posted 04 January 2004 12:07               

So, I’ve compiled a few stories of successes and improvements found in the archives.

Thank you to each of the contributors…

Your words of inspiration are more valuable than you could ever know.

Please feel free to add your own stories, so that we all may hold on to hope through our own journeys.

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C O L O R A D O * S U P P O R T * S Y S T E M
melanie@beachlovers.net

posted 04 January 2004 12:16               

Please let me know, and I will remove or edit as you so desire.

Thanks, M

posted 04 January 2004 12:30               

Nice job. Hooray.

posted 04 January 2004 12:40               

Ya know...that was my first inclination...
and to tell ya the truth, it would have been a whole lot easier! Live and learn!

I will probably recopy later...after I infuse, and after my head and eyes stop hurting, OK?

But...
can't think of a better way to spend a Sunday! NEW YEAR...NEW HOPE!!!

I am also certain that there are many other success stories hidden in the search mode...
so, that will be my next direction as well.

(These stories were all still accessible on the current pages.)

Thanks,
M

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
melanie@beachlovers.net

posted 04 January 2004 14:09               

posted 04 January 2004 10:17

AGuess,
You asked whether people can get better and others have assured you that this is often the case.

For the sake of an example, I'll give you a rundown on what has occurred with me over the last year. My infection occurred in 1991, at the latest, and I've never been completely incapacitated. So, our situations may be somewhat comparable.

Lyme Disease symptom status as of December 2003
Objective improvements since starting antibiotics January 2002 (Observed by others)

1. Respiratory
a.No respiratory infections in twelve months
b.Stopped snoring
c.No “asthma” symptoms (have used no inhalers)
d.No “air hunger”

2. Cognitive
a.Improved speech, word substitutions reduced.
b.Disorientation resolved
c.Short-term memory problems resolved
d.Train of thought resolved

3. Neurological
a.Vertigo only when herxing
b.Facial twitching is very rare
c.Tingling and numbness in hands is gone
d.Excessive perspiration not a problem unless herxing

4.Dermatological
a.No angular stomatitis or aphthous ulcers in last 4-5 months
b.Facial flushing gone except when herxing

5. Neuropsychiatric
a.Exaggerated sense of poignancy (choking up over nothing) dramatically reduced
b.Irritability dramatically reduced

6. Urogenital
a.Am consistently able to go though most of the night without needing to urinate
b.PSA dropped from 2.6 to 1.4
c.Starting urination is MUCH easier and faster

Subjective improvements

1. Muscoskeletal
a.No arthralgias except when herxing
b.Tendon pain absent except when exerting myself or herxing

2. Neurological
a.Visual contrast sensitivity is no longer an issue
b.Depth perception seems improved
c.Vision has improved (hard to describe)

General Effects

1.Have not been ill in a year
2.Often feel like I did before 1991
3.Have returned to being a confident driver
4.Doing my work isn’t a struggle
5.I’m able to do physical work and enjoy it
6.I’m not in constant pain

My progress has been satisfying but may not be typical. I've taken Bicillin (Benzathine Penicillin G) 1.2 MU by injection three times a week and Biaxin 500 mg. twice a day. I take other things still to help with certain symptoms but, basically, am not much affected in terms of what I can do.

Good luck with this. BTW, you may find that the "RA" is actually Lyme.

David

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:10               

posted 01 January 2004 11:53

This is a bit personal.......but what the heck. For those of you who have know me on this board for 2 years and for the ones I have gotten treatment with and have been able to meet, mostly know my history for those that dont, i hope you learn something.......I have had a serious condition other than lyme since i was 18 that has affected my endocrine system in a devastating way.

I have had amenorhea since 98.....in 2001 diagnosed with osteopenia at 21. tHis also developed into low thyroid and extreme adrenal fatigue. My heart sank. 2 months ago when i got my hormone test the lab said i had third stage adrenal exhaustion and at 23 my body was aging rapidly and my bones were possibley at stake.

I was also bit by a tick and contracted lyme disease in July of 2001 and diagonsed with mercury and lead amongst other toxic metals in december of 2002 to lead to my body being in a paulsal state if you will.

After a year of going through heavy metal chelation with neural therapy which i feel has saved my life and that im still undergoing, treating lyme disease with various ways (and I mean various) and only a month into my adrenal protocol set by my ART physician........I finally got my period.

