I was diagnosed with lyme back in 2015 after about three months of being pretty sick. I went on doxy for about a month but still felt sick, I found a specific lyme doctor because I live in the South and they are clueless about it here. I am from New England and that's where I contracted it.
Looking back, I should've known right away but I have scleroderma so I assumed it was something related to that.
I found a doctor in Ohio and she put me on so many supplements and anti-biotics it was hard to adjust to all of the herxing. I followed this treatment for about one year then I needed a break. I found after about a year and a half I was getting headaches every day with extreme fatigue. I again, assumed it was my auto immune issues, but I don't think so.
I went back to my lyme doc the other day, she ordered all new blood work, put me on the regimen of anti-biotics/supplements again and I will see her again in March.
My main issues right now are: headaches, fatigue, brain fog and joint pain.
What have the best treatments been for you?
Posts: 5 | From KY | Registered: Dec 2018
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
Everyone is different in terms of treatments.
I used photon therapy and energy healing.
Detox is a huge part of getting well.
Welcome and may you feel better soon.
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8879 | From Illinois | Registered: Aug 2004
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quote:Originally posted by hiker53: Everyone is different in terms of treatments.
I used photon therapy and energy healing.
Detox is a huge part of getting well.
Welcome and may you feel better soon.
Thank you!
What is photon therapy? I am on a lot of detox supplements right now, she said that was the most important.
Posts: 5 | From KY | Registered: Dec 2018
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posted
We're all different re what we respond to. I do very well with a very simple remedy - I take a 00-size capsule of turmeric in the am and pm and that greatly takes down muscle and joint pain.
I had thyroid bloodtests and tested hypothyroid, so went on Armour thyroid and that ended brain fog for me - felt totally present again. So you could have your thyroid levels checked.
I took a form of pollen many years ago and that stopped fatigue for me. We all need magnesium supplementation for energy.
Never had bad headaches. I also understand the co-infection ehrlichia can cause headaches. It's important to know if we have other co-infections, like that one, or babesia and bartonella. Babesia can cause fatigue.
Part of treating is knowing what it is we're treating, so want to bring up the co-infections question with you as well, as in have you been tested for them or checked their symptoms out to see whether you think you match any of that.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
My doctor tested me back in 2015 and I can't remember how my thyroid levels looked. She just did a whole panel again and we are going to go over it in March.
She told me I had bartonella but I don't recall her telling me about babesia. We are working on co-infections right now. She wanted to clean my gut and I am on a bunch of supplements.
At any rate, I just started my biaxin this morning, I was on this one as well as doxy and bactrim for about a year before.
All of my supplements:
Nature's Sunshine - Bowel detox, Urninary detox, Lymphomax, and Proactazyme.
Juice Plus both fruit and veggies.
Florastor and VSL #3
Plaquinel (I was already on this one for scleroderma)
Cytoquel from Researched Nutritonials
Posts: 5 | From KY | Registered: Dec 2018
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Interesting. Where do you get this done?
Posts: 5 | From KY | Registered: Dec 2018
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
jess, I've sent you a private message on this site.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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