This is topic Jittery, Sleepless, Revved-up Feeling........How do I chill? in forum Medical Questions at LymeNet Flash.


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Posted by robi (Member # 5547) on :
 
I have been feeling like my body is revving. Not really energetic but just revved.

I was having trouble staying asleep only. Now I am having trouble falling asleep also. I have been using somethig called Deep Sleep which is a combo of California Poppy, Valerian, Passionflower, Chamomile, lemon Balm, Oat seed, Orange peel.

I wasn't taking it every night. I can sometimes sleep ok ....... even through the night. But more often I am in this revved state of being.

Is this hormonal? Lyme has given me sleep problems before but never this revved feeling.The feeling even continues in the day.....but I am exhausted.

I had no troube sleeping at all before getting Lyme in 2003.

Opinions?

Thanks,
robi

 

Posted by lymie tony z (Member # 5130) on :
 
Some would say you are suffering from Post traumatic stress syndrome.
There is evidence that this is a side effect or a direct affect of neuro-borreliosis.
I have been there and the only thing that calms me down eventually is IV Ceftriaxone. It seems I have needed this on and off since 98.
I am presently on Lexapro wich seems to help regulate my up and down emothions. However I noticed sleeping better while taking Ketek also.
Ketek is'nt supposed to be a mind abx so maybe it's just the effects of my last IV still holding me together. Don't know exactly.
Lyme is noted for affecting the mind in this way however. Possibly Babs...like I said not dx'd with that...However.
I've used benadryl in the past. Warm milk at night. Even tried tylenol pm but got a hangover effect from it.
Experiment...see what helps you. Primrose maybe???(evening).............zman

------------------

 

Posted by Linda LD (Member # 6663) on :
 
Robi,

You might want to have your thyroid looked at. Your body gets confussed as to who the bad guyis and will attack your thyroid. My sisters would spin on and off.

If you are hyper (your thyroid is spinning on) then you feel revved and can't sleep and you are hard to get a long with.

Be sure and have your TSH, t3 and t4 checked. Thyroid and Ld go hand and hand.

Linda
 

Posted by Linda LD (Member # 6663) on :
 
quote:
Originally posted by Linda LD:
Robi,

You might want to have your thyroid looked at. Your body gets confussed as to who the bad guyis and will attack your thyroid. My sisters would spin on and off.

If you are hyper (your thyroid is spinning on) then you feel revved and can't sleep and you are hard to get a long with.

Be sure and have your TSH, t3 and t4 checked. Thyroid and Ld go hand and hand.

Hi Tony!

Linda



 
Posted by quic (Member # 5262) on :
 

When I was feeling jittery like that Neurontin helped me.
 
Posted by break the chains (Member # 5668) on :
 
kava kava can help greatly, if the powder in a drink seems too nasty get the liquid extract of kava kava and liqorice. i find that the kava kava extract actually puts to sleep more than the kava kava which is better for relaxing and unwinding. also i am growing valerian right now, herbs and plants have much more power when they are actually living and infused and illuminated with the life force.
 
Posted by tikbit (Member # 6629) on :
 
[Kava is ok on a very short term low dose, but with all the meds we are taking for the lyme another that has a proven potential for liver damage is not a good idea. That' just my opinion. I'm really concerned about the liver damage thing since you can't get a transplant if you have lyme.
 
Posted by break the chains (Member # 5668) on :
 
i belive the information on kava causing liver damage is rumor. possibly put out by the powers that be. there are many native tribe people all over the world who are very heavy kava drinkers, beyond what we might use. none of them have sustained any damage. kava use goes way back, there would be a lot of damage to all of these people if kava could really trash your liver. actually the whole thing may have happened because of chemicals or agents that were used to process the kava. it is possible there were some bad batches. this happened with l-trytophan, there was a bad batch and all of a sudden you have an amino acid which is taken off the market. i wouldnt worry about damaging the liver with kava, especially using it occasionally. i would expect that if you were to damage your liver that you would have some symptoms going into it, and would notice. also if you drink too much kava you can tell by your skin. I would say that the standard american diet, with lots of meats and bovine lactose are much more harmful to the system, and greatly toxic.
 
Posted by break the chains (Member # 5668) on :
 
cave has a good point as well. one thing that used to give me hell in regaurds to feeling wired, like you cant turn off, is antibiotics.
i know sleeping is a big problem for people with lyme. i used to be up for a few days at a time in the past because i could not get sleep tired dispite being totally exausted and in a very strange state of mind and being. also my cycle was all messed up, where id be up all night unable to sleep.
i am soo much better now and it is the rare exception that i have any trouble sleeping.
im sure getting off the iv and onto transdermal abx has helped.

also on the kava, kava is organic, standard american diet is not. non organic commerical food all comes from fertilizers made from petrochemicals and pestisides from the same.
so which is more natural, eating oil turned into food, or an organic root from the ground.
im going with the root, and i have gone to a completely vegan raw organic diet.
 

