This is topic my only lyme symptom remaining-or is it not a lyme symptom? in forum Medical Questions at LymeNet Flash.


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Posted by yankees237 (Member # 25791) on :
 
1 year ago today i was bit by a tick and got

lyme. within 2 days i started doxy...have treated

by a LLMD and have been on

antibiotics since then. i have never really felt

worse then 90% but have not been able to get to

100% and im afraid to stop treatment before

reaching 100%. the few symptoms i did have were

pretty minor and have gone away (sound

sensitivity, some wrist pain)


the only symptom i have is this feeling i usually

get in the afternoon. it only lasts for an hour

or so then goes away. basically i just feel brain

foggy, a little disoriented and tired. im

starting to think this isnt a lyme symptom

because it hasnt gone away. how could somebody

who began such early treatment still have this

symptom a year later? i have followed every dr

burrascano guideline like it was my religion.

have not had a drop of alcohol. could this

persistent symptom be something else?
 
Posted by Deshi (Member # 30949) on :
 
co infections?
 
Posted by yankees237 (Member # 25791) on :
 
ive also been treated for co infections in the past

year. is it possible it could be from an over

stressed liver? adrenal fatigue? something other

then lyme? i just don't see how after a year or

treatment this one symptom lingers.
 
Posted by map1131 (Member # 2022) on :
 
IMO and experience that sx is lyme. Could be something else but I don't know if it would be good to stop tx and find out it is lyme and more.

I did 3 yrs+ of abx early on or maybe within 6 mths of sx. Other things including more tick bites set off a chain reaction which turned me chronic.

You don't sound like you hit bottom. Good for you. But I would be so afraid to stop them to early.

I've had sx that have lingered for 12 yrs. I would rather be safe than sorry. There are many options that might keep immune system fighting like herbs, supps etc. I switched to alternative tx years ago.

Lyme is slow multiplier? But wonder if suddenly you got the flu or something that overloaded your immune system?

Only you can make that decision. You might want to do search on this site using "relapse" and read some threads from those that quit and won or quit and lost.

Pam
 
Posted by little_olive (Member # 28063) on :
 
I personally find it hard to believe that's just Lyme disease.

You said:
quote:
"ive also been treated for co infections in the past year."
Treated for all of them or just the ones that turned up positive?
 
Posted by yankees237 (Member # 25791) on :
 
map1131...you caught it early and youve been on treatment for 12 years??

little olive .... i was treated for babesia and

bartonella which what my LLMD believed me to have.

with those treatments symptoms like dizziness and

sensitive hearing have disappeared (months

ago)... just this brain foggy feeling is the only

symptom remaining and i cant seem to shake it.
 
Posted by deerose (Member # 27484) on :
 
when my LLND treated adrenal fatigue I came out of that predictible afternoon slump.

And out of the crushing fatigue as well.

so it may be as other posters have said..persistent infection...but that does not mean it cannot also be
need for adrenal support...or more than you have had.
I have regular adrenal herbal support tinctures from LLND plus a supplement from the EDS practioner.

Within 36 hours of that herbal support I felt a big change.

it made all the differenc e in the fatigue.
I still need to keep gaining endurance...still fighting active infections but steadily improving.

From what some say,too, each bite can deliver a different load of infection so that might be part
of your answer too.

Just my two cents.
 
Posted by lululymemom (Member # 26405) on :
 
Sounds like a bart symptom to me.. Try taking RNA (ribonucleic acid) and see if you have any improvement. Take it 3 times a day with meals. Eleuthro(Siberian Ginseng) really helps with the fatigue.
 
Posted by lpkayak (Member # 5230) on :
 
fogginess can be yeast
 
Posted by kd888 (Member # 29652) on :
 
Hi Yankees237,

I had many more symptoms than you but didn't get the brain fog thing until I had a relapse from going off abx too soon-- I was not seeing an LLMD at the time. Misguided PCP!

Anyway, after 7 months of treatment with an LLMD who I am still seeing (still on abx) all symptoms are nearly gone--

-- except (and as you describe)this late afternoon foggy feeling and tiredness.

I think (mine) is a Lyme symptom still hanging in there. I read somewhere (can't remember where) that this weird 'head' symptom/fatigue is often the last one to clear up and can take quite a while.

If your symptom has lessened over time-- foggy feeling lasting for only 20 minutes or so instead of for hours or a day, then that sounds like progress has been made.

When you get to the point where it's only lasting for a few minutes and then there are days that you don't have it at all, then that's even more progress. IMO....and my LLMD's.

I know this symptom is frustrating! And my LLMD says that I must go at least a month with NO symptoms before I can consider going of ABX.

