This is topic Finding Lyme literate doctor - In MA in forum Seeking a Doctor at LymeNet Flash.


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Posted by Bradc (Member # 50887) on :
 
I’m trying to find a Lyme literate doctor in the Burlington, MA 01803 area.
I was diagnosed with Lyme in 2012 and was treated with antibiotics but doubt it was the dosages recommended on Lyme websites.
Thank you,
Brad

[ 10-01-2017, 07:26 PM: Message edited by: Bradc ]
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet! PM sent for MA.

You should put "in MA" in your title so people will know specifically where you are looking.

To do this, click the pencil/paper icon, make your changes, then click "Edit Post".

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MassachusettsLyme/info

Maybe they can help. They would know better about MA.

Some more resources for you (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/Massachusetts/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8
 
Posted by Nancy2 (Member # 95) on :
 
PM Sent!
 


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