I feel with this recent gift on New Years Day
I am so blessed. As you know you become humbled by this disease and every good day is like a glass of cold water when you have given and spent and given waiting for results that might give you a clue that youre on the right track.......and that this is for something.....to restore total health and get your life back.

In college i was running approx. 70 miles a week, and one week out of the blue i became so dangerously exhausted that my mother had to help dress me, feed me, bath me, and sleep with me at nights. I could barely hold my head up to eat a bowl of oatmeal which i was probley allergic too. all i remember is being so tired and waking up all the time hungry to eat, and go back to sleep andi did this for close to a year.

I am a firm believer in excercise and if it were all icould do to walk to the mail box and back for 5 minutes its what i did. Now im biking and walking about 45 minutes on a very good day but i never miss. I have come a long way since then. Im not out of the woods yet, by any means.

But i think this is SIGNIFICANT for me, not to mention extremely healthy that im getting results this quickly. I never imagined this.

Most people would say my life has quality now.......but not even comparable to the person i was. I can spend time with friends and family, walk around the mall.......go to movies and Im taking classes part time this semester. But I still have tired days......but there is no doubt in my mind im gonna get there and achieve totall optimal health.

and i wont ever give up. and by the way, this recent turn around for me was done by all natural means. I have been off abx since March 2002.

Runner

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:11               

posted 03 January 2004 13:19

Hi Cbb,
Thanks for posting...I knew you'd be the first one to post a reply Thanks for your constant support and kindness..it is greatly appreciated!

Yes, Dr.J is a saint. The children have unofficially adopted him as their grandfather.

Mikayla who is usually shy around unfamiliar men, spent most of the visit in his lap. And as we were pulling out of the parking lot getting ready to leave, we had to pull in again..as she forgot to give "Her Dr.J" a kiss and wish him a Merry Christmas.

So back in we go, and Dr.J got his kiss and so did all the girls if the office. I think she made a lasting impression on them
I told Derek that you were proud of him for his spelling tests..and he said he'll try real hard to make it 11 100% in a row!
It's so nice to see him enjoying learning again.

While most kids watched Nickelodeon, he would rather watch the History or Discovery channel. He always loved learning and I was afraid lyme may have taken that from him.
I didn't need to worry... lol!

While we were in the pool at our motel in Florida he carried on a conversation with an older gentleman about famous composers..Mozart, Tchaikovsky, and Bach to name a few.

He went on to tell him that he liked the works of Vincent Van Gough. And that he found Archimedes very interesting. They talked about architecture, the space program and Derek even gave him the names of some famous people who were homeschooled.

I just sat here in awe...was this the same little boy who 3 months ago was having trouble remembering what he just read?
And I think that was the moment that I realized, just how far Derek has come these past 3 months.

He looks healthier, he acts healthier, and even when he has a bad day, he smiles as he knows a good day is just around the corner.
So I am looking forward to a wonderful new year, and hope that next year, I will be posting that both children are lyme free..wouldn't that be great!

Best wishes! And thanks for always being there

Hugs,
Missy

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:12               

posted 31 December 2003 11:22

It has been almost a year to the day that I found this site and shortly thereafter found help for my illness with Dr. J in NC. I want to say thank you to all of you who responded to my early desperate posts and to those who continue to help folks new to LD and this forum.

In early November I was retested with the new urine tests and WB and had an MRI. All tests came back negative. I decided to take a leap and go off all meds, with support of my doctor, even though I was still experiencing some ongoing symptoms.

I have spent the last two months trying to build back a healthy immune system and have been seeing a chiropractor. I feel great. I sleep at night, I don't feel fatigue, my arm and leg do not bother me on a daily basis and when they do I go for an adjustment and then feel much better. I'm happy and have a sex drive again!

I'm sharing this with you because while I was sick it helped to give me hope when I would read good news. I hope this message gives some of you hope for wellness in 2004. It is possible!

I do know that it is possible for relapse, but I'm going to do everthing I can to use alternative therapies to prevent going back on antibiotics.

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:14               

posted 28 December 2003 20:43

Just wanted to let anyone out there know that I'm doing well, not 100% but at least 80%(only Lymies talk in percents as to how well they are doing).

Tomorrow I will finally get to try my own rife type machine emem5. I tried a freinds and seemed to have good results. I've been on abx for 16 months and I think they are begining to lose thier efficacy? I currently use samento, artemesin, B12, oregano oil, and some other supplements.

