This is topic Ice Bucket Challenge for ALS in forum General Support at LymeNet Flash.


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Posted by linky123 (Member # 19974) on :
 
Is this lyme? Wish he could be looked at by a llmd.

http://bostinno.streetwise.co/2014/08/18/pete-frates-icebucketchallenge-awareness-for-als-espn-sportscenter-video/
 
Posted by Lymetoo (Member # 743) on :
 
I thought the same thing.
 
Posted by Dekrator48 (Member # 18239) on :
 
I posted this link to Pete Frates fb page...of Dr David Martz speaking about how he was diagnosed with ALS, had negative lyme tests, but eventually recovered with help from a Phila Dr who prescribed multiple long term antibiotics and found Lyme via PCR.

It may not be his personal page, but hopefully it helps get the word out.

https://www.youtube.com/watch?v=UY9FdULDV6M
 
Posted by steve1906 (Member # 16206) on :
 
Dekrator48, Great idea, that's always an eye opener!

Steve
 
Posted by Lymetoo (Member # 743) on :
 
Good job! Thanks for the link!
 
Posted by droid1226 (Member # 34930) on :
 
I wrote a comment on the ESPN article about how many ALS patients I've noticed from New England and how it's also has the highest incidence of tickborne illnesses. It got 21 thumbs up. More than any other comment. People know somethings up.

One guy replied with a valid point. He said I was boring people with genetic and predisposition points. Which I probably was but 21 people agreed and read my little essay. Once you damage that myelin sheathe or the spinal cord, whether it be football or infection. It can be called whatever it wants. If it continues to degenerate, it's ALS, possibly getting worse from lyme. If it's damaged, it's MS. Mostly.

People know this, or are catching on
 
Posted by Marnie (Member # 773) on :
 
No. Different pathogen and underlying genetic predisposition.

BUT...

Google these words:

MitoQ ALS

I PROMISE it will blow you away!

ANOTHER (of many) diseases/underlying genetic problems -> "mitochondrial dysfunction".

They also need to look at a *very* unique component in "pot". Isolate it. *Beyond* these:

CBD and THC .

Okay, I'll give you a clue:

http://www.truthonpot.com/2013/08/10/is-cannabigerol-cbg-the-ultimate-cannabinoid/
 
Posted by Lymetoo (Member # 743) on :
 
I've been posting ALS/Lyme links on ice bucket challenge videos that I "share" on FB.

Spreading the word.
 
Posted by Keebler (Member # 12673) on :
 
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This is the best video, most honest, heartfelt and spirit enriching that I've seen in a very long time. This young man is simply amazing as is his mother (and likely his grandmother was, too).

Please watch it all the way to the end. It's well worth the time and attention. Scroll down a bit to click onto the cute guy in the funny bikini. (No, it's not like that!)

http://www.upworthy.com/the-last-ice-bucket-challenge-you-need-to-see-and-you-really-should-see-it?c=hpstream

From Upworthy website - The Last Ice Bucket Challenge You Need To See and You Really Should See It

Video 6:51 Anthony Carbajal
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