I have been told by 2 LLMDs that treating Lyme will make Parkinson's worse. Neither will treat Lyme unless a neurologist says the symptoms are not Parkinson's. These are medical professionals experienced in treating Lyme.
Has anyone heard this before or tried treating Lyme while also having Parkinson's? Another hurdle......
Posted by Marnie (Member # 773) on :
NO!!!
Google: Parkinson's TUDAC. This is very recent!!!
Also,,,MS TUDAC...
It APPEARS TUDAC (taurine + a bile salt - can help with lyme also - LIKELY in combo with Doxy, 100mg over several months.
Halt Bb from "spitting out" the abx. (Inhibit multi drug resistant protein) and then hit it with the abx.
Posted by Marnie (Member # 773) on :
Here is PROOF(3 links) there is a link between lyme and PD and treating lyme IS needed:
It is hypothesized that
protracted Lyme disease sequelae may be due to ***impairment of dopaminergic function*** of the brain reward circuitry.
The subsequent recombinant proteins exhibited sulfotransferase function against two neurotransmitters: dopamine and octopamine.
This, in itself, can reduce dopamine function leading to many Reward Deficiency Syndrome behaviors, including depression and possibly, anxiety
It is understandable that some LB patients who have been inadequately diagnosed and treated may develop
impaired dopamine functioning,
become anhedonic, have significant disease progression and self-medicate their psychiatric symptoms and pain, then become dependent, lose a sense of purpose and engage in drug-seeking behavior with benzodiazepines, hypnotics, alcohol, pain medication and marijuana and a few cases which have addressed substance use associated with LB have been reported [124–131].
SUBACUTE PARKINSONISM AS A COMPLICATION OF LYME DISEASE
The first case of subacute parkinsonism resolved with a 21-day course of 2 g per day of ceftriaxone without the need for dopaminergic treatment.
***The second patient required a second 21-day round of ceftriaxone, along with 3 months of corticosteroid therapy (60 mg/day) and Ldopa/carbidopa (300 mg/day).***
Acute or subacute parkinsonism, according to the authors, can be a complication of Lyme disease, as demonstrated in these two cases.
***Therefore, Lyme disease should be discussed when patients living in endemic areas present with basal ganglia MRI lesions.***
(IMO – the combination of abx and supplements to get inflammation down (reducing Nrf2) is very important)
Thanks, Marnie. Both doctors will not treat Lyme if the person is also diagnosed with Parkinson's, even if the Parkinson's was caused by Lyme. They say that Lyme treatment makes it worse and the Parkinson's is incurable. This is from experienced LL medical practitioners.
Anyone with Parkinson's treat their Lyme without getting worse? Do other LLMDs treat patients with Parkinson's?
[ 07-21-2019, 04:26 PM: Message edited by: Newday ]
Posted by Rumigirl (Member # 15091) on :
I have a friend who has Parkinson's that I referred to a well-known LLMD, who then treated him for several years. He definitely didn't get worse. The doctor also treated him for heavy metal toxicity, B12 shots, etc.
His Parkinson's still progressed, but probably less so. I thought that he probably should have been given IV abx, but I'm not the doctor, so never said so.
Perhaps, you need to try some other experienced LLMDs. No one can guarantee success, but it seems to me that you should be able to find someone with experience who is willing to treat you. I've never heard of patients running into this problem (which doesn't mean it doesn't happen).
In Under Our Skin, the documentary about Lyme, there is a baseball player who develops Parkinson's who gets better from Tick-Borne Disease treatment. Granted he was young, but even so, don't give up.
Posted by Rumigirl (Member # 15091) on :
It is known that patients who have ALS and Lyme can be treated, but the doctors know that they can't give too much rocephin at once, or the patient will get worse, probably from die-off neurological reactions.
But they can be treated and can improve (if they aren't Bulbar ALS). I say that, because perhaps it can be similar with Parkinson's.
Posted by Marnie (Member # 773) on :
Let them treat PD with (new research !!! = TUDCA for PD (OTC) If you can find a doc willing to add in 100mg of Doxy TiID...alll the better.
IV rocephin and IV Mg (in large amts. given to early lyme patients by Romanian doctors). cured lyme. It is the combination!!!
Reduce the inflammation AND oxidative stress WHILE hitting Bb with abx. that attack BB's DNA.
Posted by Robin123 (Member # 9197) on :
My Lyme doctor says Parkinson's can have multiple causes, and one of them is Lyme disease.
I have not heard that cautionary statement. Around here, I think Lyme doctors treat Lyme Parkinson's. I think you need to find Lyme-treating doctors who are familiar with treating Lyme Parkinson's.
I had a friend with Parkinson's. I suggested she get tested for Lyme, and she got a Lyme-positive IGeneX test. So that means some can get a positive Lyme test.
Posted by mlg (Member # 35383) on :
You need to find a better lyme doctor. The top notch ones know that lyme can manifest as Parkinson’s.