I am currently on Cipro for Bart and I am trying really hard to know the difference between a tendon and a muscle, I have pain from the back of my scull to my shoulders, into the joints of my arms, also pain in my biceps,forearms,bottom of fingers, calves,insides of ankles, bottom of feet into toes, outside of palms of my hands, back of my thighs, front of my thighs right above my knee.
Anyone out there with any knowledge, even under my arms into my breast hurt.
Posted by Maradona (Member # 24552) on :
It is working killing bacteria. Usually quinolone side effects atack achili tendon on the foot heel second one is your shoulder ligaments.And the pain is along this ligament attaches the corresponding bones is worst with mowement. Take Mg and vitamin C to prevent this side effect.
Posted by sixgoofykids (Member # 11141) on :
Sounds like a bart herx. Seriously, it was the worst pain I had in all of Lyme treatment. Epsom salt baths help tons. Hang in there, after six weeks I felt lots better. I used Levaquin, and it was a breakthrough treatment for me.
Posted by kadee (Member # 21199) on :
I can only say, it would be advisable to stop immediately taking Cipro. Having been floxed myself by Levofloxacin, I tried too long to believe in Bart symptoms until I finally stopped - much too late. The damage was done.
As to this:
quote: Take Mg and vitamin C to prevent this side effect.
In my opinion it is an illusion to rely on it, that it helps against getting floxed. Even if Dr. B. says so.
[ 12-09-2010, 01:28 PM: Message edited by: kadee ]
Posted by Dawn in VA (Member # 9693) on :
Yes, I agree with up-ing your Mg levels. "Too bowel tolerance" then back down to find the right dosage that is enough but not too much for you. I was on crutches after my first levaquin try, but then an LLMD gave me great advice about increasing one's Mg dose 2 weeks b/f quin. Tx and throughout and it has worked pretty well for me since. (Make sure to take it at least 3 hours away from your ABX.)
Posted by Heaavenlyholler1 (Member # 28700) on :
Stop taking cipro... I took it years ago and a muscle in my calf broke. I was in a cast for eight weeks and could not walk for almost a year. My doc said it was from the cipro. I will never take it again. This is just my experianse but it has happend to others.
Posted by lipanz (Member # 13788) on :
Hi, Yrs. ago the derm told me cipro was harmless- Well I was on doxy and cipro for a month and seemed like doing nothing- then night before I slept well exceptionaly well & and got up next morning felt good-walked down steps good no stiffness. Later was in line in dept store all of sudden a flash of numbness in leg & everything came back-stiffness getting in car-later just sitting on bed all of a sudden like someone took a pointed bread knife and ripped across my buttock. I couldn't stand -it was horrible-my back- herniated disc. horrible- finally I had surgery.I have lyme vasculitis. Had a nerve test-showed axonal neuropathy mostly. Ortho dr. had in record: I will not do surgery on this woman until all treatment options are fully resolved for the lyme d. Finally he did the surgery. As it got worse & worse neurogenic claudification too. Could this have been from the cipro? I don't think so.
Posted by lipanz (Member # 13788) on :
I forgot when I got that sharp like a pointed bread knife ripped across buttock -then later big purple bruise vascular rash. Which a lot of my re occuring rashes are more European. On the Eucalb euro site. I have esp. one exactly plus I have acro dermatitis chronica atrophicans. In remission now but loads of damage. ACA etc. is not only in Europe and BB also causes it not just borrelia avzeli. As the so called "conservative side is now saying it is not in the US" Oh it sure is.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by lipanz:
Could this have been from the cipro? I don't think so.
What do you think caused it then??