Posted by chainsaw joseph (Member # 6611) on :
 
My worse symptom,its aweful.Your body feels like it ran a marathon but your mind is like on twenty cups of coffee.Ive had this for a long time and it slowly getting better,especially being on tetra.Try 5htp.it really calms my neuro and racing stuff down.Jan(recipegirl)found one article about contradiction between atbx and 5htp but also alot of LLMDs recomend.It really helps me at times,I think mine is from douglass labs.Any kind of benzo will help with that but they are addictive.You can get 5htp at a healthfood store.
 
Posted by robi (Member # 5547) on :
 
Wow...I just saw all these replies...thanks!

tony z......maybe it is PTSD don't know.
I am on Ketek so i guess that isn't helping...guess your right I just have to try more stuff. I haven't done IV and was hoping not to. Med change next wek to flagyl and mino....maybe that will help. I am finishing up 6 months of mepron for babs.

Linda... You may be on to something.....I started armour thyroid about 2 mnths ago. Maybe I need the dose adjusted down. Need to have my blood tested again ...maybe time to readjust the armour. I will have this checked soon.

quic......Neurontin scares me...but I am getting pretty scary without sleep.....so maybe.


Breeak the Chains and Tikbit ...... yes Kava is a great idea but the liver otxicity does concern me as well.My live is stressed right now. The toxicity thing may be rumor but I am nt chancing it right now. I do eat organic food and clean meat. The only time I eat other food is when I ocassionally go out. My diet is way better than the standard American Diet. I think it is essential to getting well and staying well.


Break what transdermal abx do you take? are they more expensive? Does insurance cover them???

cave...tanks for the input. Do you think if it is *just the lyme* that it would come and go with out having chaged my regime? I haven't change anything in a while. I am about to do a big med change but have not done it yet.

Chainsaw...the 5HTP sounds good......do you remeber what the contradiction was? I will ask my alternative doc about this one.


These are all great ideas....thanks.....
I'll let you know how it turns out.

robi
 

Posted by GiGi (Member # 259) on :
 
In that case, I would stop all for a few days and give your overstressed system and organs and not last, your autonomics, a break. The body has a way of saying enough is enough. Listen to it. Get these meds cleared out of your system - your body is saying NO! I think my doctor would tell me the same thing (he would never have put me on all the stuff you are taking at the same time, if I understand you right). In the state you are in, healingis impossible.
Take care.
 
Posted by paulscha (Member # 6334) on :
 
Thanks for posting this question, Robi.

Gigi, in my opinion, this is how some people with Lyme respond to antibiotics, period.

Robi, fow what it's worth I have gotten significant relief from this, with no sedation, taking Gabitril.

As a gaba reuptake inhibitor, it does not cause the sedating spikes in gaba that the diazepams do.

It is protective against seizures.

It is protective against the nervous system dsyfunction that occurs during opiate withdrawls, which in my opinion has much in common with at least one of the flavors of herxheimer shock experienced by Lymies.

It's not a profound change, for me, but it does help. I have tolerated all antibiotics better on Gabatril than previously.

It might not be the right thing for you - we really aren't all the same. But you might want to ask your Lyme doc about it.

Paul
 

Posted by cootiegirl (Member # 3216) on :
 
Ok,
Here's another perspective. A bit different but effective for me. Don't know if it will work for you but thought I'd share it nonetheless. Don't know if I can explain it the best, but ask if it doesn't make sense....

One of the things that I tried very hard to teach myself do early on in my illness, was to be attentive to symptoms and changes but not to let them worry me. While we need to be vigilent of changes that could effect us, I do think that we have a tendency to worry over every little thing that is different or off course. While we are certainly justified, the anxiety from worry makes matters far worse and puts added stress on our bodies.

I also had difficulties with sleep and the racing brain. I knew everything test wise was in order, so I just would simply go with the flow. I am absolutely the worst when it comes to additional supplements and things above and beyond my lyme meds, so herbal sleep aids weren't even a consideration. Basically I would just remind myself that this is lyme, and I would sleep when my body was ready. During the insomnia periods, I would rest, watch tv, whatever until sleep took over. Then I would rest throughout the day. Now the advantage I had was that I had already lost my job, so I was home and could rest as needed. I had a lot of family support as well. This approach by no means 'cured' the insomnia, but it did make dealing with it bearable.

It took quite awhile for the insomnia to go away, and I got pretty familiar with some of those goofy late night infommercials, but they did pass with time and the right meds.

