I went to a new LLMD who is treating me aggressively. I want to hear peoples thoughts if it is maybe to aggressive or its still good etc.
Rocephin IV
Rifampin 300mg 2 times a day Minocyclne 100mg 2 times a day Zythromician 500mg 2 times a day.
He feels I also have bartonalla and babisia
Posted by Lymetoo (Member # 743) on :
I would DEFINITELY ramp up slowly with the Rifampin. It can knock you down and out. Mino can also cause dizziness.
I see nothing there for babesia, so I guess he will treat that later?
Posted by dbpei (Member # 33574) on :
Wow, you are on a lot! Usually my LLMDs have started me on new ABX one at a time so we can figure out how my body is responding to each one. How are you doing on all of these?
Posted by Keebler (Member # 12673) on :
- Be absolutely certain probiotics are on board as well as:
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.
HEARING PROTECTION is also vital - be sure to read through the Tinnitus thread in that set above.
There are things you MUST do to protect your ears.
Posted by Keebler (Member # 12673) on :
- Backing up, aggressive treatment is needed at times, still always start low and slow - with one thing at a time for a couple days to help your body ease into it (it still won't be easy).
To start out at top dose can cause a lot of stress for your body. -
Posted by doshey (Member # 46853) on :
Thanks everyone for the advice. Lyme too- doesn't zythromicin help fight babysit?
Keebler, I am on probiotics and other detox things like glutathione. What should I do for my ears? I never heard that before.
Posted by Keebler (Member # 12673) on :
- More nutritive liver support that will feed the liver / kidneys. Glutathione is good, of course.
But on-going, several times a day: It may be less expensive to help the liver make glutathione with Milk Thistle, etc. The liver support link above has more detail.
Be sure to read through this for other ways to protect ears, too, in action. Ear plugs, muffs, etc.:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posted by Lymetoo (Member # 743) on :
Doshey .. Zith combined with artemisinin will fight babesia.
Posted by WPinVA (Member # 33581) on :
Or Zith combined with Mepron for babesia. But maybe he is going to add something else later... like you said, you're on a lot and sometimes you can't attack it all at the same time.
I guess the biggest question I would have is why the Rocephin and the mino at the same time? I believe they both go after the Lyme.
The Rifampin is for bart and the zith could be the beginning of your babs tx.
Posted by doshey (Member # 46853) on :
WPinVA- That is a good question about the Rocephin and Mino. I will have to ask my doctor.
Posted by doshey (Member # 46853) on :
Hi everyone,
My husband is very nervous that I am on 4 different antibiotics. Can people please post about how many antibiotics they were on at once?
Were you on 2 or 3? What's your opinion on being 4 is it normal? Please help me calm him down.
Thanks
Posted by dbpei (Member # 33574) on :
The most I was ever on is 3. 4 seems like a lot to me. Sorry, that is not the answer you were hoping for. Maybe some others will chime in here.
Here is some good info on the various combinations. Also, you could take part in the Webinar that this doctor opens to the public on Wed. nights and ask him his thoughts on the antibiotics you are taking.
I think it's a lot, doshey. Honestly, I couldn't have handled four antibiotics at the same time.
I never took more than three at a time. And I was barely able to handle that.
That doesn't mean you won't be able to handle it. Everyone is different. But it is a lot. And, frankly, I'd never start with 4. Like Keebler said, starting low and slow is important.
IV Rocephin is tough. Combined with the other three, I think it's too much.
Not a doctor here, just a patient who's gone through a lot in the past six years ...
Posted by doshey (Member # 46853) on :
Hi Nula and Keebler,
I was started slow. I was originally on 2 antibiotics then a 3 and now I just got yesterday my pic line and started Rocephin.
Right now I'm handling it all. My husband just thinks its way to much and not good for the body.
Posted by sutherngrl (Member # 16270) on :
I was on 2 at one time. Also took Diflucan with those, I think that was for gut protection. I took Zith and Flagyl together.
