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Author
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Topic: Antibiotics Poll
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Ingeborg Frequent Contributor Posts: 86 From: Leiden/Noordwijk, the Netherlands Registered: Jan 2004
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posted 01 February 2004 15:06
Hello Lymies, To put this poll back to the top. Nic started with antibiotics almost two years ago. First he got a IV treatment for two or three weeks, I don't know axectly what it was. This makes him feel better for two days after it was finished. Not so long after that, his family doctor gives him doxycyclin 200 for three months, this didn't work a lot, but the symptoms didn't get worser either. Now he is on co-trimoxazol forte, 960mg, twice a day.He just uses it for two days now, so it's to early to say anything about it.------------------ It never was so dark, or it will be light. IP: Logged |
dontlikeliver Frequent Contributor Posts: 1324 From: Registered: Oct 2003
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posted 07 June 2004 11:14
Hi,As I have finally only just started my antibiotics, Doxy, one week ago, and am about to add Levaquin - I was interested in this and would like to bring it back to the top for other to add to or read. DLL One week Doxy, no problems except a bit of nausea. Feel pretty good, hard to tell if from the Doxy or my natural temporary improvements (usually followed by worsening again). DLL IP: Logged |
dontlikeliver Frequent Contributor Posts: 1324 From: Registered: Oct 2003
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posted 07 June 2004 11:15
I also noticed that a lot of the names on this poll don't seem to post here anymore - did they get well??? I hope so.DLL IP: Logged |
mcpucho Frequent Contributor Posts: 113 From: nyc Registered: Aug 2004
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posted 16 August 2004 19:39
back up. original poll parameters:abx used in descending order of effectiveness,spectacular, good, useful, poor, worthless. plus any comments. Sound like fun? Here goes Type: neuro Co-infections: possible babs. just started mepron (5 days) Antibiotics used & Results SPECTACULAR: (none yet...) VERY GOOD: Rocephin USEFUL: Biaxin WORTHLESS: low dose amoxy, low dose doxy, pennicilin vk, 1 month zithro haven't tried but interested later : minocycline, im bicillin, tidinazole IP: Logged |
mcpucho Frequent Contributor Posts: 113 From: nyc Registered: Aug 2004
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posted 16 August 2004 19:56
double post read below[This message has been edited by mcpucho (edited 18 August 2004).] IP: Logged |
Mathias Frequent Contributor Posts: 644 From: NJ, USA Registered: Feb 2004
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posted 16 August 2004 21:32
Type of Lyme: CNS Co-infections: M. fermentans (also in CNS) Antibiotics used/results SPECTACULAR: None so far VERY GOOD: Factive, Ketek, Cipro USEFUL: Doxy, Rocephin, Levaquin WORTHLESS: Mino, Zithro, Biaxin/PlaquenilThe jury is still out on Tetracyline. [This message has been edited by Mathias (edited 28 June 2005).] IP: Logged |
RECIPEGIRL Frequent Contributor Posts: 602 From: Burleson, Texas, USA Registered: Jul 2004
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posted 17 August 2004 01:03
up for other responsesIP: Logged |
mcpucho Frequent Contributor Posts: 113 From: nyc Registered: Aug 2004
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posted 18 August 2004 12:44
up againIP: Logged |
Areneli Frequent Contributor Posts: 572 From: Saskatoon, Saskatchewan, Canada Registered: Jan 2005
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posted 21 January 2005 12:35
Can we continue with this one?IP: Logged |
cmichaelo Frequent Contributor Posts: 550 From: NY Registered: Jul 2004
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posted 21 January 2005 13:00
Good idea, Areneli...let's continue. And maybe people could go back in an update their posts, since some posts are more than 4 years old!Type: neuro Co-infections: Maybe babesia Antibiotics used/Results SPECTACULAR: VERY GOOD: Minocycline (w/Plaquenil). USEFUL: Amoxicillin. Mepron (not an abx though). WORTHLESS: Doxy. Zithromax. Michael [This message has been edited by cmichaelo (edited 21 January 2005).] [This message has been edited by cmichaelo (edited 21 January 2005).] IP: Logged |