I still have floaters in my eyes, heart irregularities, pain and of course the ever present Fatigue. I explain it to my freinds that if they felt like I do everyday they would stay in bed and never get up.

I'm able to ride my bike swim and ski again. I don't know what I would have done without the ability to do these things exercise and everyone one this page lead me to be able to figure out how to wage the ongoing battle that is lyme disease.

One year ago at this time I didn't think that I would be on this planet for much longer but things did get better, not great but I'm thankful for the secong chance and will try not to waste it. Thanks to everyone for sharing all that they have learned. Jack

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:15               

posted 08 December 2002 15:12

Okay.... Getting back to the topic of success stories,

I'd like to share a couple with you.

My neighbor, knowing I have Lyme disease, came to me this summer with a suspicious mark on his leg.

He had pulled a tick off the area 2 days prior. I took one look at it, and sent him to walk in care.

There he was treated with an injection of antibiotics, and put on 6 weeks Doxy.
He had very few symptoms during this time, and is now lyme free.

---------------------------------------------
I have another friend who after 3 years of IV treatment, and short term orals, was put on 6 months of Biaxin, Plaquenel & Tetracycline.

He has been off antibiotics for over 6 months, and hasn't had any Lyme symptoms reappear.

So there is hope!!!

~ Missy

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:16               

posted 09 December 2002 17:54

I am a TRUE lyme success story after being in Stage 3 (if you truly want to categorize lyme) of this horrible disease.

I was bit many times over my 45 yrs. but the one that put me 'over the top' was the summer of 1996 while visiting Allaire State Park in NJ. (ANY state park in NJ is lyme infested!!!). I noticed ticks crawling up my leg the next day and one embedded in the back of my right hand. I called my Dr. and said "wait til you get a rash"...never did.

I had a weird sx at 1st, my lg. right toe was in agony like I broke it...but never even hit it. Went to 4 drs., was told I bruised it, broke it, sprained it and and I had gout!!!

Fast forward 2yrs.--became VERY sick, severe migraines, sinus infections, was losing my mental clarity and I was a mess. I was raising 6 kids, husband was dxd with lyme FINALLY after various dx of Graves disease, possible MS, TIAs, etc. and 6 mos later I was confirmed (only had #41 on WB from Igenex). I have an EXCELLENT LLMD!!!!

I was sooooo sick, couldn't function at all, couldn't drive cuz I drove thru red lights, wrote 1975 on all my cks, severe migraines, light/noise sensitivity, anger outbursts, finally paralyzed from the neck down. AT the same time....each of my 6 kids were dxd with lyme!!!! YIKES!!! (youngest is now 7)

I did 3 1/2 yrs. of abx, alternative, all kinds of crazy things and now I have been in remission for 8mos. or so. Am I DONE with lyme?? NO, nobody is ever done. I tested positive and was treated for lyme, babesia, ehrlichia, bartonella, mycoplasma, HHV-6 and Epstein Barr. I will warn you!!!

I have seen now time and time again (self included) that the babesia tests are coming back neg and people DO HAVE babesia~!!! How do you know??
Night sweats, chills, fevers, shortness of breath, pain in your heart area, upset stomach/can't eat.

One also HAS to be tested for all the co-infections and treated usually for a MINIMUM of 6 mos. each, for each one. You hear over and over how someone has been doing yrs. of abx and showing no real improvement. That is because you have not attacked the WHOLE issue.

I also know about rife, hyperbaric O2, colloidal silver/seasilver, all kinds of txs.
I am now in the natural health care profession and if anyone would like to learn more, plz write me. (lymehope@aol.com
or suemassie45@aol.com)

I have helped well over 7,000 in the past 7yrs. and this is my contribution to the lyme community. I have been and will continue to be dedicated to this. I have been to the political rallies, conferences, fighting the OPMC, etc. and will continue even though I could walk away.

sue in nj
sue massie

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:18               

posted 10 December 2002 22:19

Well I'm here to bring it back "on message"-
but most of all of you have heard my success story already-
I don't know if I'm not flogging this one to bits, but once more with feeling:

As short as I can mke it-
excellent health pre-bite, never sick, very active life
get good EM bullseye within 1 week of exposure to ticks
on low dose ABX right away
discover LymeNet, ask for more ABX when still sick after 3 weeks
good family doc gives me more ABX, says find a Lyme specialist
get sicker and sicker- scary neuro's have me stammering, staggering, and slurring when I'm not sleeping
see parade of idiot ducs-
implication: I am nuts
find hero LLMD, get Mepron
brain fog starts to lift. I can see, read, drive, and think again.

find hero wholistic doctor (accupuncture, chiro, and a whole butt load of stuff. And the 2 doctors are totally OK with my truly complementary therapy!)
Godd days add up.
Good days outnumber bad.
Bad days seem like bad dream.
Coming back to my life with a vengeance.
Feel like I just got back from a very bad vacation.

