So some of you will remember me and my story. I saw my pcp today and showed her all the positive viruses that my llmd ran a few months ago, such as cmv, parvovirus, ebv, to name a few, which were all very high and active. She told me I have chronic fatigued syndrome. I was on Transfer Balance for a month with no change so my llmd told me not to bother purchasing anymore. She is currently not treating me again, stating I was exposed to lyme, however, not enough bands to "diagnose lyme".
Ok, here is the story. I am getting sicker and sicker, I cannot stay awake half the time, very forgetful, anxiety, memory issues, etc. What is going on with me and could someone offer me some advice as to what to do next.
Thank you very much for any response.
Posted by Bartenderbonnie (Member # 49177) on :
Hi, was wondering how you were feeling. Sorry to hear you are struggling greatly.
It's time to take the bull by the horns and fire your LLMD. If treatment is not working, sad to say, it's time to move on.
I will send you a pm. Hang in there lindadanis
Posted by Brussels (Member # 13480) on :
In a lyme forum, we are sure it's bacteria causing us all our problems.
We don't want to hear that there are other extreme suppressive viruses that cause extreme immune deficiencies.
In EBV forums, people are sure that it's viruses causing all their problems.
They don't want to hear that Borrelia could be one of the main cause of their disease.
It's hard to decide, because both lyme and EBV cause practically the same type of symptoms and both cause CFS, no doubt.
Both are like AIDS, will make the whole body becomes a breeding place for microbes.
It's NOT only lyme (borrelia and co) as it's probably not only EBV, HHV-6, zoster etc
I can only say that without treating viruses, some people won't get off disease.
The problem with lyme is that you get on the chase of pathogen after pathogen, problem after problem and until you reach the point you want to treat viruses, it may take some time, if ever.
Same for the EBV forum people: they try to ignore for complete the bacterial part of the problem. Sometimes, you gotta look at bacteria: like you get a UTI because of EBV making your immune system bad, well, you gotta treat that strep bacteria or your life is hell.
If I had a doubt on what is MORE immunosuprresive in my case, I would go another way: what to do so that my immune system finally kicks in, so that both bacteria and viruses stop harming me?
What is sick is CERTAINLY the whole body, the immune system, and very probably the digestive and detox systems...
You can see the recent posts here: people using general supportive treatments sometimes have better results than targeting pathogen after pathogen: the HBTO posts (oxygen making the person feels better) or the TCM treatmet (balancing the whole body makes the person feels better).
Posted by Brussels (Member # 13480) on :
I also used basically homeopathy, tapping acu-points, herbs, detoxing heavy metals, supportive organ supplements, infrared and later, high voltage to get off disease.
I have no single doubt that these general treatments are what in fact, took me off lyme disease for good.
Of course, I also used some antimicrobials, but only when I reached 5-10% of antimicrobials in my treatment that I started feeling better.
The whole 90-95% were other supportive stuff.
I started using 85-90% antimicrobials and 5-15% supportive as a newbie. Very wrong, in my case, as I just herxed and came backwards, instead of forwards.
Herxes serve the pathogens. They do not serve our bodies, as they acidify us, poison the organs, nerves, brain, and bring the immune system down.
Detox plays a central role as diet.
Allergen free diet, light to digest, rich in enzymes, vitamins, minerals, nutrients, super hydrating fruits/ veggies is a must.
In your case, I would go more to the anti-viral path (only natural products, forget about drugs, they never will deal with chronic viruses, only acute) ...
... and would certainly try to concentrate on rebuilding my whole body, by eating alkaline foods (pathogens hate that), proper hydration (forget about only drinking dead water... it helps little), getting maybe saunas / infrared / light therapies / oxygen therapies , whatever is available to you.
I hope you find your way out, Linda.
Posted by overlyme (Member # 43455) on :
i was in the same boat as you and now I am getting better on zhang protocol..they know what they are doing..not so much your llmd..best thing I ever did