LymeNet Flash: TBDWG Report Being Used To Help Us!!

This is topic TBDWG Report Being Used To Help Us!! in forum General Support at LymeNet Flash.

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Posted by Tincup (Member # 5829) on :

More Good News! Our Representatives Efforts Are Paying Off!

The TBDWG Final Report from 2018 is being used to support our doctors and scientists in their efforts to support you!

We have at least one mention in the scientific literature (Sin Hang Lee) and one in a response to a bad boy in France who wrote an editorial against chronic Lyme, etc.

You can look for the bold font at this link to see the quotes so you don't have to read the whole thing.

https://sites.google.com/site/lymelegislation/2019-working-group-federal/use-of-reports-in-scientific-publications

Thanks to all of our patient reps and doctors who are representing us in this TBDWG!

Posted by TX Lyme Mom (Member # 3162) on :

TC, you are our heroine of the day for this report -- heck, our heroine of the week, if not the month, maybe even the year -- for this report. You are awesome!

I was out of town on the day when the TBDWG was meeting. Thus, I was unable to watch it live on-line, much to my regret. I could hardly wait to get back into town and to look for your timely report on this important meeting.

Thanks for all of your hard work in setting up your website for our convenience.

I haven't had any time yet since I've been back home to look on any other Lyme websites: LDO, Global Lyme Alliance, LDA -- nor have I received any e-mails from any of them either, although I've signed up to receive their notices.

That's why your timely reporting is so much appreciated.

What would we ever do without our dearest TinCup?

Kudos to you, Kiddo, from another very appreciative Lyme advocate/activist.

Posted by hiker53 (Member # 6046) on :

Thanks, TC! [Smile]

Posted by Bartenderbonnie (Member # 49177) on :

You are always on top of things, such a ferocious advocate.
We are so blessed to have you on our side.

Posted by Tincup (Member # 5829) on :

Wow!

Had I known there were so many sweet comments I'd have come back sooner!

Thank you all. You make me blush!

I have been very busy with Lyme stuff, but just found this info...

TX- this is for you and others. Just posted it on other sites for those who have been waiting.

Watch the federal TBDWG Meeting from June 4, 2019.

See 3rd paragraph down where it says... "Members of the public may also attend a live stream of the meeting via webcast" and click on "webcast".

https://www.hhs.gov/ash/advisory-committees/tickbornedisease/meetings/2019-6-4/index.html

You can also see the full list of members now too.

https://www.hhs.gov/ash/advisory-committees/tickbornedisease/members/index.html

Again, you all made me smile. Tanks berry mush!

[Big Grin]