This is topic Is there anything to be done about horrible neck pain? in forum Medical Questions at LymeNet Flash.


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Posted by Jordana (Member # 45305) on :
 
This is really bad -- back of my neck, my shoulders, all the way up to the occiput, the jaw, the sides of my neck. Just holding my head up is dreadful. Sometimes it feels like someone has their hands around my neck and I'm getting strangled or somebody tried to tear my head off recently.


This has been going on for about a week now and I don't understand it. I haven't had neck pain in a year, now it's back?

Is it Lyme or Babesia?

I took a long epsom bath today which didn't help the pain but I felt better. Anybody have any tips for this?
 
Posted by project (Member # 46200) on :
 
A month of liposomal Artemisinin completely healed my neck after 20 years of flare ups and pain. It was the fastest symptom relief so far in treatment.

So for me I think it was Babs. Neck has been fine ever since for over a year now. I can even do yoga headstand now which was previously verboten.
 
Posted by Jordana (Member # 45305) on :
 
!

I just started taking art eight days ago and that's when this started. Not liposomal though. Hm.
 
Posted by TF (Member # 14183) on :
 
So it is a babs flare due to adding in art.
 
Posted by Jordana (Member # 45305) on :
 
[Smile] . You guys should have seen how quick I ran over to amazon and bought liposomal art.

BABS! We caught you, get ready, you're on your way out.
 
Posted by MannaMe (Member # 33330) on :
 
Ha Ha! Your last comment made me laugh... sounds just like something my hubby would say!

He will talk to the bugs and not claim them as his.. For instance: people will say "my lyme" or "my diabetes" - no, its not mine, its "the lyme", etc.
 
Posted by Jordana (Member # 45305) on :
 
I feel the same way and I talk to them all the time. They do not have nice names [Smile] .
 
Posted by Lymetoo (Member # 743) on :
 
Try upping the magnesium.
 
Posted by project (Member # 46200) on :
 
I think this has re-inspired me to try liposomal Art again. I did originally use the Quicksilver brand off Amazon before and it was good.

I'm currently trying to beat down a protozoan that seems to be hiding in my bone marrow. I believe it's Protomyxzoa Rheumatica as I herx from Rife frequencies for it. Also herx in the same way from Alinia. It could be that there is some Babs left too. It is also known to hide in the bone marrow.

I have some regular Art and an ultrasonic cleaner. I've always wanted to try making a lipsomal mixture myself. So I'm currently in the process of trying to make a Klinghardt cocktail. For the first go at it I'm using:

400mg Artemisinin
1/2 tsp Mimosa Pudica
30 dr Cryptolepsis
2 scoops NT Factor

In a few cups of water currently blending in my Vitamix.

Gonna throw this foul looking mixture in my ultrasonic and see what alchemy results.
 
Posted by Robin123 (Member # 9197) on :
 
Don't know anything about the babs part... I once took Natural Magnesium and all my muscles went limp. Wondering if a magnesium product could work for you.
 
Posted by Jordana (Member # 45305) on :
 
I think I have a protozoan too. Zith and tindamax start to fire the pain up and move it around. I've had some relatively good days taking art this week.

Magnesium is great but it doesn't really touch the pain. This is deep in the muscles -- feels like die off of some kind. And in my neck sometimes it feels like all my vertebrae are bone on bone suddenly.
 
Posted by bluelyme (Member # 47170) on :
 
Nice project ...i was wondering how the alinia was going also started art .let us know how the mix is going ..do you use lecithin ?

as a segway ,another project idea i tried was essential oils followed by some dmso .i did it on my curve on c spine with pepermint rosemary and it burned like hell then some relief ...i tried with clove later on my ears bad idea ...but for jordana maybe benign like mag oil or arnica then dmso its friggin crazy...rocephin has helped the infalmmation some i may try boswelia or tumeric and dmso to see ?

blood test dark field from eko iniversity said mine was toxo but i think it is the proto1953 ..project and i are using spooky 3 plasma for it btw...i think the zith just pisses it off
 
Posted by Jordana (Member # 45305) on :
 
Does anyone have any good lit on how to use artemisinin? I have seen so many different pulsing schedules based on this idea that the intestinal tract makes something to counteract the art, but I have never seen a study that says that.