And is my desk messy!

My Lyme adventure began May 2, 2002.
I went through some terrifying times.
But by October, my calendar was again being used as an appt book, not a symptom diary.
I personally believe I am not 100% free of the bad boy microbes yet, and I am still on radical wholistic therapy to support my immune system.

But my life is back.

Yo Lou, I am SO looking forward to having a place to record my story of my Lyme adventure- it's a story with a moral-
Don't mess around- find a LLMD. No buts.
And do what you have to do for immune support!

I hope I haven't strained the hospitality here with one more rendition,
but at any rate, it's bringing the topic back up to the top!

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:20               

posted 12 December 2002 22:49

Semper Fi,
Sorry if this isn't the "Reader's Digest" version.

My "Lyme journey" is very similar to other stories you have read or heard. I was infected some time in the mid 80's.

Actually remember picking the tick off my back and being amazed at how tiny it was and what a big welt it left. I had never heard of LD so I never did go to a doctor. I kept an eye on the bite to make sure is didn't get infected and it didn't. Case closed. Or so I thought.

Through the years, I had bouts of stiff necks, sore joints, etc. Tylenol made the pain go away. So again, I did not see a doctor. After all, why see a doctor for only a stiff neck?

These symptoms progressed to panic attacks, heart palpitations, and numbness in my jaw in down one side of my body. The panic attacks were so severe they very nearly made me housebound. I could barely drive my car one mile to the bank but I refused to give in to this and continued driving. If I drove 50 feet with no panic attack, I considered it a victory in my favor. It took years to get my driving confidence back.

Now I finally went to the doctor who diagnosed me with mitral valve prolapse. I went on beta blockers and nothing helped my symptoms. My panic attacks kept getting worse. I went through 6 different prescriptions and none of them made the palpitations and panic go away.

The palpications were so severe at times, they would made my body lurch. I quit my job because I was no longer able to make the drive to work or stay awake.

My doctor was getting frustrated. As a last resort I was asked if I was ever bitten by a tick. I asked him, "what the hell kind of question is that...I live in Ocean County, NJ...of course I've been bitten by ticks!"

Then I remembered the bite I had described earlier and told the doctor about it. His jaw dropped, then he polled me on some of the symptoms on Burrascano's list and I said yes to about 75% of them. I was then told I most likely had Lyme Disease and he apologized profusely for not asking me about tick bites sooner.

They had seen several patients in the office with symptoms similar to mine who had Lyme, so he felt good about the clinical diagnosis (this was 1988). He had some blood drawn and gave me a prescription for doxycycline - 200 mg / day. Remember this was the late 80's and they weren't prescribing dosages higher than that back then.

Within 48 hours of taking my first dose, my symptoms disappeared. They returned a few days later, but at least we knew what we were dealing with. The test results showed borderline Lyme.

I could not tolerate the doxy too well. It made me nauseaous. But even that was preferable to how lousy I had been feeling. Can you imagine that? I was willing to put up with being nauseous! I was switched to Ceftin after a followup visit. It wasn't doing much for my neuro symptoms. The doctor recommended IV Rocephin. I did 3 weeks of that and felt pretty good. I went back on Ceftin after I finished the 3-week course. My neuro symptoms returned. They tried me on Claforan. I lasted with that for about 10 days when I broke out in hives.

I had to continue with oral antibiotics through all that but I don't recall what I was on. After that the antibiotic trail gets a little fuzzy in my memory, but these are the drugs I have taken: Roxithromycin (Rulid), Suprax, Zithromax. High doses of these expensive medications helped my life return to normal somewhat. (I did return to work, BTW)

The yeast infections were horrendous. Diflucan came out too late in the game and the acidophilus caps at the time just weren't cutting it.

