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» LymeNet Flash » Questions and Discussion » Activism » URGENT: DON'T LET IDSA GUIDELINES STOP YOUR MEDICAL CARE

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Author Topic: URGENT: DON'T LET IDSA GUIDELINES STOP YOUR MEDICAL CARE
ellenluba
LymeNet Contributor
Member # 1707

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The following post is from Phyllis Mervine of CALDA:

Do you have friends or relatives in Connecticut? Do they know about Lyme disease?

We need their signatures on our petition to urge the CT attorney general to enforce the settlement agreement against the IDSA. IDSA has violated
the voting process stipulated in the settlement agreement and concluded that the guidelines don't need to be revised. The IDSA guidelines deny
antibiotics to people with chronic Lyme disease.

Please send your friends and relatives who live in Connecticut to
http://www.lymedisease.org/news/lymepolicywonk/426.html to sign the
petition asking the AG to enforce the terms of the settlement and make the IDSA redo the vote. Our ability to obtain treatment depends on the
success of this petition.

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Posts: 819 | From New York, NY | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
ellenluba
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This is about the most important issue that has come up in my 10 years of involvement with the Lyme community. If you think you had trouble getting enough treatment before the IDSA rubber stamped its original guidelines, 'taint nothing compared to the trouble we will have if things are allowed to remain the same.

AG Blumenthal has been wonderful in pursuing his anti-trust case against the IDSA. However, the job is not done if the IDSA violated its settlement agreement and they are not brought to court.

Please contact everyone in CT that you know. Ask them to sign the petition at www.lymedisease.org/petitionscript/ and to send the petition on to friends and family.

This is only for CT residents since we want AG Blumenthal to get an idea of how many of his constituents support his bringing the case further.
Thanks,
Ellen

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Posts: 819 | From New York, NY | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Go Bozo, go!

And thanks for all your efforts over the years.

You are an inspiration to all, especially me.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20264 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Dancer
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Hey all,

There's a new direct link to the online petition.

Just go here:

www.LymeAlert.org

and you'll be taken straight to the petition webpage.

Easy to remember!

Posts: 227 | From South of the North Pole | Registered: Jan 2007  |  IP: Logged | Report this post to a Moderator
ellenluba
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Hi folks,
You don't live in Connecticut. You don't know anyone who lives in CT.

But you probably know someone who knows someone who lives in CT. (As a matter of fact, I think Kevin Bacon lives in CT. But that's beside the point.)

As you know, the Kevin Bacon game is supposed to show that everybody is connected via six degrees of separation.

So please send the following to everybody you know:

Dear friends,
I'm writing to ask for your help getting the signatures of Connecticut residents for a petition that will not only save many Lyme disease patients, but has the potential to help everybody get better medical treatment. www.lymealert.org

It is a major step toward keeping commercial interests from controlling the medical guidelines that can determine how your doctor treats you.

This petition is addressed to Attorney Blumenthal of Connecticut so we want to gather ONLY the names of his constituents - i.e., ALL residents of CT. Please help me get as many signatures as I can. If you don't live in CT or know someone who does, please just send this out to all your friends.

The Six Degrees of Separation principle will get this petition to Connecticut residents soon enough. This issue is extremely urgent, so the more outreach we do the better.

For more info go to www.lymepolicywonk.org or http://m.stamfordadvocate.com/stamford/db_34094/contentdetail.htm?contentguid=UC7yYcHO&src=cat
Thanks,
Your name.

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Posts: 819 | From New York, NY | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
ellenluba
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Another way to write to get signatures from CT people is to send this letter:

Dear friends,

Please help me and all Lyme patients - this urgent petition needs to reach everyone in Connecticut.

Please forward to all your Connecticut contacts, or anyone with friends or relatives in CT.

For more info check out the flyer at:
http://nyclymesupport.org/images/ctpetition/flyer_email_version.pdf

The petition can be signed at www.LymeAlert.org (CT residents only)

Thank you!!

(your name)

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Posts: 819 | From New York, NY | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
onbam
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So with written signatures, any idea how many have signed so far?
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ellenluba
LymeNet Contributor
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Dunno yet. I'll try to get a count from Time for Lyme. We went to CT to the Stamford Mall last week with just a handful of us and got almost 400 signatures in an hour and a half. You just mention the word Lyme to people who live in CT and they're very receptive.
Ellen

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Posts: 819 | From New York, NY | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
   

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