I have recently started having burning pain in my feet. Was wondering if anyone can give me any ideas that can help this?
I am to EMF sensitive to do research, so would appreciate your advice.
Please help this is painful!
Posted by Lymetoo (Member # 743) on :
Are you taking B vitamins, by any chance?
B12 injections?
Posted by linky123 (Member # 19974) on :
I am taking sublingual drops. Don't know of anyone locally that gives B12 shots.
Do you have neuropathy?
Posted by Lymetoo (Member # 743) on :
No neuropathy anymore.
B6 can become toxic and CAUSE neuropathy .. so beware.
I give the B12 shots to myself.
Posted by linky123 (Member # 19974) on :
How would I get B12 shots to give myself?
Is that what cured your neuropathy? If so, how long did it take you to get well?
Posted by Lymetoo (Member # 743) on :
I'm not sure why my neuropathy went away. I think it was from eating high histamine foods and foods high in salicylates.
Would your GP prescribe?
editing to clarify ..
I think the high histamine foods and the foods high in salicylates may have CONTRIBUTED to my neuropathy pain.
[ 11-05-2015, 12:22 PM: Message edited by: Lymetoo ]
Posted by dogmom2 (Member # 23822) on :
I've had neuropathy in my feet for years resulting in a deep burning/sometimes itchy feeling. I over-react to most supplements so can't comment on those.
what seems to aggravate mine the most is heat. Too warm of bath or even shower can increase the symptoms, and hot tubs are completely out for me. I even arrange my blankets so my feet aren't covered or the symptoms start.
For some reason lotioning them before I go to bed also helps, if I don't the symptoms will wake me up. Not sure why it helps, but it does.
Posted by Lymetoo (Member # 743) on :
Hmmm... Maybe my ReMag and other magnesium also helped me.
Posted by TF (Member # 14183) on :
My doctor gave me alpha lipoic acid for neuropathy. It worked. My case was mild.
There are lots of links on the Internet saying that it works for neuropathy, or diabetic neuropathy.
Sorry, I don't remember the dosage.
Posted by TF (Member # 14183) on :
My doc also had me take sublingual Vitamin B according to the directions on the bottle. It worked wonderfully.
Be sure you don't chew the pill. Let it dissolve under the tongue.
Posted by nursejed1 (Member # 25155) on :
I have severe neuropathy started around 1991 and has progressed from toes up my legs. It feels like frostbite and I am on pain meds which I hate. The only reason Im telling you this is I wish I had treated the co infections early on since I wonder if bartonella has caused this or made it so bad. Dr H has an example of a patient in his book that his neuropathy went away after treatment with the right antibiotics. I cant tolerate any treatment now so my advice would be treat the cause quickly which is probably infection if you are a lyme patient.Nothing has helped me except a little relief with a topical cream with many medications in it and the narcotics.Im not giving up though I will find a way to treat my infections somehow.
Posted by Marnie (Member # 773) on :
Look into high dose lipoic acid, benfiotamine, acetyl l carnitine, evening primrose oil, as well as the B vitamins (esp. methyl or adenosyl cobalamin forms of B12 and B6, bearing in mind Lymetoo's caution) magnesium. Another idea is to try highish dose serrapeptase alongside the above, if you don't have gastritis.
I had to stop high dose serrapeptase, but am taking the others. Too early to pronunce judgement, but there is plenty of info online about all of them for neuropathy. Mine got a lot worse this spring, with severe burnng in the feet and has died down some.
Posted by Lymetoo (Member # 743) on :
I found this on a Gut Health board regarding B6:
-
"WARNING about Vitamin B6 Toxicity .... I got Vitamin B6 toxicity from H Pylori. Talk about a limited diet! I had to go on the HP restrictive diet, and the Candida restrictive diet, AND of those choices, they had to be low in vitamin B6!
One word for all of my fellow HP sufferers ... DO NOT consume any synthetic B6 while fighting ANY bad bacterial infection. They need the B6 to colonize. It somehow gets stored up in our muscle, including smooth muscles like the heart, stomach and bladder. It's a ***** to get rid of.
It's not the natural form of B6 found in food that causes the toxicity, but once you're toxic, the natural form exacerbates symptoms, which include severe peripheral neuropathy, tingling in extremities, parathesia almost anywhere, brain fog, frequent urination, headaches, mood changes, memory problems and more gut issues like "non-specific" gerd and gastritis, and heart arrhythmias.
Synthetic B6 is found in B Complex supplements, energy drinks, vitamin waters, protein shakes and bars, smoothie mixes, fortified and enriched foods, such as GRAINS (breads, pastas, cereals, oatmeal, crackers, potato chips, etc).
Here's the tricky part ... Producers aren't required to list B6 content on their label if they don't add it in themselves. But if they use a whole wheat flour, say, that's already enriched with synthetic B6, they don't have to list it.
I'm not saying avoid B6. Having a deficiency has almost the same symptoms. Just avoid the obvious synthetic forms, like supplements, energy drinks, etc. especially Red Bulls!
Producers need to put toxicity warnings on their labels. I LIVED on protein shakes and bars, vitamin waters and the like when I had HP. It's all I could eat. But the price I paid was horrible. And worse, some of that nerve damage can be permanent. Be careful. Avoid ALL synthetic vitamins, in fact -and get your vitamins from food."
Posted by cottonbrain (Member # 13769) on :
My LLMD recommended a product called Unflame for my burning hands and feet.
It really helps my hands, even at a very low dose, and it gives me a little energy boost too.
I am extremely sensitive and have not been able to use it at full dose. The tiny dose I take has not helped the burning in my feet, but it has reduced the level 10 pain in my fingers to a level 1-2.
do be aware of side effects such as insomnia, headache, frequent urination.
Maybe try taking a (normal) loading dose to get rid of pain -- it works fast! -- and then reduce after a couple days if you are sensitive. Also, one of its ingredients, bottlebrush/horsetail contains nicotine, i believe.
Ground ginger (unsulfited): I alternate this with the Unflame. It really helps. Be aware that ginger root can stimulate the immune system, so if you feel herxy, cut back on your dose.
[ 11-17-2015, 04:41 PM: Message edited by: cottonbrain ]
Posted by cottonbrain (Member # 13769) on :
also -- I have seen some tent-like frames you can buy to put under your blanket so that the blanket doesn't touch your feet while you sleep.
Posted by cottonbrain (Member # 13769) on :
Lymetoo, that is very interesting about the B6. I take the form called P-5-P and developed neuropathies after about 3 years of supplementing....hmmm...
linky, many of the antibiotics/meds we take can induce neuropathies. Mine began while i was taking frequent doses of diflucan. I was taking other meds at the same time, but i think it was the diflucan that triggered it.
Posted by Lymetoo (Member # 743) on :