charlie Frequent Contributor Posts: 1392 From: Texas Registered: Oct 2000
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posted 02 May 2005 21:50
UP^ ^IP: Logged |
David95928 Frequent Contributor Posts: 1135 From: CA Registered: Jan 2003
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posted 02 May 2005 23:02
Charlie, good idea to push this up. It's been a while since I've updated. Not much has changed except that I continue to be pretty well and, it seems to me, still making GRADUAL improvement. For example, I've pretty much stopped having herx weeks. I ran out of Detox Tea and haven't bought more. I went to see my doctor and didn't have a list of concerns. Perhaps most important to me is that I seem to be continuing to have cognitive improvememnts twenty-seven months into treatment. Since I've only been on Bicillin and a macrolide,I can't offer any comparisons. However, other than taking medicine, I feel pretty normal. Over the last year I have been building a house and did the roof, wiring, plumbing, siding, exterior trim, and floor finishing myself. Drywall finishing, painting, and tiling remain to be done. To put this in perspective, when I started teatment, I couldn't turn door handle and was writing down where I had left my car so I could find it again. So, I think the Bicillin/macrolide (Bicillin LA 12.MU three times a week, Biaxin 500 mg. twice a day) combo is great if you are able to handle the needles and exercise patience. David
[This message has been edited by David95928 (edited 03 May 2005).] IP: Logged |
Lyme ED Frequent Contributor Posts: 736 From: Registered: Oct 2002
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posted 02 May 2005 23:58
I was wondering if everyone could list the doses they took/are taking for their most effective med combos. Dose makes a big difference ... it's not just which abx you take, but how much. So that would be really helpful for the rest of us to know. Thanks! IP: Logged |
treepatrol Frequent Contributor Posts: 5189 From: PA Where the Creeks are Red Registered: Jun 2003
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posted 03 May 2005 08:51
Add (((Ketek)))) too listIP: Logged |
HEATHERKISS Frequent Contributor Posts: 947 From: ABERDEEN, NJ 07747 Registered: Jan 2005
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posted 03 May 2005 10:01
TYPE OF LYME: Late Stage WORSE SX: seizures w/ loss of bladder control RX: BIAXIN XL 500 2x a day 1/10/05-2/10/05 I saw results the 5th week when many pains just disappeared. The pain in hands was such a relief.((tears of joy))RX #2: BIAXIN 500 2X / PLAQUENIL 200 2X 2/18/05-NOW getting smarter by the day, had a really good 2 1/2 wks where I $ worked a little too. RX #3: BIAXIN 500 3X / PLAQUENIL 200 2X / ARTEMINSININ 100 2X 5/3/05 - platuea RX #4 5/25/05 - ? MEPRON 1 TEASPOON 2X / BIAXIN 500 3X / PLAQUENIL 200 2X / ART 100 2X results will definately be posted!!! [This message has been edited by HEATHERKISS (edited 03 May 2005).] [This message has been edited by HEATHERKISS (edited 28 May 2005).] IP: Logged |
pippy Frequent Contributor Posts: 440 From: California Registered: Jul 2004
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posted 04 May 2005 21:01
Type of Lyme: CNS late stage. every symptom you can imagine. severe sleep probs, tremors, twitching, seizure-like stuff, heart stuff, balance, cognitive, baldder incontinence/IC, nausea vomiting, IBS, bells palsy, arthritis, muscle pain (excruciating), bruising, anemia, female probs/pain, highly positive on 8 bands of WB when finally tested. misdiagnosed for several years as FMS, CFS, MS, psychiatric/depression, mood problems, adult ADD etc..all oral abx so far, treated for 9 months so far...no positive for co-infections, suspected babesia SPECTACULAR: have not found it yet VERY GOOD: Zithromax 500mg/day(hit plateau recently)and doxy 400mg/day USEFUL: doxy, atrtemisinin 400mg/day WORTHLESS: I have responded to all these Am trying mepron soon and maybe bicillin IM IP: Logged |
groovy2 Frequent Contributor Posts: 353 From: Austin tx USA Registered: Oct 2004
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posted 11 May 2005 02:23
I thought this was a good thread to bring up again. --Jay--IP: Logged |
Corgilla Frequent Contributor Posts: 495 From: PA Registered: Jun 2003
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posted 11 May 2005 11:23