Can't remember what I took after that, I think Malarone for Babs was next. Also took a few others over a couple of years. It was so hard on me, but everyone is different.
After that I went to just Doxy, for 2 and 1/2 years. That's what seemed to work for me; but then again I'm sure the first 2 years of meds played a huge role.
I couldn't have handled 4 at one time and I have to agree with your husband, that's a lot for a body to process. It's just my opinion, but I think people can get well on an easier regimen.
I don't see how an already sick body can handle all that at once.
Posted by gz (Member # 43818) on :
I think it depends on whether or not the treatment is appropriate and the individual circumstance.
When I first started out I could barely handle the first abx and had difficulty with each addition to the regimen. I strongly believe detoxing is of the first utmost importance.
I'm currently on 4 abx plus Plaquenil, stopping every couple weeks to pulse Coartem. Periodically I treat with parasite meds too. For the most part I have been slowly improving in fits and starts.
Everyone is different with what needs treated and the kind of treatment that can be used. I know others who are also on combos of abx+antimalarials. I don't think 4 meds is all that unusual.
Posted by doshey (Member # 46853) on :
Gz, Thank you for the reply. How long have you had Lyme for? I am detoxing as much as I can. Do you feel the 4 antibiotics at once did any damage to your body?
Posted by gz (Member # 43818) on :
At least 10 years or more, but probably decades considering childhood/lifelong exposure and symptoms. I got new sets of symptoms after a bite 6 years ago and the cookies really hit the fan after that.
I don't notice any outright damage from the abx. I suspect they may have helped me become low in B-12 which can lead to its own set of issues, but that could have been a longstanding issue before for all I know. We get most of our B-12 made by gut bacteria, so it makes sense that abx would cause us to become deficient in it.
I eat a very careful diet and take probiotics and some other supplements to protect my gut and prevent yeast.
I have histamine intolerance, but that was an ongoing issue long before I ever began treating for lyme. That actually seems to be improving for me, so I can't say the abx make it worse, they may even be making it better.
My first 2-3 months of treatment were impossibly rough. My detoxing included lemon water, chlorella, dry brushing, rebounding, daily epsom salt baths, and probably some other stuff I'm forgetting. At the same time I started treating for parasites I began doing coffee enemas and I turned a huge corner in my recovery.
Lyme and coinfections heavily burdens us with toxins, sometimes for years on end, which makes us very sick. Being sick we cannot clear the growing amount of toxins so we get sicker and sicker. It's a cycle that feeds itself until we interrupt it and find a way to get stuff to start clearing out.
Often we begin treating with abx when we are at our sickest and most burdened with toxins. Adding more on top will just make things worse. For me the coffee enemas were what got the toxins moving out faster than they could accumulate. I did them twice a day for probably 6 months, now just once or twice a week.
In the back of my mind I do worry a little there could be lasting negative consequences from the meds. But considering how sick I was from lyme, the consequences from not treating would have been most certain and severely devastating. The meds are just one of many tools I have found helpful in this journey to get my health and life back.
Posted by doshey (Member # 46853) on :
Gz, thank you. Are you still on antibiotics and if not, when did you finish them. Do you know anyone who had issues after taking 4 antibiotics?
I really appreciate your help. Also is your LLMD IN NYC? If yes can u pm his name? I'm curious if its the same one that I'm going to.
Posted by gz (Member # 43818) on :
I am still actively treating with abx, antimalarials, supplements, and other things. My llmd is not in NYC.
I forgot that I probably did have a negative experience from an antibiotic, I think I was floxed a little bit from taking cipro. It affected my Achilles tendons, no rupture but feeling twingey and tight. It could have been much worse. It's improved enough that I don't think about it much anymore, and I'm back to doing what I was doing before the cipro, albeit very carefully and conscious of how those tendons are feeling.
The people I know personally on multiple abx are either on them and improving with treatment, or on and off abx (for reasons not related to the tx or abx). Most folks who pass through lymenet who got better on abx probably don't come back to post about it.