My husband began having night sweats, joint pain, severe headaches and loss of appetite. He remembered a tick bite about 10 days before. Our doctor did the test for Lymes and it came back negative, but, came back positive for Parvo Virus B19. He is still having the same symptoms and it has been over 3 weeks. We are wondering if he should see a specialist to see if there was a false negative test.
Would appreciate any information on a doctor in the area.
Posted by bettyg (Member # 6147) on :
welcome barb
only 1 in tenn; check your profile for my pm to you for tenn. and s. missouri
kentucky has none...
Welcome to Lymenet! I'm so glad you found us! You've come to the right place for education and support!
The following is some links that may be helpful to you:
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.
Optional tests include: co-infection panel for your area of country and PCR whole blood
Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.
Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.
For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.
You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.
Go to left hand corner and mark box to receive `all replies', and click edit send.
Thank you for posting in a manner that makes it easier for all to read and help others.
Posted by Abxnomore (Member # 18936) on :
PM sent.
Posted by Kathryn (Member # 17034) on :
Hi Tbarb,
I'm from your area. Both my daughters and I have Borrelia, Bartonella and Babesia from tick bites.
We travel out of state to see doctors. I will PM you the info.
Posted by Cap67 (Member # 21923) on :
I see there is only one in Tn., can you please send me the info for the one in tn????
Posted by Lymetoo (Member # 743) on :
info sent to CAP
Posted by Cap67 (Member # 21923) on :
thanks! I read the info on this doc, is he one to help with lymes or is the Dr. c a better way to go?? I am not sure I could find a way to get to Mo, this guy in Tn. seemed to talk more about herbs, nutrition, like a wholistic doctor Vs a medical doctor. Or am I misreading this information??? You said he is helping your husband??
[ 10-01-2009, 08:05 PM: Message edited by: Cap67 ]
Posted by Abxnomore (Member # 18936) on :
Please post ALL NEW REQUESTS for a doctor in a NEW AND SEPARATE POST.
Our volunteers, who help with LLMD referrals, look for "NEW" requests and don't go back to look at older Topics that have already been answered.
We would not want your request to go unnoticed and unanswered.
Thank you.
Posted by Cap67 (Member # 21923) on :
thanks for the info...I appreciate that and I will get the docs names off here, I did not know not to put their names here.
Posted by Abxnomore (Member # 18936) on :
![[Smile]](smile.gif)