Type of Lyme: CNS late stage Worst Symptom: Depression, female problems, fatigue Coinfections: mycoplasma pneuminae, mycoplasma fermentins, Ehrlichia Chafeensis, Babesia Microti, Bartonella Henselae SPECTACULAR: Cholestyramine 4 gms qid; Mepron 3 tsp per day/Zithromax 600mg per day/Artaminsinin 100mg tid; Ketek 500 mg bid (?) until heart trouble VERY GOOD: Biaxin XL 500mg bid/Tetracycline 500 mg tid combo (don't know why) USEFUL: Biaxin (not XL) 500mg tid; tetracycline 500mg qid; levaquin (don't remember dose-10 days for sinus) WORTHLESS: doxy, plaquenil, ceftin, IP: Logged |
groovy2 Frequent Contributor Posts: 353 From: Austin tx USA Registered: Oct 2004
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posted 11 May 2005 20:24
up--JayIP: Logged |
HEATHERKISS Frequent Contributor Posts: 947 From: ABERDEEN, NJ 07747 Registered: Jan 2005
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posted 24 May 2005 22:16
upIP: Logged |
HEATHERKISS Frequent Contributor Posts: 947 From: ABERDEEN, NJ 07747 Registered: Jan 2005
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posted 28 May 2005 11:52
up again..... changing my post
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KeyLymePie Frequent Contributor Posts: 43 From: New York, NY Registered: Jun 2005
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posted 25 June 2005 07:47
more responses maybe?
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dafje Frequent Contributor Posts: 178 From: the Netherlands Registered: Mar 2005
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posted 25 June 2005 08:14
I don't really know if I have the artritis or neuro kind of Lyme.As for antibiotics I've only had two weeks of 200mg doxy. It's been a couple of years but as I recall it didn't do anything. My fever and EM were already gone and I don't think I noticed a difference in my symptoms. They vary by the week anyway so I wouldn't know. Other precsriptions I've had for Lyme (before or after they knew it was Lyme): morphine, codeine, prozac, prednison, valium, aspirine, naproxen and some other pain killers and antidepressants, don't remember all the names. Also of course cream for the EM - and the advise to rub peppers on my fingers, because obviously noone gets weird spots like that without inflicting them on purpose on them selves Alternative dr.s have given me (among other things) salt tablets, fish oil, spirulina (or something like that) and, yes really, pills that are supposed to treat ebola virus. According to the homeopath I had ebola virus. I haven't taken them as I think it's pure rubbish to suggest someone who's never been outside europe would have ebola, let alone have it for years and not die. I still have them, great party trick to show pills that say "ebola virus" on the package. IP: Logged |
jewel320 Flash Member Posts: 6 From: Bethlehem, P.A., USA Registered: Jun 2005
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posted 28 June 2005 20:48
hi my daughter is 2 1/2 and was recently bitten and has early lyme. she had the em rash and fever along with irritability.her dr. put her on amox. 500mg./a day. for 3 weeks. does that seem like enuf? her rash went away within 2 days and she seems to be getting less cranky and stuff. i read alot of things about lyme on this site. some of them scare me...and some things are very useful and soothing. responses welcome!!! chow IP: Logged |
trueblue Frequent Contributor Posts: 407 From: somewhere other than here Registered: May 2005
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posted 28 June 2005 21:02
quote: Originally posted by jewel320: hi my daughter is 2 1/2 and was recently bitten and has early lyme. she had the em rash and fever along with irritability.her dr. put her on amox. 500mg./a day. for 3 weeks. does that seem like enuf? her rash went away within 2 days and she seems to be getting less cranky and stuff. i read alot of things about lyme on this site. some of them scare me...and some things are very useful and soothing. responses welcome!!! chow
Hi jewel, Sorry, I don't know.  I have a suggestion though. Start a new topic with this information in it. That way you can put a title in so people will see it and answer. You can also check the box for email responses at the bottom of the posting form. Then you'll be notified when people respond. (If you want to be.)
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