Hey guys. I'm looking for help because now I'm totally helpless.
Since January I'm treating mycoplasma with various effect.
I had hard nervous symptoms like burning sensation in legs and hands, dizness, piercing pain through head, problems with finding proper words, paralys of left face side, twitching eyelids, itching of lips, twitch resembling crawling something under my skin, mental disorder with forgeting where I am and who I am, huge exhaustion even after sleep.
There was plenty of it. About November I was feeling so amazing that I forgot about ilness for a while. Everthing changed as I said before around January.
It started precedeed by burning sensation in hands and legs.
All along I was treating Lyme with Rife Machine (rpz 14) and my treating was going really smoothly. I was using some Buhner's herbs to help detoxing.
I read that Myco often apper when all other coinfections are treated. As I remember I got 3 ticks while healing and I believe that one of them gave me this coinfection.
At the beginning of treatment on vega test showed only Bartonella, Chlaymydia and Lyme.
So far I got rid of every nervous symptoms. Even of fatigue and this feeling of crawling skin. But chest pain come suddenly out of nowhere after one night and now he is unbeareable.
It feels like something is press on my chest from within. And my heart started to get crazy. Like if my chest starting to collaps.
I had once pain under left rib as if somebody was pressing needle through this spot and was radiating to back. But he went eventually away while treatment. While having him I had x-ray of chest and there was nothing wrong with my heart or lungs.
So is it somehow realted to Myco? I know it's mainly respiratory related infection but as long as I have lyme there wasn't any respitory symtpoms.
Posted by Robin123 (Member # 9197) on :
I suggest that you contact Garth Nicolson in California - he's a mycoplasma expert.
Posted by hopingandpraying (Member # 9256) on :
I don't have an answer for you, but here are some links for Lyme Support Groups you could contact (one is in Poland!)- maybe they could help you:
I'm from Poland so there will be problem with contacting Dr. Nicolson
About polish association - he's unreliable. People barely believe in efficiency of Rife Machine and they are bad eduacted about this ilness. Even doctors. Since treatment I was always looking for help on foreign sites. That's the reason why situation brings me here.
I got to general practitioner today and he didn't heard any cardiac murmurs and respiratory sounds. He was not willing to referral my to RTG of chest but eventually he give me paper.
Posted by Robin123 (Member # 9197) on :
You could try emailing him - don't know - I've just seen him at conferences and spoken directly with him.
Well, same here - doctors are badly educated about Lyme and co's.
Can you get to Germany for treatment? I understand there are some Lyme treaters there. ILADS would know the details.
Posted by hopingandpraying (Member # 9256) on :
I'm sorry to hear that the situation in Poland regarding Lyme and its treatment is not good. I thought Europe was more "alternative-friendly" than here.
There is a Dr. W in Germany who does BioPhoton treatment along with other alternative ones. Some patients have gone there and gotten better. We took our son to see him, but it did not help.
I will pm you his name, but don't have current contact information for him.
You are wise in researching other forums. It is very important you be your own health advocate, as many of us have learned! Contact the EuroLyme forum on Yahoo - maybe they can help you.
Here is Dr. Nicolson's website with e-mail information listed:
Also other international groups you can contact. Hope you find answers.
Posted by hopingandpraying (Member # 9256) on :
Unfortunately, Bonnie, that's the same group info I sent Mambalaga above (just pulled up the specific link for Poland). See his comments about it. Maybe other countries will have info for him.
Wish it were more helpful - good try anyway! We'll just keep plugging away at it until we can find him help, right??!!!
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