Just wondering if you do just Rocephin IV, or whether people are also adding Azithromycin/Doxycycline for the intracellular?
Posted by Annelet (Member # 13503) on :
I guess I mean at the same time as the IV Rocephin.
Posted by lax mom (Member # 38743) on :
When my husband was on IV Rocephin, he also took oral Zithromax and Bactrim DS.
Posted by gmb (Member # 23562) on :
Annelet,
I started IV Rocephin in Dec 2011 after a three week break from ABX due to elevated Liver enzymes.
After a week on IV I added Zith back in, then a few weeks later Rifampin for six weeks then switch that to Mepron.
Then another two months added Bactrim DS, and after a few months double dosed Mepron.
Finally in October we pulsed TindaMax two days a week, and will continue it with the IV Doxy.
I've felt good improvements since the holidays and now switched IV Rocephin with IV Doxy to change things up and challenge a herx.
So go slow when adding one at a time to better gauge reactions to the meds or symptom flares vs herx.
good luck
gmb
[ 01-23-2013, 08:03 AM: Message edited by: gmb ]
Posted by TF (Member # 14183) on :
Good lyme doctors add at least a cyst buster to the IV rocephin. Those patients who don't do this end up being sorry. I know a few. They find that they didn't make much progress on the IV. They find this out when they stop the IV and go back to the same level of sickness they had prior to IV.
So, we are talking about flagyl (metronidazole) or tindamax (tinidazole).
It doesn't have to be added right away, but it has to be added eventually. Otherwise, the lyme just goes into the cyst form and waits for you to stop the rocephin (ceftriaxone, in Burrascano Guidelines) as I understand it.
See page 12 of Burrascano.
Posted by Annelet (Member # 13503) on :
Thanks everyone.... that is what I thought... that you have to address all 3 forms, even with IV. A friend of mine is being told by a very well respected LLMD that IV alone is OK, at least to start with.
Posted by rosiegeorge (Member # 27518) on :
It also depends on their symptoms & whether or not they are co-infected.