This disease plays horrible headgames with us, so I played those games back and told myself this is the lyme trying to get the best of me. Believe me I'm not trying to peddle 'mind over matter' philosophy because that is overly simplistic and ineffective. I'm suggesting that recognizing and acknowledging what is going on and pretty much letting it take its course is an option to consider. I think we are a society that all to often looks for a pill to 'cure' an ailment, when all it may take is changing some of our behaviors or thoughts. Certainly if this starts to effect your health, you need to seek medical help.

The insomnia and racing brain has pretty much stopped for me and I am enjoying fit sleep, but it will crop up very infrequently. So again I just let it take its course.
cootiegirl
 

Posted by Foggy (Member # 1584) on :
 
I get this now and then. Lyme panic attacks, I think. I take propranolol during the day to chill, and Ativan at bedtime to fall or stay asleep.

Talk to your LLMD about this symptom.
 

Posted by break the chains (Member # 5668) on :
 
i am having a ton of lemons and grapefruits. these cleanse the liver, especially lemon juice. they make you alkaline as well which parasites do not thrive with. also i am growing milk thistle.

Break what transdermal abx do you take?
minocycline, took doxy for a little while

are they more expensive?
i think they are cheaper
$32 for doxy
$132 for mino maybe?

Does insurance cover them???
yes

you bypass the gut entirely and its not as bad for you as iv for many reasons. i just couldnt take orals anymore from the damage. and i really want to stay away from iv after doing it for 9 months. it seems it has a delayed release effect as it goes in slowly through the skin as well. the only problem is getting it not to come off on your clothes. i use a spray bottle of water to moisten the skin and get it on evenly and well.
 

Posted by lymeinhell (Member # 4622) on :
 
My vote is thyroid. If it were me, I'd call my LLMD and explain the whole picture.

In the meantime, to shut the brain down at bedtime, you could try the following 3 oils from the website I told you about. (www.youngliving.com)

Jasmine oil - a drop under your nose, then breathe in the scent from your hands.

Valor - rub into soles of feet, and especially toes, then breathe in the scent from your hands.

15 minutes later - Peace and Calming - rub into soles of feet, and especially toes, then breathe in the scent from your hands.

My ND uses this on kids with ADD. I've been using it for a month now, and sleeping like the dead. (I slept 11 hours straight the last 2 out of 3 nights).

Feel better!!

------------------
Julie G.
___________
lymeinhell
 

Posted by TheCrimeOfLyme (Member # 4019) on :
 
Chill potion:

Take two lemons
Mix with Rum and Vodka
Smooth out with grapefruit juice ( for detox of course)

Run a warm bath
Sip the above
and forget the world.

OK OK OK ..

Im sorry I dont have any suggsetions, but trust me, I was wondering last night

as I counted my ceiling ( I have only one) for two hours

"I wonder if Robi has insomnia too"


 

Posted by robi (Member # 5547) on :
 
Thanks COL....................
if I can't sleep at least I can laugh.

Of course it is a copmplete treatment because it includes a detox.


robi


[This message has been edited by robi (edited 28 March 2005).]
 

Posted by cootiegirl (Member # 3216) on :
 
Yes, thanks Cave for understanding where I was coming from with my post. Like you, there is no way one can 'will away' their illness. Certainly good thoughts are healing thoughts, but I do like your philosophy of 'knowing the enemy'....

Not to change the idea of this thread or to rain on anyone's citrus parade, but be careful with grapefruit juice and various meds. Lemon juice is fine, but grapefruit juice can be very dangerous if taking any of the following meds. If these meds are not a part of your regime, then you are free and clear to indulge....

Drugs that Interact with Grapefruit Juice:
(from the December 2004 issue of the American Journal of Nursing)

Antibiotics: clarithromycin, erythromycin, troleandomycin
Anxiolytics: alprazolam, buspirone, midazolam, triazolam
Antiarrhythmics: amiodarone, quinidine
Anticoagulant: warfarin
Antiepileptic: carbamazepine
Antifungal: itraconazole
Anthelmintic: albendazole
Antihistamine: fexofenadine
Antineoplastics: cyclophosphamide, etoposide, ifosfamide, tamoxifen, vinblastine, vincristine
Antitussive: dextromethorphan
Antivirals: amprenavir, indinavir, nelfinavir, ritonavir, saquinavir
Benign prostatic hyperplasia treatment: finasteride
�-blockers: carvedilol
Calcium channel blockers: diltiazem, felodipine, nicardipine, nifedipine, nimodipine, nisoldipine, verapamil
Erectile dysfunction drugs: sildenafil, tadalafil
Hormone replacement: cortisol, estradiol, methylprednisolone, progesterone, testosterone
Immunosuppressants: cyclosporine, sirolimus, tacrolimus
HMG-CoA reductase inhibitors: atorvastatin, fluvastatin, lovastatin, simvastatin
Opioids: alfentanil, fentanyl, sufentanil
Selective serotonin reuptake inhibitors: fluvoxamine, sertraline
Xanthine: theophylline

cootiegirl
 

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