Here is a really great article outlining 4 ways to stand up for yourself when dealing with doctors and Lyme disease. This nurse and her whole family have fought the good fight. Good advice, plus other good info. The part about how Lyme disease affected the gut for them was interesting.
"What Lyme Disease and Its Aftermath Taught Me About Self-Advocacy Four Things I Learned at a Fork in the Road, Including What I Have in Common With Kelly Clarkson
By Charlotte Brouwer, Critical Care Registered Nurse (CCRN, RN, BSN) at University of Virginia Medical System