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 LymeNet Flash
 Medical Questions
 Antibiotics Poll (Page 2)
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| Author | Topic: Antibiotics Poll |
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brianb Flash Member Posts: 7 |
posted 08 January 2001 14:43
   
Type: ARTHRITIC, MUSCULAR,cns Co/infetiuos: dont know Antibiotics used/results: GOOD--Doxy 100mg 4x a day/20 weeks-good for muscle pains VERY GOOD--Zithromax 3x a day/3weeks-great for memory,joints and muscle VERDICT NOT IN--Amoxy-just started/9 days 200mg day- have not noticed any significant change IP: Logged |
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MADDOG Frequent Contributor Posts: 2004 |
posted 08 January 2001 19:40
Hi,GRRRRR I was all ready to post to this thread and my internet service provider cut me off.Do they wan't a war with a pit bull??GGRRRRR!! Ok back to business.6 years of suffering,joint pain,nerve problems,herniated disk in back,suddenly improved with cipro and hot Nebraska 115 degree weather.Within 6 days I climbed the middle teton.Upon return to home I got bad again.I found out I had Lyme,I was put on suprax,I herxed terribly but my eyesight came back pronto.I was then put on three months rocephin,it about killed me,had gallbladder out,Improved greatly and climbed the grand teton.I then got worse due to lack of followup due to ins,company being LOOSERS.I got worse and began to expiriment with antibiotics,mixing them to try to get better enuf to climb again.I mixed doxycyclene and cipro,and got better and climbed Tewinot mnt.I was way underweight 130 lbs.I took the microsilver bullet collage 40,and gained 35 lbs.I was better for awhile and then crashed again,I couldent afford any more micro silver bullet.I managed a hike to the top of medicine Bow peak,while taking Doxy.No more mnts. for years,everything stoped working,last summer allmost totally lost my mind.A mix of doxy and tinidazole saved my life.200 MG Doxy 500Mg tin.I am now in a state of exhaustion,possibly a virus(cold or flu),I don't know!!!Work is a torture chamber.I am still taking the doxy.I may have a liver problem I do not know,and have no doc. I can go to,that would know.MADDOG IP: Logged |
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Chazmyn Frequent Contributor Posts: 1475 |
posted 09 January 2001 09:51
Arthritic, neuro, CNS, cardiac, visual, Bell's Palsy, electrical sensitivities, etc. Am on a combination of Zithro, Flagyl & Doxy. Have tried to discontinue all three but relapse. Each one seems to work on certain areas (suspect co-infections). Flagyl helped stop heart problems when Zithro & Doxy didn't. (Some problems still but not as much as before.) Zithro seems to work on brain/face. Doxy seemed to kill germs in gut better. Felt more like a human being since maintaining the triple therapy and hope to continue well past symptoms to ensure death to the enemy. IP: Logged |
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lou Frequent Contributor Posts: 2746 |
posted 09 January 2001 14:53
Infected 4 years ago. Been treated for 1 and a half years. Neuro, heart, joint, rashes, vision and hearing symptoms. Claforan IV and Zithro IV both gave me a 4th week herx, so this must mean they were working. Nothing else did this. Doxy holds it down, but I never got off the plateau. Tinidazole doesn't seem to be doing anything. Rocephin, biaxin, oral zithro all help to hold it down, but no real progress toward "cure/remission" IP: Logged |
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charlie Frequent Contributor Posts: 1392 |
posted 28 January 2001 14:14
....Just wanted to pull this up front to see if I could get a few more responses before I try to make some sense out of all this....Charlie IP: Logged |
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bettex Frequent Contributor Posts: 351 |
posted 28 January 2001 14:54
quote: Type of Lyme - Late stage , 13 yrs. not treated for first three - Neuro , with skin rashes and burning, brain fog and at times severe muscle spasms lots of twitching Co -infections -unknown at this time ABX 1500 amoxy w/ probenecid I was asymptomatic pretty much for six years. IP: Logged |
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xbankr Flash Member Posts: 30 |
posted 28 January 2001 15:02
Type: You name it, I've had it!!Muscle /joint... heart... Nervous system... rashes swollen glands.... Co Infections: 2types of Ehrlichiosis tested neg to Babesiosis but have the symptoms Doxy 200 mg did wonders for me. Pain free within days. I am now on Doxy 400 mg and Biaxin combo and am feeling GREAT!! Lets do a supplement and anti viral poll next!! IP: Logged |
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rosespetal Frequent Contributor Posts: 1250 |
posted 28 January 2001 18:31
Just about all involvement, getting massaive problems now due to steriods late stage/arthritis, neck/head pain, tinglies, bladder probs, exhausted, anxiety, heart probs, u guys know lol ANTIBIOTICS 3 weeks amox 500mg, massaive herx 2 mos later 3 weeks 1,000mg ceftin ALLERGIC weaned onto 500mg Zith for 6 mos, 4 mos major improvement stayed on 2 extra mos, never got rid of arthritis (now I am suffering BIGTIME) allergic to everything-anaphlaxis- worst of the symptoms back CO-Infections-never tested I am looking forward to an antibiotic I am not allergic to and must wait for further testing then be desensitized until then, I am 'coping' CEFTIN- wasnt worth much, but ipinefrine and sterods (cringe) helped get rid of the allergic response! IP: Logged |
