You should start by getting your finances in order as Lyme disease and co-infections treatment is expensive. Learn why LLMD's don't participate in insurances here;
Start a folder with everything medical. Include all providers seen, all medical procedures and blood tests, request copies of all results, journal all your daily symptoms, all your diagnosises, all your medicines and take with you to your 1st LLMD visit.
Feel free to post any questions you may have and lymenet members will respond with their experiences. We are open 24 hours a day, we never close.
You can utilize LymeNet's 'search' function located in the middle of home page. It contains a vast wealth of information you will find nowhere else.
You must become your own health care advocate, research as much as you can on Tick Borne Infections. So very important. We will help you, just ask. Good luck on your healing journey.
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Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet!
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.