LymeNet Flash: Seeking LLMD in New York City/ Westchester

This is topic Seeking LLMD in New York City/ Westchester in forum Seeking a Doctor at LymeNet Flash.

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Posted by mindful17 (Member # 51008) on :

I am looking for a recommendation for a doctor in the New York City/Westchester area.

On a related topic, I found Dr. P in CT who seems to be highly recommended but see he is no longer accepting new patients. I understand new patients can see his nurse practioner. Has anyone been a patient of this nurse practioner?

Thanks so much.

mindful17

(editing out doctor name and city per Lymenet rules)

[ 11-05-2017, 10:45 PM: Message edited by: Robin123 ]

Posted by hopingandpraying (Member # 9256) on :

Welcome to Lymenet! PM sent for CT.

I don't know about Dr. P's nurse practitioner.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help. They would know better about NY.

Some more resources for you (including Support Groups info):

http://www.nyclymesupport.org/

*NOTE: Poster "Rumigirl" added this good info in another post about NYC:

"Since you are in the NYC area, besides all of the great information that has been posted, I strongly suggest coming to the NYC Lyme Support Group. It meets the 4th Monday of each month [URL=http://www.nyclymesupport.org/ ]NYC Lyme Support Group[/URL]

The group is very educated and can help you figure out who to see that is best for your circumstance."

http://whatislyme.com/websites-and-support-groups-by-state/
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and his new one, "How Can I Get Better?". They are an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on http://www.veoh.com/m/watch.php?v=v21055812yWtmpgB8