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dclyme Frequent Contributor Posts: 174 |
posted 01 February 2001 12:26
Type of lyme: chronic, mostly neurological, some joint pain, headaches, gastrointestinal problems etc. Co-Infections:borderline for babesia Antibiotics used: Spectacular:havent found it yet! VeryGOOD:nope! Good: Biaxin,1000mgs. three months but my doctor took me off it just as i was feeling normal. Doxy 400 mgs approx 11 months, helped at first, but the seemed to plateau. Useful:Tetracycline. I fount this helpful b/c i started taking it before i was diagnosed and it was all i had so i was basically self medicating. It stopped the quick progression i had over three montyhs of more and worse symptoms. thats what made me really believe maybe i really did have lyme. Everything I have been on has imrpoved somewhat my symptoms, made them less but im still looking for something that will erradicate them, especially the neurological ones. I am also on Zoloft 75mgs since aug 2000 and i found that to be a life saver. really helped me and made me feel better, like a human being again. IP: Logged |
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Chzpoofs unregistered |
posted 01 February 2001 14:58
Just got prescription of Flagyl to take with Biaxin and Plaquinil. I pray it works since my lower back pain is horrible. Form what I hear, there are severe Herx reactions from the Flagyl...Lord help us all 
IP: Logged |
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lyme? Frequent Contributor Posts: 33 |
posted 08 April 2001 18:41
Good poll. Mostly neuro sx's:headache, abn.speech 7 months to diagnosis. pos. babesia Doxy helped for 4wks then plateau. rocephin also helped alot to clear neuro sx's Just started mepron/zithr for babs. Overall about 75% better after 3 months total treatment. IP: Logged |
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charlie Frequent Contributor Posts: 1392 |
posted 08 April 2001 18:51
Thanks for pulling this up. Lyme? Maybe some of the newcomers can respond or get something out of it. I haven't found much that correlates, and dosages would for sure be a factor, but it does show that one size doesn't fit all and the low doses of doxy theory as the preferred first line of treatment doesn't hold up at all under scrutiny. Charlie IP: Logged |
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bridetobe unregistered |
posted 08 April 2001 23:27
Type: Lyme Disease...arthritic,mostly neurological problems Co-infection: Unknown at this time 04/07/00: Started low 200 or 250 mg of Doxycycline. Somewhat useful. approx. June 00 increased dose of Doxycycline to 600 mg. good improvement especially with vertigo. Started feeling much better, now I could actually walk around. A couple of months later leveled off on doxy. Started Amoxicillian 500mg x 4, 3 x a day (6 grams a day). Steady improvement from summer of 2000 to current on Amoxicillian. All though improvement continues it is now slow at times. When I come off the amox. symptoms start to creap in. Trouble getting a rid of some of the neurological symptoms. Stared Zithromax around the Fall of 2000. It help a litte, but my body couldn't handle it. To many trips to the bathroom. Just start Flaygel 500 mg. once a day with my amoxicillian. Flaygel is great! I have some really great days. I actually feel some what normal again. I still flare, and let me tell you the first flare up on Flaygel was intense. I have never felt such pain, but once I got through that I started feeling a lot better. My mind doesn't feel as foggy. Dont get me wrong, I am still flaring and I am a long way from being cured. I still have really bad days, but nothing like before. At least now I have some really great days. I pulse the Flaygel and the amox. I do four days on and three days off. Its working well for me, but I still have neurological damage. Some days I am fine others I can't walk, stay awake or balance. Over all though I am having many more good days. IP: Logged |
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Lymetoo Frequent Contributor Posts: 16145 |
posted 08 April 2001 23:32
Lyme: Arthritic, CNS, late-stage//40 yrs untreated Where am I?? Oh, yeah--coinfection/babesiosis not tested for Ehrlichiosis Everything has made me herx. So I guess all are good [??] Flagyl may have helped some clindamycin/quinine for babs--headaches are better have tried Zithromax, Tetracycline, amoxi I think that's all so far - Tinidazole next IP: Logged |
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charlie Frequent Contributor Posts: 1392 |
posted 15 September 2001 17:25
....To the top for GiGi. IP: Logged |
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greg Frequent Contributor Posts: 721 |
posted 16 September 2001 11:59
TYPE..early disseminated lyme since may2001. with some cns crossovers..floaters,(almost gone) tingling in limbs, fog, heart palps (gone now) slurred speach (gone) COINFECTIONS.....none VERY GOOD..amoxicillian 3000mg..so far(only been on it for 2 weeks)this stuff is totally kicking some serious bug a$$..my floaters have stopped and i can tell there is a huge die off going on.. GOOD...doxy 500mg..but i always cheated and took 600mg..thats the kind of guy i am ..it started out working very well..and got rid of alot of my symptoms..then i seemed to plataeu on it .it was still working..but not as well after about 8 weeks..i sttill take both..am improving steadily IP: Logged |
