It was a slow realization, but I don't notice if I miss my pills. And at this point, I feel largely normal. I think four things got me here.
• Disulfiram - Lyme was never my primary issue, it was always the coinfections, but DSF cleared up lingering symptoms that I didn't know where Lyme related. I believe it helped lift the weight from my immune system, allowing it focus on other infections.
• Primaquine/Tafenoquine - Coartem and Mepron were never able to clear my Babesia Ducani infection. Longterm treatment with Tafenoquine did the trick though.
• Mhbot - It certainly helped.
• Fixing my Sleep Apnea - This is perhaps more unusual, but I used to snore, and when looking into it, I discovered that people who snore have very high rates of autoimmune dysfunction. Because they keep waking up at night (even if they don't realize it) they're never able to slip into deep sleep, which retards their immune system, and many of the normal healing processes. Fixing my snoring has made sleep more restorative, and has, I believe, helped repair my immune system.
In my case I used a palate expander with a mandibular advancement device, but CPAP should also work.
Posted by hiker53 (Member # 6046) on :
So glad you are better!!
Posted by Bartenderbonnie (Member # 49177) on :
I AM SO HAPPY FOR YOU Charles12 !!!!!
Thank you so much for posting what helped you. You have given us ALL the much needed HOPE we crave for. Sucess stories keeps each and everyone of us in the battle. And that you posted your glorious GREAT news on Easter, a day Jesus Christ triumphed over death, seems fitting. Posted by Kristyn (Member # 51857) on :
That is such an awesome thing to read! God bless you and your continued journey on good and better health!
Posted by Garz (Member # 52095) on :
great news and a suitable reward for what must have been tremendous determination.
one question - what is "Mhbot"?
(ah OK - I answered my own question - Mild Hyperbaric oxygen therapy - must have been a brain fog moment)
Posted by Cass A (Member # 11134) on :
Thanks so much for posting this, Charles 12!!
I sent you a PM asking you for the data you've provided here.
Your experiences have been very educational for me.
Posted by Garz (Member # 52095) on :
quote:Originally posted by Charles12:
In my case I used a palate expander with a mandibular advancement device, but CPAP should also work.
interested in what device you found worked for you - was it a boil and bite type - or prescrioption ?
Posted by Brussels (Member # 13480) on :
Congratulations!!!!
Posted by LymeCFIDSMCS (Member # 13573) on :
Charles, I'd love to know how long you were sick, how long this took, and what some of those last residual Lyme symptoms were (I'm the same way, I think coinfections are a much larger issue, have b. duncani among others, etc.) -- also, how long you did the HBOT?
Congratulations, this is really exciting and I hope you can do some of your favorite things you missed out on before.
Posted by Cignet133 (Member # 52286) on :
Presuming you're still doing well man? If you are congrats!
![[group hug]](graemlins/grouphug.gif)