This is topic In remission and question about taking aspirin to prevent blood clots in forum Medical Questions at LymeNet Flash.


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Posted by sutherngrl (Member # 16270) on :
 
I have not been on here for a while and a lot has happened.

First of all I have been in remission for 3 months(been off antibiotics for that long)....Yeah!

I still feel fatigued easily, but no other symptoms have surfaced. I think I'm fatigued because I am doing more than I use to, and it takes a long time to recover from LD. I still have stiffness in my hands, knees and feet; but the pain is gone. I will feel better if I go six months without a relapse. But I am hopeful since I have made it 3 months.

Second of all, I had a blood clot(DVT) a year ago. I have been on coumadin during this time, but will probably get off of it in February. I have a possible constricted vein, called "May Thurner Syndrome"; but I think my doctor thinks its a mild constriction. I think LD and hormones also played a part in causing the clot.

If I continue to have issues with my leg, I may have to get a stint put in to open up the constricted vein. Fortunately I haven't had much problems with it. Sometimes it feels slightly swollen, but thats it.

So anyway, my question is do you think aspirin will help prevent future blood clots? There is a new study done in Italy that says aspirin reduces the risk. As you can guess, I have mixed feelings about getting off coumadin. I'm sick of having to get my blood checked every month and worrying about a bleeding issue. Any ideas would be appreciated.

I do know about the enzymes you can take, but even those make me nervous. So what do you guys think?

Thanks!

SG
 
Posted by Keebler (Member # 12673) on :
 
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Is there a naturopathic doctor in your area? I think they would know best. There are many other ways to approach this.

Even though you are in a good remission, it may be best to find a LL ND if possible just so they have a broader base of understanding where you've been and how to support remission.


http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13964

How to find an ILADS-educated LL:

N.D. (Naturopathic Doctor);

L.Ac. (Acupuncturist);

D.Ay. (Doctor of Ayurvedic Medicine);

D.O.M. (Doctor of Oriental Medicine);

Integrative / Holistic M.D., etc. (Be aware that those in this category can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first.)

Links to many articles and books by holistic-minded LL doctors of various degrees . . .

BASIC HERBAL EDUCATIONAL & SAFETY links . . .
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Posted by Keebler (Member # 12673) on :
 
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With aspirin, be sure to protect the lining of your stomach.
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Posted by Tammy N. (Member # 26835) on :
 
My initial thoughts went to enzymes and fish oil. I would try Boluoke and high doses of fish oil.

Congrats on being in remission! That's great! Keep going!

Best to you.
 
Posted by Keebler (Member # 12673) on :
 
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To give you a sense of how a ND migh approach this:

http://www.itmonline.org/results.htm?cx=002245100010442291864%3Av3bhxoxu6ee&q=blood+clots&cof=FORID%3A11

ITM (Institute of Traditional Medicine - a Chinese Medicine Research site).

Search results for: Blood clot - 29 articles.

You may be a better search term for the diagnosis. If so, just plug it in.
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Posted by Cass A (Member # 11134) on :
 
I would recommend using Rechts Regulat and getting off the coumaden. This is what worked for me when I had extremely hypercoagulating blood. Much, much better than aspirin.

Also, you may well have the "Fry Bug" that constricts the blood vessels by laying down a biofilm like slug trails in them. This would pre-dispose you to apparently "needing" a stent.

Best,

Cass A
 
Posted by Carol in PA (Member # 5338) on :
 
If you had a deep vein thrombosis, you have hypercoagulation.
A prominent Lyme doctor found that 90% of his Lyme patients had hypercoagulation.

A chronic infection such as Lyme Disease can cause continuous generation of low levels of thrombin, which increases blood viscosity (thickness) and fibrin, resulting in hypercoagulation.


You can counteract this by taking systemic enzymes, such as Boluoke, Wobenzym, or Rechts Regulat.


You can read up about hypercoagulation and google for how systemic enzymes affect it.
Most of the articles I found were about physicians in Europe, where it has been used for years.

I've been taking Wobenzym to reduce hypercoagulation.
When I first tried it, I was delighted to find that it reduced my awful headaches.

It was so nice not to wake up every day with a splitting headache.


Systemic enzymes reduce inflammation and reduce fibrin in the blood, making it easier for oxygen and nutrients to pass through the cell membranes to fuel the mitochondria in the cells.
When the mitochondria get the stuff they need to make energy, the cells can work better, and you feel better.

My symptoms of hypercoagulation included headache, muscle and joint pain, and fatigue.
Wobenzym has improved all this.
When I stop taking it, the symptoms return, ugh.


Fish oil can help hypercoagulation too, and it reduces inflammation as well.


In case you're not bored to tears by now, here's an article about systemic enzymes.
http://www.newswithviews.com/Howenstine/james174.htm
 
Posted by sutherngrl (Member # 16270) on :
 
My concern with the enzymes is that they would thin my blood too much; and would I need to continue getting my PT INR checked every month.

Wonder if fish oil, and aspirin would do the trick? I also read that vitamin E thins your blood. Any my gyno, says that vitamin E helps prevent the cyst that some people get in their breast.

Does everyone on these enzymes go to a naturopathic doctor?
 
Posted by seekhelp (Member # 15067) on :
 
Wow, I've been wondering where on Earth you disappeared to! Congrats. It looks like me and a few others remain the lone horses who never see remission. lol. It's good to hear some people make it to the light in the tunnel.
 
Posted by sutherngrl (Member # 16270) on :
 
You hang in there Seekhelp. I too thought I would never get here, and of course 3 months isn't long enough for me to feel sure that its really over.

My main concern however at this point, is to prevent any further blood clots.

Oh yes everyone, I forgot to mention that I was on estrogen when I had my DVT. That and the contricted vein, along with LD, may have all contributed.
 
Posted by CherylSue (Member # 13077) on :
 
So good to hear you are in remission. Wishing you success in keeping away the blood clots, too.

I would take some maintenance herbs if I were you. You can purchase cryptolepsis online for babs and possibly bart. You still have mild symptoms, so some may still be there.

Thank you for sharing your remission. It gives us all hope.
 


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