I've also read that art is neurotoxic, liver toxic, and suppresses the immune system.

Does liposomal art bypass this alleged intestinal problem?
 
Posted by project (Member # 46200) on :
 
blue - I used NT Factor instead of lethicin as I don't have any and Klinghardt's recipe calls for his brand phospholipid powder:

http://www.betterhealthguy.com/klinghardt-lyme-cocktail

I had originally been skeptical that the ultrasonic machine would create good liposomes but apparently they do:

http://www.racehorseherbal.com/Infections/LET/let.html

After making it the liquid does seem to be a true suspension, the powders that I put into it originally are nowhere to be seen. I did herx from it, so seems to be doing something.

It's true that DMSO is supposed to be super anti-inflammatory. I haven't tried using it on any muscle pain areas but it could very well help.
 
Posted by project (Member # 46200) on :
 
Jordana -

This paper has some info:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1884742/

"Our model estimated a mean induction time of 1.9 h, indicating the phenomenon to be occurring after the first dose. However, this rapid initiation of induction would not have an effect on the first dose, since the induction is mostly manifested as an increased first pass metabolism of the compound and most of the dose will have been absorbed prior to its onset.

...

The model estimated an enzyme elimination half-life of 37.9 h. Thus, after a last dose of artemisinin, it would take 6–8 days for the enzyme activity to return to its preinduction values."

So to maximize the the effect ideally a single large dose of Artemisinin should be taken and then wait a week before using it again.

I think when I was using the liposomal stuff I would take a dose and wait 4-5 days or so. The stuff is so expensive I didn't want to waste it. You'd think the liposomal encapsulation would help it to escape these stomach enzymes but you can definitely notice the herx lessening each dose you take over consecutive days.

I don't know if this single day pulse would be ideal for killing Babs... but that schedule did work to fix my neck.
 
Posted by TF (Member # 14183) on :
 
This thread includes the study that says that after the 5th day of taking art, it is about 75% less effective.

It also will give you other threads so you can read all of the various protocols for taking art.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=095879;p=0#000011
 
Posted by Jordana (Member # 45305) on :
 
Thanks all -

What confuses me is that both you and TC have said that when you treated babs you took art straight through. There are a lot of people online who say this actually.

I'm really excited about this stuff because I had a NORMAL day today. After neck and shoulder pain for eight days -- today -- nothing. No pain, no shaking, no real muscle weakness -- it just all went away. I know it's coming back, probably tomorrow...but wow.
 
Posted by TF (Member # 14183) on :
 
I took art Friday through Sunday of each week--3 days in a row and then 4 days off.

I had obvious babs flares that started on Friday evening of each week. That is why my doc had me take art starting Friday morning. He said, "Encompass the flares."

So, it is not true that I took art straight through. No.

I took it 2 times per day on an empty stomach. I bought it at The Vitamin Shoppe. It worked like a miracle for me. It reduced my flare the first weekend to practically nothing. The flares on the weekend were 48 hours of a living hell. So, the art made an unbelievable difference right away.

Babs was the last disease I treated, so it was easy to recognize the weekly flares. (I didn't have lyme flares confusing things or bart either.)

After the bad flares, then the flares got much more subtle--an overwhelming urge to go to sleep no matter what I was in the middle of doing. Once had to pull into a parking lot and jump in the back seat of my car and go to sleep.

So, look for a flare every 7 days and later it can switch to every 14 days. But, keep taking the art to encompass the flares. Treat babs until you have no sign of a flare at all. And then, treat it some more.

That's what worked for me.
 
Posted by Robin123 (Member # 9197) on :
 
Just curious - have you ever seen a good chiropractor?
 
Posted by Jordana (Member # 45305) on :
 
Okay, very interesting TF, I see. I'm thinking "miracle" too at this point, which is why it's such a drag it stops working.

Robin I haven't been to a chiropractor in over a year, but I haven't left my house much in six months either. I've just been too sick to do anything or even think much about anything. I've had a couple "good" days in the past couple weeks -- maybe if they get more dependable I'll start going.
 
Posted by ohioperson22 (Member # 47837) on :
 
If the symptoms you describe ever accompany a fever or not being able to bend your neck forward to touch your chin to your chest, then you need to seek medical attention.
 
Posted by Jordana (Member # 45305) on :
 
Thanks OP.

