I was wondering if most lymies have heart involvement? I have innapropriate sinus tachycardia.. Does anyone else have this? Mine is controlled well with beta blocker sotalol.. But I have Bradycardia now from the meds.. Bpm at rest 42 sometimes 39 cardiologists says its better than 160s..
: Posted by Keebler (Member # 12673) on :
- Welcome. I see you are new here and sorry for why you are here, still hope you find the information you need.
For those with lyme, heart issues can vary. Be sure you have a good LL doctor. I see that you have just posted in "seeking doctor" and hope you find one well suited for you.
In addition to proper diagnostics by an ILADS educated LL doctor, there are many things we can do to help ourselves along the way.
MAGNESIUM is number one - and helps tremendously to stabilize heart rhythm when from toxic overload as is so often the case with lyme. LIVER SUPPORT, too. -
Posted by Keebler (Member # 12673) on :
EXERCISE INTOLERANCE is (partially) explained in the article: "when exercise doesn't work out" (and what we can do about that)
ADRENAL, CARDIAC, MITOCHONDRIA & MYELIN SUPPORT - that all helps movement better work for us
Styles discussed: Pilates; Qi Gong; Tai Chi; Yoga; water; strolling; etc. -
Posted by Keebler (Member # 12673) on :
- I know you use the term "lymie" endearingly (as many do). Still, you might want to be aware that there are various thoughts & considerations about that nickname.
Please do not call me “Lymie” -
Posted by lyme in Putnam (Member # 11561) on :
I had Svt, TV and sinus rhythm, then went on toprol. Been ok heart wise since.
Posted by Keebler (Member # 12673) on :
- Among the things you can do before your LL doctor appointment, you might want to be sure all your foods are free of "excitotoxins" or even things that might be too excitatory in nature.
Excitotoxins; MSG; Aspartame; & "Natural" Flavors (that are not likely natural at all) -
Posted by Sticksandstones33 (Member # 43016) on :
I take potassium chloride, mag, vit c 2000 mg, Coq 10, systemic enzymes, probiotics as well as a multi and others.. Allergen free brands.. I am on a strict gluten free dairy free diet.
Currently putting sugars back in check went on a 2 month weightlifing program and added sugar. I get myself into the gym at least 4 days a week.
. The gym had made a vast improvement in all my symptons especially the heart! I go even if I feel bad after I am done at the gym it makes my symptoms better..
What else helps pass the flair ups or herx reaction mine come and go but my vertigo, dizzyness and heart symptoms stay along with GI symptoms..
Posted by Sticksandstones33 (Member # 43016) on :
quote:Originally posted by Sticksandstones33: I was wondering if most lyme advocates have heart involvement? I have innapropriate sinus tachycardia.. Does anyone else have this? Mine is controlled well with beta blocker sotalol.. But I have Bradycardia now from the meds.. Bpm at rest 42 sometimes 39 cardiologists says its better than 160s..
:
Posted by MADDOG (Member # 18) on :
I like the term Lymie ,I use it all the time,have for over 20 years.
MADDOG
Posted by Keebler (Member # 12673) on :
- If some find it demeaning - or that it sends the wrong message to the public (or even to their families who may think this is all a game, anyway), though, it's important to realize that it can diminish respect. -
Posted by faithful777 (Member # 22872) on :
I have bradycardia and my husband has ventricular tachycardia.
He had to have a pacemaker/defibrillator put in as VT causes sudden death.
Posted by map1131 (Member # 2022) on :
Lyme makes the blood thick thick thick. It's common to have hyper-coagulated blood with this illness.
Yes, I did heparin, blood thinner for over a year. Never bothered spending money again to see if it was still thick. Assumed it was because I'm still fighting the "beast" Lyme & company.
Little did I know sometime years ago, during the 14 + yr experience with this illness.. my right coronary artery was blocking itself off completely. The big miracle is my body/heart was smart enough to build me a little by-pass where the 100% blockage was.
