I've been seeing quite a few posts on Facebook about this Alzheimer research group or that clinical trial for prevention of Alzheimer's
I have been posting on almost every one that Lyme Disease should be tested for and then putting in a link or two about Kristopherson's misdiagnosis of Alzheimer's which was actually Lyme Disease.
Don't know if it will do much good, but perhaps someone will actually do some research.
Posted by Keebler (Member # 12673) on :
- Thank you for doing that. What you are doing really matters. For anyone with energy and access to which ever reply options there are, please continue. The ILADS.org and LymeDisease.org links are also very important - or at least the names of these key groups to find the right detail.
Too many think the CDC will have what they need and just stop there.
As to "someone doing research" Alan MacDonald's work is stunning in this connection.
Oh, I see now you were talking about readers / individuals doing their own personal research to find the real information. The best source to date:
I am hospital pathologist by trade and my world is microscopic images. . . . -
Posted by Keebler (Member # 12673) on :
- I don't post in other places, have zero social media access to do so. So, for others who do, if it is workable, I hope these links will help. Sometimes, though, just the name of the organization can be posted in the reply sections as links won't go through. That's still vital, though.
Sometimes, with the www. omitted, the main part of the address with the .org (or whichever it is) might post. That might speed the reader along if they know that much.
Some top informational sources to consider including in any postings:
Global Lyme Alliance -
Posted by Lymetoo (Member # 743) on :
SOMEONE will pay attention, Trek! Even if you save one person, it's worth it..
Posted by lpkayak (Member # 5230) on :
Tom Grier is on facebook now and posts regularly about research. His own and others
I know two top notch llmd s who post also.
Posted by BugBarb (Member # 210) on :
I was on Namenda, an alzheimer's drug, for the cognitive problems I had when my lyme was the worst. Fast forward a few years and I had to get a new neurologist. She didn't think I needed the namenda anymore so she gave me a standardized memory test. I passed, so no more namenda. I am a lot better than when I started on it. My memory isn't 100%, but it's around 90% which is pretty good.
Posted by Bartenderbonnie (Member # 49177) on :
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