I went through a period where I kept trying to convince urgent cares and ers that I had meningitis. I even got my neck xrayed at the hospital because I was worried it was broken.

If none of that was meningitis I don't want to know what it really feels like.
 
Posted by still winning (Member # 44439) on :
 
Jordana,

Over the course of many years I have had tremendous back of the head and neck pain much as you describe. For me I believe it is bad herxing. And the only over the counter pain med that works for me is good old fashioned aspirin. But I have to take at least three adult strength aspirins at once to have any effect.

Good Luck. Feel Better.

Still Winning
 
Posted by Jordana (Member # 45305) on :
 
[Smile] . Thanks sw. I think you're right.
 
Posted by Brussels (Member # 13480) on :
 
Thanks to my hard as wood neck, I discovered I had lyme!

Really, all doctors said I had nothing, no lyme for sure.

Then I kept having all these funny symptoms, went to an acupuncturist for a sciatica (1st time ever), she tried to put some needles on my neck, and the needles popped out!

It was getting painful, she said: why are you so tense? I said, 'Am I?' I touched my neck, and I understood what she meant: it was like a piece of wood!!!

She eventually could put a few needles there (ouch!), I came home and googled: hard neck, sciatica, joint pain and people with lyme had often all these 3 symptoms. That is when the bell rang!

I also had babesia, but can't remember when that hard neck went away...

As for ART, I find that it doesn't work at all long term. I had bought so many bottles, in the end, I threw most out.

What worked long term for me better was whole herb, Artemisa annua, then added some other rain-tree herbs.
 
Posted by still winning (Member # 44439) on :
 
Thanks Jordana,

Hope you find some relief.

Still Winning
 
Posted by Robin123 (Member # 9197) on :
 
Brussels, you said your hard neck muscles went away? What did you do to get that miracle to happen?!
 
Posted by lookup (Member # 44574) on :
 
We tried so many things for the neck and nothing

helped. I was thinking, "What are we looking at

here? Swollen lymph? Meningitis? Too much

interstitial swelling that is choking off the

circulation? (already ruled out chiro ages ago.

Nice waste of money for our case) Massage would

help a bit. That is when I squared off with it

and said to this symptom, "You are going down

buddy because I am going to knock your block off

for good." Ever feel that angry/frustrated?


Energy testing showed positive for EBV, so went

in and treated that with a nosode. It worked

like a miracle(!) for 3 days. Then it

regrouped (as Lyme does)and went back to same

old, same old.


Energy tested again and the energetic signature

for TB miasm (genetic taint) came

up along with influenza, coxsackie, ebv, etc. I

could see that this is some real bullslip as

these "guys" were standing one right behind the

other. I would have run with a flu nosode

if the family member would have been achy all over

but went with the Rife frequency 1550 Hz and 802

Hz and the preset Rife Program 827 which deals

the family background of TB. Both great-

grandparents had that illness. Both grandparents

have weak lungs. Family member had whooping

cough as a baby. Ding! Ding! Ding!


The Rifing worked. Then I gave the nosode for that

family history. A few days later, I gave a nosode

made from bowel flora (lab made) to kick up the

gut flora.

In the meantime, I went to Home

Depot and bought a $10 heat lamp, 250 watt, and

screwed it into a goose neck floor lamp and

carefully heat treated the back of the neck, neck

lymph, ears. I had listened to a Lyme summit, I

think it was Cowden talking about MS , who said

they found taking a "killer" herb 30 minutes

before and then using the heat lamp got rid of

junk in the jugular veins of people suffering

from MS.


So, we pulled in using this heat lamp too.

I am not suggesting anyone else do this but, I

know in our case that it would be ok, and that the

herx would not be too horrific. We had all our

ducks in a row as far as everything from

glutathione (Asea) to Vit D (sunshine and Vit D

mixed with olive oil (Now brand) to kicking up

the gut flora (Restore and eating organic veggies

from the ground), drainage remedies in place,

exercising with weights, gluten and dairy free

diet, etc.


It worked and continues to work. Today- ZERO

vertigo. Vertigo has been in the case from the

beginning. The oto-neurologist said there was

damage to the inner ear and vertigo would be

there forever. I guess that isn't so.


I feel like we just did a muay thai

kick to this everlasting, blasted neck issue!