No wonder I felt like death during those years. That's why I'm encouraging others on this site and at my Lyme support group. Don't neglect your heart because you think you're too young to have heart illness.
A heart doctor should be part of your treatment protocol. Or at least let your PCP order heart test. Don't be heart victim because you didn't think it would happen to you.
Heart Disease increases with a super bacteria in your body. Lyme, bartonella, babesia, strep, staph, any of the super bacteria(s) of todays world.
Pam
Posted by Carmen (Member # 42391) on :
Serrapeptase and and nattokinase will help to keep the blood thin along with vitamin K2. Structured water helps with hydration and to keep the red blood cells from stacking.
Colloidal silver will break down candida biofilms in the blood, but you have to use a very high ppm product.
A paleo diet may be a big help for some people.
Posted by Summer3 (Member # 35286) on :
I have SVT, PVC's, PAC's, atrial runs, possible A-Fib, sinus tach and sinus arrhythmia. Taking Toprol. I also have autonomic dysfunction which makes my BP drop to the point that I pass out continuously.
Posted by Sticksandstones33 (Member # 43016) on :
Well that is the next thing I will talk to the cardiologist about is thickening of the blood! I think this may be why my stamina has taken a nose dive at the gym.. Fells like my hearts working harder to do the same amount of work I used to with very little issues..
It could just be the lyme altogether! Been feeling a little faint like I am going to hit the floor while doing weights.. But the heart rate is good so maybe it's the blood..
Who knows? We will see..
Posted by Keebler (Member # 12673) on :
- FIRST: talk to your LLMD. If you need to see a specialist, they will know the best one in your area. You may not need to see a specialist, though.
LLMD are very much aware of cardiac considerations and treatment and support will often help many issues drift away. Again, though, see your LLMD FIRST and they will be better able to determine what you need from there.
The symptoms you describe are all very much lyme / TBD symptoms. I had them all. I got all scared and went to see all kinds of different doctors who were just dazed and confused and then told me I must be faking it. They did not know enough to help me because they knew nothing about lyme / TBD.
Don't waste your time starting with anyone other than an ILADS educated LLMD &/or LL ND. Start there. -
Posted by Keebler (Member # 12673) on :
- you say: "Been feeling a little faint like I am going to hit the floor while doing weights" (end quote)
Then don't do weights like that. If whatever you are doing is causing you to feel faint, don't do it. Your body is sending signals that should not be ignored.
Get connected with a LLMD.
In the meantime while you wait, gentle movement would be safest. Just walk, stroll, Qi Gong, Light Pilates, etc.
In the Cardiac Thread are suggestions for safe exercise but even that is usually for once someone is on a treatment plan. As I recall, you are not yet diagnosed / treating (?) -
Posted by Sticksandstones33 (Member # 43016) on :
Diagnosed not treating yet.. 2 weeks ago diagnosed.. Waiting for CO infection testing to treat.. Treating my self for the time being naturaly.. LLMD funds are not there! I live in Washington state have not found any that take insurance..
Researching.. Would I be wrong if saying treatment without knowing the co infections is somewhat pointless? Or just taking whatever abx I can get pointless?
I think Dr. B says raising core body temps kills. I will find a LLMD as soon as I can.. In the meantime I will treat my body like a temple.
I already have a clean diet.. No sugar, low fat, high protein, very little carb, gluten, dairy, and soy free, lots of green veggies, healthy fats only, oh and been doing my homework on food toxins natural flavoring etc..
All with the help of you fine people I appreciate ever piece of advice you guys are giving me..
Posted by Summer3 (Member # 35286) on :
Just be careful sticksandstones. In the meantime you may want to consult with a cardiologist. Feeling like you are going to pass out can quickly progress to actually passing out.
I thought I had control of mine, and then started to pass out without warning and fall to the ground. I am very hesitant to suggest mainstream doctors because they are not helpful for MOST Lyme symptoms, but the heart and BP meds actually have been helpful for me.
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