posted 02 January 2004 08:29            

It's a jungle out there kiddies...

Have a very fruitful day!

posted 01 May 2004 16:15               

I know this is from an old post, but can you tell me where specifically you got the following quote for your aricle:

"Biopsies of lymph nodes reveal pathology often indistinguishable from sarcoidosis".

I had a groin lymphnode biopsied and they said it was suspicious for sarcoidosis. My symptoms seem more like lyme though and I did have a tick bite. So I am thinkng I have lyme/ Bartonella rather than sarcodosis.

Would be great if you could give me the citaton for that quote so I could pass it along to my doc.

posted 01 May 2004 19:57               

In the meantime, if you the diagnosis of sarcoidosis was ever suggested to you, then you might be interested in looking at all of the recent topics posted by Free2Reckon about Trevor Marshall's work with the use of Benicar (Rx) for sarcoidosis.

Since you're new to LymeNet, you might not know that the list of topics goes on and on and on. There are little numbers at the bottom of each page of topic headlines. Click on one of those numbers to go on to another page of topic headlines. Some of these topics about Benicar, etc. are already on page 2 of the topic headings in the Medical Forum.

posted 01 May 2004 21:54               

So I finally remembered I had a tick bite and ended up thinking I have lyme. Maybe they are related or one in the same. But still the suggested treatments are different and I don't know which treatment to do. I have started Lyme treatment and then this Sarcoid connection showed up here on Lymenet......so now I am really confused.

What is your interest in granuloma? Do you have one?

posted 10 August 2004 00:44               

quote:

---

Originally posted by Tincup:
Just finished this rough draft.. and am SOOOO tired of looking at it.. I could use an Editor...

Anyone? THANKS! It has to be a ONE page handout.. so I can't add more unless I take out stuff...

BARTONELLA ALERT

It is well known that co-infections may occur with Lyme Disease relatively frequently. Patients with a
history of Lyme Disease who have incomplete resolution of symptoms should be evaluated for Bartonella
infections. Bartonella is an intracellular, gram-negative bacteria that can become chronic. Certain lab tests
may not detect the infection due to a variety of strains and the lack of sensitivity of the tests. It is advised to
use both PCR and IFA methods of testing and not to dismiss the disease due to negative tests when
symptoms are present. Various Bartonella species have been recognized since the early 1950’s.

Bartonella may not present in its usual form when additional infections, such as Lyme or Babesia are
present. In addition, typical Bartonella lesions are not always seen in patients, therefore, a diagnosis of
“fever of unknown origin” should alert a physician to consider Bartonella. It is estimated that approximately
2/3 of the patients with Bartonella have a fever. Involvement of practically every organ has been reported.

There are a variety of symptoms associated with Bartonella, including, but not limited to, the following:

GENERAL: Fatigue, Restlessness, Combative behavior, Myalgias, Malaise, Liver and/or Spleen
involvement, Abdominal pain, Infectious Mononucleosis-like Syndrome, Granulomatous Hepatitis

BRAIN: Encephalopathy may occur 1-6 weeks after the initial infection and is fairly common in patients
with Bartonella. Note: Approximately 50 percent of patients who develop Encephalopathy can be affected
by seizures (from focal to generalized, and from brief and self-limited to status epilepticus). Headaches,
Cognitive Dysfunction, and CNS Lesions may be evident.

RASH AND LYMPHADENITIS: Erythematous papules (red splotches or slightly raised red spots) may
develop. Such papules occasionally occur on the lower limbs but are more common on the upper limbs, the
head, and neck. The papules may appear on the skin or mucous membranes. Bartonella may also cause
subcutaneous nodules, with some bone involvement possible. The nodules may show some
hyperpigmentation, be tender, fester, and/or be enlarged or swollen, but not always.

EYES: Conjunctivitis, Bartonella Neuroretinitis, Loss of Vision, Flame Shaped Hemorrhages, Branch
Retinal Artery Occlusion with Vision Loss, Cotton Wool Exudates, Parinaud’s Oculoglandular Syndrome,
and Papilledema.

BONES AND MUSCLES: Osteomyelitis, Myositis, Osteolytic Lesions (softening of bone), Myelitis,
Radiculitis, Transverse Myelitis, Arthritis, Chronic Demyelinating Polyneuropathy.

HEART: Endocarditis, Cardiomegaly.
Possible lab findings: The following may show up during standard testing:

Thrombocytopenia, pancytopenia, anemia, elevated serum alkaline phosphatase level, elevated bilirubin, abnormal liver enzymes.
X-ray of the bone may show areas of lysis or poorly-defined areas of cortical destruction with periosteal
reaction. Cardiomegaly may show up on a chest X-Ray.

Biopsies of lymph nodes reveal pathology often indistinguishable from sarcoidosis. Reports of biopsies
strongly suggestive of lymphoma do occur.

Tests occasionally show an enlarged liver with multiple hypodense areas scattered throughout the
parenchyma.

TREATMENT: You MUST consult a knowledgeable physician for information on treatment for
disseminated Bartonella. Some of the medications which have been used in the past have included
Doxycycline (with or without Rifampin), Ciprofloxacin, Erythromycin, Azithromycin,
trimethoprim-sulphamethoxazole, gentamicin, and other macrolide antibiotics.

---

posted 10 August 2004 12:20            

My daughter has what looks like stretch marks all over her body (poor kid!) in very unlikely places for stretch marks.

Could this be the rash from Bartonella. She tested positive for Bartonella.

Anybody know how to get rid of them?

posted 22 August 2005 22:20            

I also saw a reference (oh heck, I forget which report) that bartonella can cause *aseptic* menengitis. That would be menengitis without a lot of white blood cells.