Prior to my recovery with the shots (you can check that story out of page 1 of this thread) I had been pulsing Zithromax. My schedule was 3 weeks on and 1 week off. It was during the 1 week off that I got those shots from the military.

During my whole ordeal I tried anything and everything I could to help my immune system: castor oil packs, saunas, hot baths, different herbal concoctions, etc. I also consulted a homeopath. I did meditation, read motivational books, etc. Basically I changed my whole way of thinking: instead of concentrating on what was wrong with my life, I focused on what was right.

I got reinfected at least two more times after I had gone off the antibiotics, but these infections never took hold. My body seemed to handle them with the treatment protocol by my LLMD: a shot of Rocephin in the butt followed by 28 days of Zithromax.
My LLMD, through the years has really gotten up to speed on taking supplements and these have also helped tremendously.

As a matter of fact, I'm completely off beta blockers now for the mitral valve prolapse and am controlling it with magnesium.

Well, if you have gotten this far in my sordid tale of my Lyme ordeal, you have a longer attention span than I do.

Like I said, it CAN be beaten!
Linda

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:21               

posted 14 December 2003 19:41

My husband and I have been treated for lyme for the past 6 months. He was tested after my Igenex test came back positive. Although his symptoms were never as severe as mine-he too test positive and started treatment.

After 6 months of doing Monastery of Herbs, and several things to detox, his tests have all come back negative as of this week. (He did not have any issues with mercury however)

This is great news as I feel one step closer to recovering. I am doing a bit more that he had to do but am hopeful.

Our LLDM uses ART testing, but upon our request also rechecks through blood work. We just want to double check every step of the way.

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:22               

posted 09 December 2003

My 23 year old son is actually cleaning his room! Because he wants to. So he can exercise!

This is a kid who has never in his life voluntarily cleaned his room, and who is allergic to exercise.

He's been depressed and angry for years, but two months on abx is starting to change his life.

He's telling me that his ability to think and care about things is coming back to him. He had just assumed that the depression was part of who he was, and doctors had always agreed. Antidepressants never helped.

He dropped out of a presigious college because he was "bored", but now he realizes he had lost his ability to concentrate and process new information, and the boredom was a protection against facing that.

He's starting to think about going to college again, and what he wants to do with the rest of his life.

I am so grateful to cave76, who informed me about Lyme disease, and initiated our treatment. I never could have imagined such a simple thing as antibiotics could have the ability to transform my son's life.

Now I'm waiting in line for the next miracle.

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:23               

posted 30 December 2003 21:15

My daughter relapsed from lyme disease recently, she was bit in 1999 and was late-stage, seronegative (until recently). She was finally treated in 2001 and eventually became symptom free. I thought (hoped) we won the battle.

She has been dealing with psychiatric problems all year which was diagnosed as post traumatic stress disorder from abuse by her deceased father. She did have this before being bit, so I accepted the diagnosis. She went to the psychiatric hospital twice this fall and even had hallucinations and was self-mutilating. I wondered if it could all be lyme but didn't push it because there were no other physical signs.

Well, after being released the second time her lyme symtpoms returned. We only went to the LLMD Dec 18 and as of today she is so much better!! She herx'ed right away but as of today the "irritable bowel" is gone, headaches gone, her depression and energy level is way better and she's actually been horseplaying with her brother all night.

It's only been 2 weeks! Of course the lyme pain still comes and knees are sore but it's so nice to see improvement both physically and mentally. The first time it took 8 months and major herxing for her to get well, it looks like this time it will go quicker.

At our LLMD's office I read the good-housekeeping article that came out about the girl with psychiatric problems that really had lyme and wonder how bad it would have gotten if I didn't know to take her to a LLMD. I worry how many other kids dealing with psychiatric problems really just have lyme. How will their parents ever know??

They tried to hard to diagnose my daughter with a "conversion disorder" after she got bit. I am so sure this happens to other kids.

I wish we had all the answers to this horrible illness. I hope and pray that someday the answers will come.

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:23              

thanks so much for posting these - I do think that these stories are crucial for newbies and those of us who arent so new!!

As usual you have gone out of your way to supply us with awesome information and I thank you so much!!

posted 04 January 2004 14:24               

posted 11 October 2003 10:29

Good Morning everyone!

It is so nice to finally write that and really mean it!

Just thought I would share a little good news for a change of pace. It’s been almost 5 weeks on IV Rocephin now, and I have to say that I am feeling better than I have in 10 months.

