Hi all, I've been treated for Lyme by an ND for the last 10 months and am feeling stalled out with my current ND. Can someone send me a list of people treating Lyme in Portland OR?
Thanks!
Posted by SashaC (Member # 18968) on :
Try posting this in "Seeking a Doctor." You will get helpful responses there.
Posted by WhitneyS (Member # 25666) on :
Thanks
Posted by Keebler (Member # 12673) on :
- As you may know (since you ask for a LL ND), there are no LLMDs in Oregon. However, there are a few ILADS-educated LL NDs.
Be very aware, though, that there are some NDs who say they are lyme literate but are barely such. So do find one who is ILADS-educated and keeps up with ILADS conferences, etc.
And there is the occasional MD who thinks they know about lyme but after about one minute of conversation, it's clear they do not. The IDSA has a real stronghold in Oregon and does not want MDs to learn about and address chronic lyme or other tick-borne infections.
Still, there may be one or two in your area who is at least "lyme friendly" and not kick you out the door for mentioning the word but would not have the necessary knowledge (or be allowed) to actually treat with long-term combinations and rotations, etc.
It is important, though, to be aware that if you are seeing an ILADS-educated doctor and doing the best you can with self-care and Rx and supplements - that treatment can stall for long periods of time but that does not necessary mean that you are not winning the battle.
For some, it can take several years of just trudging ahead before they experience a steady and long-standing remission.
For all your options in PDX and in neighboring states, contact OLDN: -------------
Topic: How to find an ILADS-educated lyme literate (LL) professionals in these areas:
Naturopathic doctor (ND); Acupuncturist (L. Ac.), a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), certified herbalists or nutritionists, . . .
. . . Holistic MDs, and also Doctors of Osteopath (DO) and Doctors of Chiropractic (DC), etc.
** Includes many professional links, articles and books on complementary / integrative methods - & RIFE links -- all by LL authors.
Also included are basic links explaining the principles of herbal medicine.
BODY WORK considerations (geared to lyme patients) are discussed; with links. -
Posted by Keebler (Member # 12673) on :
- In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD or LL ND should know about: ----------
I would encourage EVERY person who has received a lyme diagnosis to get the following tests.
- at link. -
Posted by WhitneyS (Member # 25666) on :
Hi Keebler, Thanks, I have been tested for those and am positive for EBV (now lower levels), HHV6, and Clymidia P.
Posted by Lymetoo (Member # 743) on :
Moving to Seeking a Doctor
Posted by Keebler (Member # 12673) on :
- Cpn and HHV-6 changes everything, as you probably know. You need a doctor who is expert in those areas, too, not just lyme. Just addressing lyme will not be enough at this point but the good news is that the Cpn protocol is so similar and many with lyme also have Cpn.
But the Cpn protocol is very specific and a lyme protocol may not adequately address Cpn.
There is one MD in Washington state who is reported familiar with Cpn, however, it seems that Oregon MDs are not. Still, the OLDN would know more about that for MDs and NDs. You need a doctor who know all about all of these.
Does your ND have you on either the Wheldon or the Stratton protocol - or a combination as detailed at www.cpnhelp.org ? Hope so.
In addition, I assume your ND has you on a PORPHYRIA management protocol as that is essential with the Cpn treatment.
I sent you the name of one LL ND who is very familiar with that and has experience with it.