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  LymeNet Flash
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  What is your source of income in sickness? (Page 1)

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Author Topic:   What is your source of income in sickness?
Areneli
Frequent Contributor

Posts: 572
From: Saskatoon, Saskatchewan, Canada
Registered: Jan 2005

posted 02 February 2005 13:54     Click Here to See the Profile for Areneli   Click Here to Email Areneli     Edit/Delete Message   Reply w/Quote
Who pays for your disease?

I would like to get a general idea what is going on in this aspect of our sickness.
If possible please give answers in percentages for your monthly average spending (including treatments, travel etc if you have to pay for them yourself, skipped reimburses expenses), such as
EMPLOYMENT - 10%
FAMILY SUPPORT (spouse) 40%
CONSUMPTION OF SAVINGS 50%
Together it should add up to 100%.

In may case it is 58% family support, 40% consumption of savings (not much left). I am trying to do some paid work but so far it is not contributing much -it is about 2% from employment for the last month.


[This message has been edited by Areneli (edited 02 February 2005).]

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Linda LD
Frequent Contributor

Posts: 630
From: Knoxville, TN US
Registered: Dec 2004

posted 02 February 2005 14:06     Click Here to See the Profile for Linda LD   Click Here to Email Linda LD     Edit/Delete Message   Reply w/Quote
nevermind...

[This message has been edited by Linda LD (edited 03 February 2005).]

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Areneli
Frequent Contributor

Posts: 572
From: Saskatoon, Saskatchewan, Canada
Registered: Jan 2005

posted 02 February 2005 14:13     Click Here to See the Profile for Areneli   Click Here to Email Areneli     Edit/Delete Message   Reply w/Quote
Thanks for sharing. So if I understand it correctly it is 100% employment and also some money borrowed?

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treepatrol
Frequent Contributor

Posts: 5189
From: PA Where the Creeks are Red
Registered: Jun 2003

posted 02 February 2005 14:40     Click Here to See the Profile for treepatrol   Click Here to Email treepatrol     Edit/Delete Message   Reply w/Quote

[This message has been edited by treepatrol (edited 03 February 2005).]

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hobokinite
Frequent Contributor

Posts: 258
From: Thomaston, GA
Registered: Aug 2004

posted 02 February 2005 15:39     Click Here to See the Profile for hobokinite   Click Here to Email hobokinite     Edit/Delete Message   Reply w/Quote
A lot of consumption of savings as I relapsed and no loner work fulltime. I do however have an internet book site for rare and used books and am in the process of selling another screenplay. This will help.

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lymiecanuck
Frequent Contributor

Posts: 856
From: ontario canada
Registered: Jan 2004

posted 02 February 2005 20:19     Click Here to See the Profile for lymiecanuck   Click Here to Email lymiecanuck     Edit/Delete Message   Reply w/Quote
.

[This message has been edited by lymiecanuck (edited 03 February 2005).]

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liz28
Frequent Contributor

Posts: 1374
From:
Registered: Dec 2003

posted 02 February 2005 20:20     Click Here to See the Profile for liz28     Edit/Delete Message   Reply w/Quote
Until earlier this year, it was 1) my retired parents, who deserved a lot better, and 2) a graveyard shift bonehead job at a law firm.

Even with insurance, my out of pocket expenses have ranged from $200-350 per month.

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lymesux
Frequent Contributor

Posts: 690
From:
Registered: Sep 2004

posted 02 February 2005 20:40     Click Here to See the Profile for lymesux     Edit/Delete Message   Reply w/Quote
why do you ask these questions? out of curiosity?

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TheCrimeOfLyme
Frequent Contributor

Posts: 2547
From: Greensburg, Pennsylvania
Registered: Jun 2003

posted 02 February 2005 20:46     Click Here to See the Profile for TheCrimeOfLyme   Click Here to Email TheCrimeOfLyme     Edit/Delete Message   Reply w/Quote
Are you doing a study we arent aware of?

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ConnieMc
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Posts: 1568
From: NC
Registered: Oct 2000

posted 02 February 2005 21:15     Click Here to See the Profile for ConnieMc     Edit/Delete Message   Reply w/Quote
.

[This message has been edited by ConnieMc (edited 03 February 2005).]

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beachcomber
Frequent Contributor

Posts: 1103
From:
Registered: Feb 2004

posted 03 February 2005 08:03     Click Here to See the Profile for beachcomber     Edit/Delete Message   Reply w/Quote
Edited out.

[This message has been edited by beachcomber (edited 03 February 2005).]

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artbyjessie2
Frequent Contributor

Posts: 121
From: NY
Registered: Jan 2005

posted 03 February 2005 08:17     Click Here to See the Profile for artbyjessie2     Edit/Delete Message   Reply w/Quote
removing my response

i should have known not to answer -- naive gal that I am!

[This message has been edited by artbyjessie2 (edited 03 February 2005).]

