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Posts: 149 From: Long Beach, CA Registered: Nov 2004
posted 19 November 2004 17:06
Thanks, Lymetoo. I'm glad you are acknowledging my comment. I guess it is much easier to pop a supposedly "magic" pill than understanding and trying something different. If you are able to pick up USA Today newspaper because they have a couple great articles about the FDA and pharmaceutical drugs and banning of Vioxx. According to the article statement, Vioxx so far killed 139,000 people because of side effects. For a fact I remembered about ephedra, which is a natural product, it was banned because it killed about 175 poeple in 10 years period. However, the people died because they have overdosed themself because they want to lose more weight. So whose fault is that. In my opinion pharmaceutical companies has so much control and it's all about making more money than healing people. It's sick.
I've heard of mangosteen and actually ate the fruit when I was in Asia a year before my illness. The body of the fruit is quite tasty, however, recently they discovered it is the shell of the fruit contains alot of good nutrients. The shell has a purple-ish and burgundy color to its that's why the juice looks that way so I figured they extract the whole fruit. It does not hurt to try eventhough I'm not as sick as I used to be, but it's good for me anyway. Thanks for the info. BTW, I also practice yoga again now and it does help but after my podi patch progam, of course. Well, take care all. Live Well and Be Well.
Posts: 856 From: ontario canada Registered: Jan 2004
posted 19 November 2004 20:36
Forgot to mention this.
Before I eliminated wheat from my diet, I would wake up in the morning feeling like I had arthritis everywhere. I would actually limp and not be mobile for a least an hour without pain, and this was when I was better then I am now. This was huge for me, you might want to try it.
Posts: 16145 From: Missouri Texan Registered: Feb 2001
posted 20 November 2004 19:09
quote:Originally posted by fulfillment09: According to the article statement, Vioxx so far killed 139,000 people because of side effects. For a fact I remembered about ephedra, which is a natural product, it was banned because it killed about 175 poeple in 10 years period. However, the people died because they have overdosed themself because they want to lose more weight. So whose fault is that. In my opinion pharmaceutical companies has so much control and it's all about making more money than healing people. It's sick.
I've heard of mangosteen and actually ate the fruit when I was in Asia a year before my illness. The body of the fruit is quite tasty, however, recently they discovered it is the shell of the fruit contains alot of good nutrients.
Darn, missed the article. What's really scary is that the World Health Organization is involved in a treaty with the US which would cause ALL of us to have to get prescriptions for simple vitamins and other natural supplements. Wouldn't that be a mess?!
And the government will say that they are just trying to protect us! From WHAT??
The "pericarp" or rind of the mangosteen is loaded with xanthones which are more than just nutrients. Xanthones found in the mangosteen are anti-cancer, anti-viral, anti-inflammatory, anti-microbial, anti-ulcer, anti-allergic, etc.
Lymiecanuck......yep, wheat can cause pain and so can Candida.
Posts: 149 From: Long Beach, CA Registered: Nov 2004
posted 20 November 2004 20:53
FYI, the info I'd mentioned in regard to Vioxx is about Dr. David Graham, Drug Safety official at FDA voicing his concern in regard to FDA system is broken. I think they are trying to shut him up about his scientific findings of problem drugs. Besides Vioxx he also named Meridia, Crestor, Accutane, Serevent and Bextra.
For years I know and sure of it that the FDA receives big $$$ from drugs companies so, of course, they have to approves these "killer" drugs. And, of course, it is important that they ban as many natural healing herbs which helps people so they can keep us all on these drugs with purpose to keep us barely alive so we have to buy their drugs. They don't want to create something that will kill us, which happened, because if we are dead we no longer need their "magic" drugs, do we?
Just in case you are not awared of it already. Most of our conventional doctors loves these companies because the bonuses and BIG parties they are invited to by these drugs companies makes them feel very happy and important. And guess who have to be around to prescribe all of these goodies for us. Yes, our so called loving and caring DOCTORS!!!
This is just sick! sick! sick! Sorry, I had one of those idiots. I almost lost my precious life when I was struck with this illness many years ago because the idiot misdiagnosed and gave me so many wrong drugs. Thanks God I have friends who know alot about natural healings.
Yeah, we were educated that wheat is good for us, but I believe organic whole grains is the one.
