This is topic Looking for LLMD in southern NJ or Philadelphia area in forum Seeking a Doctor at LymeNet Flash.


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Posted by Southernjerseygirl (Member # 51972) on :
 
I’m 40 years old and For 10+ years have been suffering from pain, fatigue, brain fog, and myriad other symptoms. I have been given the basic Lyme tests by my family doctor and they can back negative. I’m looking for an LLMD in the southern Nj or Philadelphia area. It’s helpful if they accept health insurance.
 
Posted by hopingandpraying (Member # 9256) on :
 
Welcome to Lymenet!

Testing should be done through IGeneX Labs in Palo Alto,CA.

Here are some links for you to read about Lyme testing:

"27 Reasons Your Lyme Test Could Come Back Negative"
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/3/33085?#000001

"Why the ELISA is a Junk Test"
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/108294?#000002

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewJerseyLyme/info

https://groups.yahoo.com/neo/groups/PennsylvaniaLyme/info

Maybe they can help. They would know better about NJ & PA.

Some more resources (including Support Groups info):
http://whatislyme.com/lyme-in-new-jersey/

http://whatislyme.com/lyme-in-pennsylvania/

www.lymepa.org [*Note: they are very knowledgeable]

http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

http://www.lymenet.org/SupportGroups/UnitedStates/Pennsylvania/

Read the books written by the top LLMD, Dr. H, titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. View "Under Our Skin" and "Under Our Skin2: Emergence". Check your local library or buy them used on online.
 


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