Hello, I live in Herndon, VA and I am dealing with a neurological problem called spasmodic dysphonia, which is a kind of dystonia. My case of Lyme got activated after I gave birth in July, 2017 and the first symptom was Subacute Thyroiditis. I'm looking for an LLMD who has experience treating dystonia caused by Lyme. I would also like to find an LLMD who prescribes IV antibiotics in case I need that for the neurological problem. I have been having Lyme symptoms for the past 16 months.
Posted by Bartenderbonnie (Member # 49177) on :
Welcome to Lyment Daphne2017
Please go back to your original post and edit out your name. For your own protection.
Shania Twain suffers from dysphonia and she has gotten better with Lyme treatment.
There are many different protocols for treating Tick Borne Infections. Each LLMD treats according to what works for their patients but most follow the guidelines listed here;
I will send you a private message. Healing wishes.
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet!
I don't know if the Lyme-literate physicians in different states whose names and info I sent you offer the treatment you are looking for, but you could inquire when you call their offices.
Fyi - my young-adult son had Myoclonus (involuntary muscle twitching and spasms) which disappeared with treatment for Lyme and co-infections.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. At least half of all Lyme patients go out-of-state for treatment.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.
Btw - I know you are new to Lymenet, but you should not use your real name, because this is a public forum with all sorts of people on it. Read this link about it:
To remove your name from the signature line, click on "Edit Profile" under Lymenet Flash in the top middle section of the Lymenet page.
Click on "Edit Profile" on the left-hand side, scroll down to "Profile Fields" then down to "Signature". Make your changes, then click "Update Profile".
Also, please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.