I have never been one to want to stay at home, but I finding myself just feeling better staying in.
It's not even just the act of being out. I just feel more at ease staying home. I've never felt like this.
I started treatment in November so I've only been treating for almost three months. It's been a heavy duty treatment so far, but I felt like I was dealing fine with it at first. Now I feel like somewhat of a basket case.
I called my husband yesterday and told him that I don't think I can shop by myself anymore. I was just too anxious. This is awful!!
I am organizing my home to feel more peaceful not to mention if I don't go anywhere I get a little bored. The closest IKEA is 2 hours away and I have my friend who is going to drive me tomorrow because I want some organization items. Thank goodness for good friends because I couldn't do it alone.
I used maybe 1/4 tank of gas from one Monday to the next. My hubs always fills it up for me on Mondays when he's in town. I used to go through a whole tank.
I don't even recognize this person. Anyone else have this issue? I know that some people can't get out and about because of severe fatigue but mine is a combination of anxiety and then I get tired.
Posted by hiker53 (Member # 6046) on :
I used to have this issue. Afraid to go out due to sensitivity to stimuli and myoclonus that made me fall down.
A friend did a lot of my grocery shopping.
Fortunately this has passed.
You will get better!
Posted by Bartenderbonnie (Member # 49177) on :
I have this same issue, I literally fight with myself about leaving my house ! Should I or shouldn't I. I take a shower, get dressed, all the while going back and forth in my head, driving myself crazy, can't relax. At the last minute, common sense prevails and I realize it's not the end of the world, today is not a good day to venture outside. Maybe tomorrow.
I only have 2 productive hours a day to take care of necessities. Then back to bed. I spend up to 20 hours a day in bed. I do everything in bed. Read, watch tv, movies, videos, got TV tray so I can eat in bed, have phone, Kleenex, garbage can, iPad, lots of water, all my meds, bathroom connected, drapes open for sunlight. Everything to make my sufferring less.
I read you started treatment for Babs a month before me. So we have each other to lean on. A good thing. It's much worse alone, I promise you.
I got better before. I remember how absolutely WONDERFUL it felt to get Bonnie back. So I tell myself to remain calm, ride out the storm, this too shall pass, not in my power to be able to rush wellness, and Lord and behold, one day you wake up and you broke through to the other side. You can and will do this kidsgotlyme. 🌟🌟🌟🌟🌟🌟🌟🌟
Posted by kidsgotlyme (Member # 23691) on :
Thank for the kind words, Hiker and Bonnie!
I guess I should consider myself lucky. I usually only have one or two days per week that I actually need to stay in bed and rest. I mean, technically I could, but I can do it if I put my mind to it.
I ended up going to IKEA with my friend today. I thought I wasn't going to make it towards the end. Everything was hurting and I had this vision of falling to the ground and not being able to get back up. I was glad that it was over. I was able to take a nap while she talked on the phone with her son. Win win!!
One of my problems when I am feeling so bad is food. Bonnie, what do you do for meals? If I'm feeling so unwell, the last thing I want to do is cook.
Posted by Bartenderbonnie (Member # 49177) on :
Cooking is a big challenge.
I'm a big fan of crock pots. My baby crock pot makes 2 meals. I buy a small chuck roast, add potatoes, onions, carrots, garlic, spices, and alittle beef broth. Large crock pot I use mostly for soups, which lasts throughout the week.
I also make stir fry. I always cook extra, for leftovers the next day. I buy the already cut-up vegetables. I use steak or shrimp for protein. I add onions and garlic. So good.
My favorite is store bought rotisserie chicken. I make so many meals with it. I take the bones and throw it in large crockpot for the best chicken soup ever.
I make a huge batch of smoothies to last the week. I put cucumbers, celery, carrots, garlic, cilantro, blueberries, banana, grapes, pomegranate, apples, ginger, avocado, orange juice and filtered water and place in recycled jam jars. Pain to make but so worth it. It holds me over between meals.
I make egg omelettes with whatever vegetables are left over. It's a quick meal and not just for breakfast. I don't throw food away unless it's old.
I snack on clementines, celery, carrots, mixed nuts, peanut butter, granola.
Tincup posted this last year and is a great way to make sure you eat a salad everyday without all the daily work;
I've finally learned how to really utilize my IntantPot. I'm making a pot roast right now and I put it in frozen. I love it!!!
Posted by Lymetoo (Member # 743) on :
The Instant Pot rocks! Keeps histamine levels down.
Carry on, KGL!! I hope you will feel well enough to be out more very soon.