Haven't rifed for days. We are going to enjoy this

little victory and hope that it lasts!


There is a way out of this. That is the good news.

Each case is different due to family health

history but that is what worked for us.
 
Posted by lookup (Member # 44574) on :
 
And also, forgot to mention, getting the endocrine

system in order with L- theanine (sun), 5-HTP,

Gaba, Vitanica Adrenal Assist to stop the cortisol

from pumping out like crazy from the adrenals and

therefore lessening

the inflammatory cytokines issue. Also, made sure

they were in bed by 10pm.
 
Posted by Brussels (Member # 13480) on :
 
Lookup, congrats!!!

Robin, I just kept treating lyme and coinfections (similar way, I think, that Lookup did).

Knocking infection after infection, but I also unblocked the meridians (as I said, nothing you ingest reaches the worst parts of your body, because of blockades of meridians), and eventually the hard neck went away.

In my case, I wasn't tense at all. I was just loaded with infections, brain infections, nerve infections, and treating them solved the problem.

Maybe the diet also helped? (non-allergenic foods, tested individually). Diet lowered inflammation, I suspect.

At that time, I was also doing microcurrents with rife frequencies in my whole body. That is why I think that what worked was a full attack on infections, whatever showed up.

As Lookup say, TB can be an issue for many too. I was lucky to get TB on my fingers, not on my neck. The points that get most symptoms are the points that are loaded with heavy metals (or toxins, plastics, whatever).

that is why they get blocked, and they get infections, I believe. So that is why rife will help some (as the area is blocked for ingested medicine but not for rife), as well as infrared (as it helps to unblock the area), or acupuncture, or even cranio sacral or stuff like that...

I don't know how you guys can find out without energy testing...

One thing that helped me IMMENSELY to detox my spine nerves was the simple violet ray. My lyme was LONG GONE when I used it, but Gosh, my spine nerves were full of toxins.

Awful herx-like reactions, I had, loads of pain all around the nerves coming out of my spine, from the first to the last vertebrae.

The around the spine pain (including neck) was so intense after the violet ray, followed by heart racing, tummy pains (my heavy metal detox reactions), extreme fatigue that went away after loads of binders.

I had no longer infections, but whatever came out of these nerves reacted to binders such as chlorella and bear garlic!

I do believe high voltage (PEMF-like devices, or the violet ray) will help some to detox their nerves, joints pretty fast.

Maybe even that Biomat people swear by... Just some guesses!

These are just some suggestions. Without testing, it's hard to find out, but for sure, toxin accumulation is one sure point (in areas of big trouble, there are always toxins stuck).
 
Posted by bluelyme (Member # 47170) on :
 
Lookup that you got vertigo to go away is amazing news to me ...

i had a feeling to rife for tb the other day because of doctors testing for that and it was shortly after that i really began to feel bad ..

i wonder was it that or the heat lamp ..today at the nurses my temp was a 97.0. ? My blood pressure is low too...It is hot summer here too... is it my thyroid ? Is it circulation hpa ,adrenal...?

I used to trust my testing and now i am so distant with my body...how do i know its not the bugs inside lying for self preservation?

.............................................

(breaking up the post for easier reading for many here)

[ 07-01-2016, 03:56 AM: Message edited by: Robin123 ]
 
Posted by lookup (Member # 44574) on :
 
Thank you Brussels! I had given the nosode for TB

before and nothing happened. But, I see the

trickiness of order here. Lyme is a whole

different cat. Having said that I still pull in

principles of classical homeopathy to guide the

case. Timing is everything and without energy

testing it is a big swirling galaxy of question

marks.

bluelyme-vertigo- so glad for a breakthrough! The

doctor told our family member that if they were

not so young they would be in a wheelchair. The

other neurologist said the brain was starting to

fall out of the skull and to never jump. We have

been terrorized quite enough! Annnd, I guess

they were wrong. And they told us there was no

way it could be Lyme...

For your maladies-it sounds like all that you

mentioned. Did you try drinking some saline water

for some of the symptoms?
 
Posted by bluelyme (Member # 47170) on :
 
Yes sol solution h as helped quite a bit trying licorice before resorting to alderosterone. .thank you look up..
 
Posted by me (Member # 45475) on :
 
Blue, what is sol solution h?
 


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