Posted by lipanz (Member # 13788) on :
I did think a few yrs after maybe from the cipro- as I read some things about cipro and tendon damage etc. But possibly other thought would be as I do have lyme vasculitis which is inflamation of the blood vessels from the infection. Also it is known that the borrelia likes to nestle and hide out in the lining of blood vessels. A physcian asst. said could have been a reaction of possible bacteria being killed in blood vessel ? hmmmm. Crazy part is the night before I slept like a baby and got up in morning felt like everything was gone after a month of cipr and doxy Then later in afternoon- just sitting on the bed whamo. When I get flare up mostly now it is like thighs I get purple bruise circles (not bruised) then slowly in time clears with central clearing with pink irregular ring. Recently showed one to dr. and he said that really is inflamed and the tissue is sore when you press on it. I can't say definetely not from cipro (the horrible buttock incident) but I have had cipro off and on previously and nothing like that. In 2004 got UNEXPLAINED fractures (this was I believe yr or yr 1/2 after the first horrible incident -I was NOT on cipro at this time - the most horrible horrible pain after with spasms esp in morning-spasms back of legs - they just came on their own-got like electrical jabs in certain areas- Previous to this got like bursitis symptoms with purple and pink rashes in groins. then came the horrible fractures -I do not have osteoporosis. One of the fracture areas was sacroiliac, another area, then later 2 rib fractures?? I could not stand on my own after-had to have home care & the pain was horrendous. Dr's nurse then said do you know any lyme drs. We don't know if the lyme caused that or if that stirred up the lyme... Took a long time to heal. It wasn't the normal fracture situation. It is a known fact that borrelia gets into bone marrow also ..It was in the Journal of Spirochetal & tick borne diseases. It was found by MDL labs Dr. Tilton who is the head of it- by PCR. Plus it also causes certain types of anemia. About the fractures well - on the latest edition of Under Our Skin DVD- there it is where they were standing at a cemetery etc. and then they showed photos of some death certificates one was Lyme D. alheimer's. Another Lyme Disease: FRACTURED RIBS - & had adrenal insufficiency. So I guess that answers that question about unexplained fractures with that situation of mine. I cannot be 100% sure about the first situation. But I never had a problem with cipro before. Practically all my symptoms are the odd ones more European? But yes I have read that Cipro can cause tendon etc. problems. MrsScampi: I hope you are better- Did you stop the Cipro.
Posted by tick battler (Member # 21113) on :
Perhaps a good test would be to switch to rifampin for bart and see if you have the same muscle pain. When my kids started rifampin, they said, "Everything hurts" for more than 2 weeks. I do think the muscle pain is part of a bart herx, but it is hard to know if there is a cipro side effect or not.
tickbattler
Posted by kadee (Member # 21199) on :
quote: But I never had a problem with cipro before
I read through a few boards of chinolone victims. The crash often happens all of a sudden, while before the were no problems with tolerance, even after several rounds of that class of ABX .
The adverse sideeffects can set in a long time after treatment.
Posted by lipanz (Member # 13788) on :
Thank you for your reply - but what do you think about the unexplained fractures - that was a about a yr and half after the other episode. I believe I was on off and on bicillin Im injections. You are from Germany- do you know of anyone in your area who has or had acrodermatitis chronica atrophicans.
Posted by kadee (Member # 21199) on :
quote: You are from Germany- do you know of anyone in your area who has or had acrodermatitis chronica atrophicans.
Yes, I had it 10 years ago. It disappeared after Cefotaxim.
As to the fractures: I did not read about this as a chinolone-sideeffect. I only know, that Bartonella can affect the tibia.
Posted by joysie (Member # 11063) on :
I had a similar situation last month. I have taken all the quinolones with no issue in past years. LD doubled cipro, and I did spend a few painful weeks convinced that my painful symptoms were a herx. Saw my LD who stopped the cipro imediately...pain is now stopping gradually. In retrospect I realize I should have known that my symptoms were somewhat different and I was just hoping it was die-off. Be careful Kris
Posted by nefferdun (Member # 20157) on :
I was on levaquin experiencing pain in my shoulder, right arm and back. The LLMD thought it was a herx and so did I because it was in my muscles.
Then a few days later I felt a stabbing pain in my shoulder and a snap like a rubber band breaking. That was the beginning of 8 months of agony.
The tendon damage can happen to your achillis, your rotator cuff and even you hands. One person on a forum had the tendons controlling her eye movement damaged leaving her with double vision. These drugs can also cause psychiatric problems.
I still believe Levaquin is worth taking a chance on as it was very effective against the bartonella but you should load up on Vitamin C and magnesium before and during treatment and quit when there is pain.
After Levaquin I could not tolerate any other drug for months so I had a complete relapse as herbs just won't hold it in check.