I'm going to stick it out and continue abx until this symptom is gone too. Hopefully this will be soon!

It's such a downer to have a great, symptom free day and then feel this weird, relentless fatique and foggyness later on. Mine still lasts a few hours.

I'm seeing my LLMD today and will ask him more about this.
 
Posted by lymeinhell (Member # 4622) on :
 
I had this too - and it was caused by yeast, not Lyme. This was right around the time my LLMD weaned me off abx. I was a bit fearful we were stopping too early, but my LLMD was correct.

The yeast caused me to become reactive hypoglycemic - hence the tired drunk feeling that would hit right after lunch time. It also messed with ATP production - the fuel power source for your cells.

Once I aggressively treated yeast, added a high quality CoQ10, and started taking NADH (which blasts oxygen into your cells), I got over this hump. It took a couple months.

Lyme does more than introduce a foreign bacteria into our bodies, and sometimes the treatments themselves mess up other functions in our bodies. Without addressing these other disfunctions (yeast, parasites, mineral deficiencies, toxicity), you will never be 'symptom free', regardless of how long you stay on abx. The abx themselves contribute to the mess (but are a lifesaver).
 
Posted by map1131 (Member # 2022) on :
 
Yankee, I believe that I first got lyme fall/winter 98, sx that came and went like knees, fatigue, wrists problems, little stuff.

Summer '99 I was attacked by 12 bites I thought were chiggers. Covered with clear nail polish like my sister said. When I got lyme educated my LLMD said nope, those were deer ticks/nymphs that you blocked with nail polish.

Exactly 3 weeks later, the flu-like illness from he!! sent me to my knees. I knew day 1 that this was not the flu.

42 year old woman know what flu feels like. 10 days later I went to my PCP and told him I had food poisoning. He said nope, your sx say to me lyme disease. Abx were started immediately. I was already chronic.

I took abx from 7/99-5/03. I changed treatment in 03, if abx hadn't killed it by now? I went alternative.

Pam
 
Posted by yankees237 (Member # 25791) on :
 
lymeinhell and kd....your posts made me feel better......

lymeinhell please let me know what else your llmd

says about the brain fog feeling...and by the way -

that is a great way of describing it "drunk" -

thats exactly how i feel. ive actually gone weeks

without having it recently - but unfortunately i

got sick each time and then it resurfaced [Frown]
 
Posted by lymeinhell (Member # 4622) on :
 
Yankee, glad to give you a bright spot.

Brain fog has many causes. For me, it was a rule out and fix, little by little.

I was SOOO yeasty, that I literally would get drunk after eating. The candida would turn the food to alcohol.

And it messed with my blood sugar ( would drop to the 40's after eating), so #1 was fix yeast, and start taking cinnamon pills after each meal to help balance sugar.

I took diflucan, Oil of Oregano, and grapefruit see extract.

The drunk feeling started to go away after 2 mos or so, but I would still hit this really tired omg I have to sit down patch mid day. (Which was awfully inconvenient since I worked throughout this. )

And that's where NADH came in extremely useful. We reasoned that my cells were literally running out of energy before my day was physically over (was shown some good research on it but can't recall right now from where).

So added in CoQ10 from Allergy Research (big $$) and NADH (from Enada), and within a couple weeks, it didn't happen any more.

So if it's only happening sometimes, perhaps you could correlate to your dietary intake? Do you keep a food log? It might be extremely helpful to you to do so. Are you eating to your food type and condition? Meaning, low carb, high protein, sugar free?

If it were me, I would examine your diet and see if there is a pattern, and then address yeast. But that's just IMHO.
 
Posted by map1131 (Member # 2022) on :
 
yankee, I'm sorry I didn't have a feel good story for you. This is my experience therefore I'm not so sure it's all gone if there is still sx.

Yes, stopping abx and doing things like super detox, herbs, attacking yeast, grapefruit seed is all good ideas.

I'm saying don't loose site of sx, no matter how sutle they are. Drunk feeling reminds me of babs sx. Foggy head is lyme, IMO.

I only have brain fog, fatigue, knee pain, neck pain on my lyme cycle. Or if I let myself do too much life for a couple days.

I took rifampin in '10 to see if I could get rid of bart sx in GI. It did while I was on them for 3 mths and then came back within 2 weeks of stopping abx.

Lyme sx on Rifampin was daily battle. Lyme doesn't like me to treat bart with rifampin. Rifampin also is known to hit lyme forms.

Pam
 
Posted by arenele (Member # 29360) on :
 
yankees237, check for presence of chlamydia pn.

I would assume that you no longer have
Bb.
 


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