorry it takes so long to respond but I know you all understand. I just really pray that I'll be able to help other people who are suffering one day. Until then I think I'll start taking lots of neurontin or something. I really dislike medicine, or rather the necessity of medicine, but I'm glad it's here for those of us who need it.
Posts: 748 | From Texas | Registered: Feb 2015
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posted
Edessa, i think we posted at the same time. The 10 out of 10 is only the sharp pains when I move. If I keep it really really still its more like a 4-6 out of 10 on the right. Thankfully the 10 out of 10 only lasts a couple of seconds at a time.
The left, however, has been a good 6-8 out of 10 for a while now, but I just had the echo yesterday so I guess it's still ok, but the pressure and pain continue to grow.
Posts: 748 | From Texas | Registered: Feb 2015
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quote:Originally posted by SickSam: Those babies are so precious, I've just gotta raise them up teaching them Truth.
- Amen, Sam!
I am so sorry you are in such misery. I remember reading the book of Job when I was forced to retire from teaching many years ago. It's very humbling to read that book!
I will go to bed tonight praying for you and your precious family.
PS... start with only a SLIVER of flagyl. It can bring a grown man to his knees. That's basically a quote from my LLMD of many years ago.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
Thanks, Lymetutu I really appreciate the prayers.
I'll take just a tad of Flagyl today and see what happens. One doc wanted me to start taking 1500mg every day; that seemed like a lot. The doc I'm going with wants me to start with MUCH less.
Posts: 748 | From Texas | Registered: Feb 2015
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I hope to be on the other side of the fence again one day.
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sorry it takes so long to respond but I know you all understand. I just really pray that I'll be able to help other people who are suffering one day. Until then I think I'll start taking lots of neurontin or something. I really dislike medicine, or rather the necessity of medicine, but I'm glad it's here for those of us who need it.
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