Any questions? We are open 24 hours a day. Good luck to you.
Posted by hopingandpraying (Member # 9256) on :
Welcome to Lymenet! PM sent for MO & OH.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. At least half of all Lyme patients go out-of-state to get proper treatment.
Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:
Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better". They are an excellent source of information.
Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence" DVDs. Check your local library or buy them used online.
Posted by Dan455 (Member # 51881) on :
Bump...
Some members recently messaged me about LLMDs who treat in Missouri and Ohio... I messaged them back if they're trained in treating Babesia, I highly question it because I've wasted 8 years of treatment with the LLMDs in Michigan that aren't educated enough to treat Babesia in Michigan.
Bottom line is I have to find a LLMD in and around my region that prescribes the latest antiparastics that work effectively against Babesia - Daraprim, Coartem, Dapsone, Primaquine. If not, it's just a waste of my time. I recently cancelled my appointment to the LLMD in Michigan because I know nothing has changed with the guy.
Really sucks being stuck between a rock and a hard place, knowing what coinfection you have, what antiparasitics work, yet not having a quality LLMD willing to treat you.
I wish I would of went out of state 8 years ago. I got the vibe from most the members on here that Michigan LLMDs aren't treating aggressive enough, now I've drained my bank account and left with very little money to treat because of it. I guess just another sob story from another lyme patient...
A-Bab and CSA Formula seem to be helping temporarily, but they don't seem to be giving off the strong herx reactions I got when I was on Coartem, when I was self medicating. The chances of remission with just herbs againsts Babesia are probably really rare, especially considering the Yale study.
So again, anyone know of a good LLMD that treats Babesia in my surroudning states next to Michigan, please hit me up. My lyme like seizures became so bad I had to stop self-medicating, my family wants me under care of a quality physician.
I can prabably only afford $200=$300 a visit. I almost made an appointment to Dr. J in Washington, but I worry my bank account will be drained before I can make the payments on my apartment and food, considering what he charges....
Posted by Bartenderbonnie (Member # 49177) on :
Sending you a p.m.
Posted by Bartenderbonnie (Member # 49177) on :
Cheap option might be to call for consultation ?
Posted by Dan455 (Member # 51881) on :
Appreciate the messages from everyone...
I must say, it's a damn shame everyone just recommends seeing top LLMDs now and that the lower level LLMDs aren't educated enough to treat Babesia.
$900 the first appointment, then $600 then next, $300... This is why I have been buying my drugs overseas. I may keep having to do so!
They're insane thinking that everyone can afford these prices considering the jeopardy our country is in, the average wage people make. Knowing that most partients with lyme disease cant work full time.
Some say just charge it to credit card, what to get into deeper debt? No assurance you'll be in remission after treatment.
Very dissapointed in the fact that the LLMDs in my home state haven't adapted, changed their protocols. Yet the top LLMDs like Dr. J and Dr. H are saying the majority of people are contracting the 3 Bs these days when they get bit by a tick: borrelia, bartonella, and babesia.
The top LLMDs are using drugs like Coartem, Artesunate, Dapsone, and Daraprim. None of the lower LLMDs still are using these drugs and LLMDs are suffering because of it.
We've made so much progress scientifically in the field through John Hopkins, none of this has trickled down to the LLMDs in my state.
I feel really sad for the new lyme patients battling this disease, I really do.
I feel I'm very close to remission, maybe I'll just keep treating with A-BAB and CSA Formula. And if I have to again, just order antiparasitics overseas again.