My symptom list has dwindled down to just a few now and I am starting to believe that there must be an end in sight again!

I’ve been able to drop the Rx Zonegran for my constant headaches, and have put the Tei Fu lotion and heating pad away on a shelf!
Oh, and the frozen bag of broccoli that once was my constant summer companion for my head has been cooked up…and I enjoyed every bite.

The extreme fatigue has let up also and now I am awake more hours during the day than asleep. My sandman has become nocturnal as expected once again.

After 15 ½ years of being infected and 7 months of treatment…I just want to pass on some hope to those of you who are feeling like there is very little.

Yes, I still have a long way to go, but now I KNOW without reservation that I will get there!

My sincerest appreciation to those of you who have offered wisdom, support, comfort, and love along this road to wellness. Each one of you has helped more than I could ever express.

Melanie

------------------
C O L O R A D O * S U P P O R T * S Y S T E M
melanie@beachlovers.net

[This message has been edited by Melanie Reber (edited 04 January 2004).]

posted 04 January 2004 14:57               

This is just what we need to start the New Year -- HOPE -- Thank you a million times over for posting these wonderful success stories.

And, Melanie, congratulations, on your very own success story! I can see a Lyme-free future, and it's looking brighter and brighter!

Hugs,

posted 04 January 2004 15:37               

posted 30 September 2002 18:22

Yes, yes, yes....my son and I just returned from our appointment with our LLMD. My son, who has always had problems gaining weight and muscle, has gained 16 lbs. mostly muscle, since the end of May, and has zero symptoms of Lyme after only eight months on the antibiotics.

I have also made tremendous progress in only one year. Dr. suggest we maybe getting off antibiotics within the up coming year. No we will not be cured....the bacteria probably will never leave our bodies, however we can live in harmony with one another. Of course, we will have to use common sense in our lifestyle choices....and continue on a healthy diet, with vitamin supplementation and exercise a daily concern.

Also, a positive attitude and trying to find something funny in your life everyday helps.

SandiB

posted 04 January 2004 15:38               

posted 30 September 2002 20:38

I'm better! As SandiB said, it may be that the infections are still in our bodies, but I worked hard at overcoming the 3 relapses I had. So far, so good, since May.

Best of luck to you, and NEVER give up!
love dharma

posted 04 January 2004 15:39               

posted 06 October 2002 23:57

Mine is a wonderful success story - the steps to get there were not for the faint at heart. Long and tedious and believing in a physician with great courage and the patience of a saint, swimming against the stream.

Some of the details are scattered over the few hundred and some posts on this board. They really come down to one basic chore:
Clean out the body. I only started to heal when I took my doctor's comments seriously -- "85% of all disease starts in the mouth!"
Hope a few more people take it seriously, because without that, fighting Lyme is a never-ending battle.

Take care

posted 04 January 2004 15:41               

posted 18 October 2002 23:25

I can't tell you how good I feel right now...if I never beat this disease, at least God (with the help of doctor J) has healed my daughter, after she was born with lyme, and then reinfected with lyme, babs, and erlichia!

We had our appt. today, and he said it was a day and night improvement since the first time he saw her 18 months ago. He said she looked "very good," and told us to stop abx, and keep her off unless she has any problems....

He also redid her WB and babs tests, just to be sure, but I now know that there is hope!

All you mothers out there with lyme kids...take heart! They can beat this!

P.S. He did say that when she goes to start a family, she needed to have a WB done- if it's positive, she will need to do abx during the pregnancy and not breastfeed, just to be safe.

Thanks to everyone for your prayers and kind words during her horrid illness...you had a very intricate part in her recovery- without this site, she would not have been treated properly!!!!

I thank God for using you..........
XXOO,

kristin (and Abigail Grace)

posted 04 January 2004 15:43               

posted 27 November 2002 11:57

Jon,
I totally agree that some positives will help. One of the problems we've noticed about Lyme disease (or any chronic illness) is that the people who have success and recover simply go away and the ones who remain are either continuing to struggle with their illness or are the recently ill and attempting to educate themselves and gain support. Therefore we see far too few success stories and positive outcomes.

So, here's my positive post: I am so thankful that my daughter, Lori, has recovered from this horrible disease and has now been essentially symptom free for almost 3 years. You can read her story at: http://www.angelfire.com/nj/lorib/
------------------
Lou B.