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twoangie Frequent Contributor Posts: 1970 |
posted 16 September 2001 22:37
Lots of late stage stage stuff and some chronic encephalapathy Symtoms: CNS, Encephalitis, Vertigo, Neuropathy, Hyperacusis, Arthritis, bladder prblms, occasional facial tingling, dyslexia-both when reading and talking fast, hoarseness, breathing problems, psychiatric (hallucination and nightmares), headaches, fluid in ears, comprehension problems, chronic fatigue, extreme blood pressure swings, sweats, insomnia, low to no fever, etc. Superior: Nothing yet unless I'm ever totally CURED! Very good: Biaxin XL 1gram once a day. Have been on it since July 10. Slow improvement but worth it. I started doing very gentle but tough walks b/c I was so weak for 15 min in early August. Today, I was so excited, I walked for an hour!!! Still have fatigue flare ups but I try to fight through them but they can seriously reduce my walking time and distance because I am so tired. Also, have been having some new neuropathy, facial tingling (last three days) and headaches. This makes me determined to definitely NOT avoid doing my walks! I'm calling Dr. tomorrow to be put on additional antibiotic so I don't lose the ground I've gained. Possibly, Plaquenil. By the way, Acetazolamide (a diuretic not an antibiotic) 250mg one tablet two days and one day off is excellent to ease the vertigo and brain fog since it reduces some swelling off the old brain. Headaches aren't gone but it has probably been one of the most helpful of the drugs I have taken! IP: Logged |
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Wayne Scott Flash Member Posts: 1 |
posted 17 September 2001 12:39
Bitten: July 2000 Positive Western Blot, bullseye rash symptoms: eye focus problems, difficulty walking, foot pain, spine involvement, tingling arms and hands, leg aches. Co-infections: none anbx: 1) 6 weeks of 200 mgs doxy -- no effect. 2) 8 months of 1 gram ceftin -- immediate improvement which leveled off. 3) 3 months of 400mgs doxy and 1 gram ceftin -- immediate improvement. Lots of herxing all over, especially in brain. 4) 1 week ago I boosted the ceftin to 1500 mgs a day and added 3 grams of tinidazole (no doxy)--More herxing especially in legs and eye sockets (my only remaining symptoms). IP: Logged |
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Sarah Frequent Contributor Posts: 2641 |
posted 17 September 2001 13:18
*)!!! ********************************************* Type of Lyme; arthritic, neuro, cns, YES YES YES!!! fatigue, nausea, eye blurriness, gallbladder pain, joint pain and then massive neuro stuff which KEPT PROGRESSINg through orals for almosta year of them, progressive weakness on left side until I couldnt' rise without assistance, balance problems, falling, chorea in my left hand, bouts of convulsive vomiting, IBS, MCS, breathing problems, Reynaudes, RLS, voice slurring, bedridden co-infections Antibiotics used/Results IP: Logged |
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rhubarb Flash Member Posts: 8 |
posted 17 September 2001 13:29
symptoms: swolen lymph gland, EM, muscle ache, fever, severe continuous headache diagnosed after 1 week Co-infections: Don't know IP: Logged |
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Foggy Frequent Contributor Posts: 1411 |
posted 17 September 2001 21:46
What's the difference between Doxycycline and Tetracycline? If it's worthless for one person, does that mean it will be worthless for me, or is it subjective? IP: Logged |
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charlie Frequent Contributor Posts: 1392 |
posted 18 September 2001 00:52
...No it does not. treatment has to be tailored to the individual case. I started some trouble inadvertantly by saying that long term tetra didn't work for me. well, it doesn't work for everybody, or most, from my experience. It does for some. Doxy is derived from oxytetracycline(source: PDR). It doesn't work for everybody either, but at least you can take it with food and the dosing protocols aren't nearly as stringent. IMO bacteriocidals are FAR more effective. But whatever works is of course OK. Just don't let yourself get stuck in a hard and fast regimen that isn't working. Charlie IP: Logged |
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BRENDA2 Frequent Contributor Posts: 672 |
posted 18 September 2001 20:46
Late/Neuro Lyme Not tested for coinfections Fair: Doxycycline Excellent: Rocephin IV Very Good: Penicilling G IV IP: Logged |
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msgrudi Flash Member Posts: 6 |
posted 18 September 2001 22:56
Anyone know the difference between Doxcycline & Minocycline? Pros? Cons? I'm very new to all this. IP: Logged |
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Akula Frequent Contributor Posts: 108 |
posted 02 July 2002 22:08
*BUMP* Perhaps we can do this again with the new people Type : Lyme disease (clinically diagnosed) ------------------ Paul View my Aussie-related Lyme site. IP: Logged |
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