You should check out this great website about toxicity in our environment by Dr. Rapp. Great educational info. www.drrapp.com
posted 20 November 2004 21:47
its me again from the first page, what a stir of emotion from this topic. we'll let me start over again. the number one treatment for cfs is rest, good solid rest especially at night. you need to have rem sleep wwith dreams to be in a good state of health and mind. lyme messes up your mind so that you are unable to get sound sleep.let's not all kill me at once, but i believe if you can't sleep soudly during the night then you must take a sleeping pill befoore bed, period. You must wake up refreshed to handle to new day whatever it might bring. that being said the next step is not to fight the fatigue during the day, when your body tells you to stop , you stop wherever or whatever your doing and nap. you can't fight the bodies defenses to shut down from the lyme.let your body rst as long as it needs not with a timer. verv very important to rest and not continue thru the fatigue.been there done that.you pay for it 2 days after you ignore your body. next: exercise, bad karma for lymies but crutial to the cure of lyme disease or any other dibilitaing disease. i started in a aqua therapy were they rolled me in with a wheelchair. yoga mediation or even a home therapist is excellent. motion is a must, without motiion, atrophy of the muscles of the body occurs,atp(energy molecules) builds up in your system, along with lactic acid and you get to a point where you can move at all.you must use your muscles or they will literally go away. you have to fight thru the pain and discomfort the best you can even with analgesics ,tylenol or motrin and do you best to do some kind of motion exercises. even warm baths and kicking your feet, arms, shoulders, neck get the adreniline flowing and back into your system, slowly but surely you will get more and more strength, the body will help you by producing endophines, you will feel more alive, and your brain will be able to heel the disease better also. so whatever it takes,minimally to get your"juices flowing" try it. worse that can happen is you'll wind up in bed for 2 days again. docdave
posted 20 November 2004 21:57
sorry, also i have gone on the south beach diet since march and lost 35 pounds. this will help alot with fatigue especially if you are overweight. the diet is also great for lymies because it is carb free, yeast free,and sugar free. all these help to feed the bb and going on a restricted diet made me feel 50% better along with the weight loss. i am now able to even play tennis, once my ruptured achilles tendon heals ,from falling down the steps, so i'm a lyme clutz, what can i say.
posted 20 November 2004 23:00
Wow! look at all these replies!
Actually I'm in pain management and he prescribes me a pain killer ..so I cant take any more pain meds... without the pain killer I'd never be able to get up of the couch. unfortuanately I couldnt find pain management that excepts my insurance so I pay him... and I cant afford to pay for physical therapy too ... and hes not going to refer me out to another pain management place for therapy.
doc dave I dont have chronic fatigue syndrome... the fatigue is from the lyme.
If I never fought through any of the fatigue... I'd never be awake.... I already sleep more than half the day and I'm usually at least 40% asleep while i'm awake....
Also I do a few "exercises" (I'm supposed to do them everyday but some days I'm just in to much pain)
bending my neck and "swinging" my legs while holding on to the wall and standing on my toes while holding on to the wall..
I do agree that some movement is necessary for me...My bedroom is upstarirs so I do go up the stairs and I walk around my house most days...
and on my "better" days I start my wash... type on here... play with my cat or go to the store with my mom.
doing stretches though will just put me in too much pain.
my pain is constantly in the joints in my wrists, elbows, shoulders, every joint in my fingers & thumbs, ankles, spine, knees, hips, and every joint in my toes,also the bones and muscles in my arms and legs.
I also get alot of shooting pains throughout my body and sometimes I get headaches... and pain in my abdomen....so this is why I really cant do "real" exercises or stretches
I have both the "sleepy" fatigue and the "mental fatigue"
Actually most of what I drink is water with lemon and green tea.
I thank You all for your responses and your support.I started ketek a little while ago I'm hoping that this will really help
best wishes
docdave: well I dont have chronic fatigue syndrome ... I understand what you are saying but dont agree... just leaving it at that.
Its just lyme...
Also many ducks have told me I have fibro.... but your supposed to have so many tender/trigger points ... and they never bothered to check because I have none.
[This message has been edited by AZURE WISH (edited 28 November 2004).]
posted 21 November 2004 10:18
actually azure wish you do have chrnoic fatigue syndrome. it is just one of 400 symptoms and side disease lymies get. cfs is not a disease on its own niether is fibromyagia, but a symptom of a disease, be it lyme, ms, lupus ,aids whatever. the docs have a bad habit or grouping your pain, fatigue, headaches and using gross terms instead of the actual disease. almost everybody with lyme has some sort of cfs. but your right you don't have cfs as a disease, my rhematologist told me i had cfs and fibro when i went to him for a second stupid opinion, i also told him that i did not have these diseases but had lyme and these were symptoms of my lyme disease.