I believe that my symptoms are attributed to POTS (I have low blood pressure, so I take it Beta-Blockers are a bad plan?).
I'm about to speak with my LLMD about it.
What kind of medications and herbals did you take, and what was your experience?
I've already discovered the improvement from lying down, increased salt, exercise, no starchy foods...I read this morning increased liquid, and I'd noticed that previously - I guess I'm going to be increasing my liquid intake.
BTW, if you have POTS, do you notice you have an intolerance to adrenaline / stress? I have a physical reaction - feel very unwell, muscles contract spasm and, at worst, vomiting / diarrhea.
Best,
Posted by chootik (Member # 11221) on :
I have the same issue.
I take electrolytes and mineral drops from Trace Minerals. I also love salt and try to drink a lot of water. A little excercise helps too but can't do too much.
One of the docs gave me Beta Blockers but the Cardio said it would lower my pressure so can't take it.
I am thinking I may want to try Florinef, which is a volume enhancer but it has steroids so not sure if that would be good either.
Posted by canbravelyme (Member # 9785) on :
Wild Condor (I think?) said on another post that Florinef isn't a steroid like we think of it. There are a number of people on this board who take it.
Thanks for the link, Al; I'm working my way through the site.
Best,
Posted by chootik (Member # 11221) on :
Hi Can.
Really? That's the first time I hear that about Florinef? If that's the case I think I want to try it. Can't hurt right?
Chootik
Posted by canbravelyme (Member # 9785) on :
Oh who knows.
I'm sick of the drugs turning me into an accordion.
The reason I say I'm sick of it, is that FINALLY my body LIKES exercise. For the first seven years of disability, exercise made me more ill.
Now, exercise is GOOD for me I'm concerned about taking a med that might interfere with that.
That said, having the specter of a dizziness / cognitive deficits / vomiting / diarrhea session over my head is still putting a damper things, and the thought of symptom relief allowing me to go back to work; I'm so close...I don't know whether I need to just wait a few more months or try the damn drugs.
My sense at this point, is maybe to try a herbal approach to the POTS / Adrenal issue?
Posted by chootik (Member # 11221) on :
Can,
Thanks for the bump. I was about to search for posts about Florinef.
I'm actually really thin so maybe it won't be a bad thing for me he he!
It seems you're feeling a lot better, can you tell me what you did to get better?
If you can tolerate excercise that is a great sign. Do you not get tired? I get tired after only a little bit, actually my heart starts feeling uncomfortable so have to stop.
I think the Addrenal Support would be good for you. My addrenals are bad too and Adrenal Glandulars and Siberean Ginsing help. Also lots of Protein and eating often.
I honestly still feel so disabled. I think I will look into Florinef. I just want to be able to function again ):
Posted by canbravelyme (Member # 9785) on :
You know, chootik, I'm just learning about the POTS.
I wonder whether the seizures I've been diagnosed with are actually POTS. I spend a lot of time lying down, and minimize my activities, I do better... adrenal support; liver and kidney cleanse, I've been reading...getting close; lets hope I can get the whole thing (life)! Posted by chootik (Member # 11221) on :
I know Can, same here. I feel like I'm getting close to figuering this out I just hope it's soon (:
Someone else here mentioned that when they had blood pressure issues they were dehydrated and had Mag. deficiency. So that's something to consider. She said to test teh Mag. with a Red Blood Cell Mag Test from Labcore.
By the way does your blood pressure ever go up when you've been standing for a while?
Mine is normally low but if I'm on my feet for 30 minutes to 1 hour I feel that the pressure is going up, my heart beat stays the same but the top pressure number goes up. Someone said this could be from dehydration.
Posted by canbravelyme (Member # 9785) on :
I have a blood pressure monitor. I'll take it out and play with it. I'll get back to you when I can determine a trend Posted by chootik (Member # 11221) on :
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