This is topic Seeking Lyme doctor - central CT in forum Seeking a Doctor at LymeNet Flash.


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Posted by Glen P (Member # 50791) on :
 
Have contracted Lyme disease and have had symptoms of chest wall pain and a heart attack although all tests show normal heart function. Have received referral to cardiologist but would also like to meet with doctor specializing in Lyme disease.
 
Posted by Nancy2 (Member # 95) on :
 
PM Sent!
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for CT.

Lyme disease can cause heart problems, because the bacteria which cause it, Borrelia burgdorferi, like connective tissue.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/ConnecticutLyme/info

Maybe they can help. They would know better about CT.

Some more resources for you (including Support Groups info):

http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Connecticut/

Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
 


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