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Areneli
Frequent Contributor

Posts: 572
From: Saskatoon, Saskatchewan, Canada
Registered: Jan 2005

posted 03 February 2005 09:07     Click Here to See the Profile for Areneli   Click Here to Email Areneli     Edit/Delete Message   Reply w/Quote
No, it is not curiosity - it is a real hunger for all possible information on the disease and its impact on us.

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Tincup
Frequent Contributor

Posts: 2234
From: The Moon
Registered: Jun 2004

posted 03 February 2005 09:08     Click Here to See the Profile for Tincup     Edit/Delete Message   Reply w/Quote
Before sharing ANY personal information here or on the board...

Please note..

Some of our members have been threatened recently... and you may want to be careful.

Someone is gathering information and threatening Lyme Net members saying they are contacting people's insurance companies, disability income sources, etc.... and plan to report them for whatever they can... to do harm to them.

The type of information requested here is the kind that MAY backfire on you if you respond.

My suggestion is NOT to respond (this isn't vital information for ANYONE to have anyway)... and to edit out any personal information you have already posted.

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James H
Frequent Contributor

Posts: 388
From: Central Texas
Registered: Oct 2004

posted 03 February 2005 10:14     Click Here to See the Profile for James H   Click Here to Email James H     Edit/Delete Message   Reply w/Quote
Would you like us to give you our Social Security numbers, bank accounts and pin numbers?

Just ask, we're gullible easy prey.

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lymesux
Frequent Contributor

Posts: 690
From:
Registered: Sep 2004

posted 03 February 2005 10:28     Click Here to See the Profile for lymesux     Edit/Delete Message   Reply w/Quote
Exactly - I don't think this is the kind of thing that people should be asking - and poor people who are too ill to think about it before answering, or who havent been involved in something like TC explained might be the ones who end up really losing in the end.

Though James if you want to give me your bank card number and pin I will take it

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hopeful123
Frequent Contributor

Posts: 245
From: Pawling, NY
Registered: Oct 2002

posted 03 February 2005 14:30     Click Here to See the Profile for hopeful123     Edit/Delete Message   Reply w/Quote
so totally and completely an inapporpriate question

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daniella
Frequent Contributor

Posts: 462
From: connecticut
Registered: Jan 2005

posted 03 February 2005 16:50     Click Here to See the Profile for daniella   Click Here to Email daniella     Edit/Delete Message   Reply w/Quote
100% from ME...............

Nice question.

Why don't you ask us next if we are worth it?

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groovy2
Frequent Contributor

Posts: 353
From: Austin tx USA
Registered: Oct 2004

posted 03 February 2005 18:33     Click Here to See the Profile for groovy2   Click Here to Email groovy2     Edit/Delete Message   Reply w/Quote
I thought your question is ok.
Before I got sick -- I made a good living.
For a couple of years after I got sick
I still made a good living. After about
6 years things started going down hill.
If I count in infaltion --After being
sick for 17 years I make about 20% of
what I used to. I only can work part
time-- and some times its hard to do that.
My RX costs are low at the moment
but I think they are going up soon
--by about 5x--- maybe new meds.
I now have a cool doctor who's fee's
are very low-- But I am going to try
a new doctor soon who I know is
much more expensive. I can see in my
future a continued downward sprial.
I dont have insurance and the doctors
I went to when I did have insurance
said I was OK.----
I am usually to sick to spend money
except for food and housing. I went to a
party for the first time in 2 years a few
days ago. I cant drink or really go
anywhere so I dont spend much on fun.
Lymes has really ruined my life.
----Jay---

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Martijn
Frequent Contributor

Posts: 360
From: the Netherlands
Registered: Jan 2004

posted 04 February 2005 18:13     Click Here to See the Profile for Martijn   Click Here to Email Martijn     Edit/Delete Message   Reply w/Quote
Until recently 100% from employment. Since a few months 100% from unemployment benefit.
Still living at home makes it much easier to copy with all.

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SpdDrv
Frequent Contributor

Posts: 217
From: Louisiana
Registered: Jun 2004

posted 04 February 2005 18:36     Click Here to See the Profile for SpdDrv   Click Here to Email SpdDrv     Edit/Delete Message   Reply w/Quote

I don't see the point of your question is is all US, my husband and myself, that pays for our disease.
It is his and my employment, our savings, and our lives that paid for this diease. My life and my husbands have been put on hold because of this disease. so 100% of my husband and myself pays for my disease. Nothing else and no one else.
Most insurances and doctors don't even acknowledge this disease or we don't fall within thet scope of what they do acknowledge so we can't get help from anywhere else. It is simple no matter how you might break it down it is US that pays for our own disease.
staci

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GiGi
Frequent Contributor

Posts: 2923
From: Washington State
Registered: Oct 2000

posted 04 February 2005 23:40     Click Here to See the Profile for GiGi   Click Here to Email GiGi     Edit/Delete Message   Reply w/Quote
Wow, you are nosy! -- I used to stand at the freeway intersections holding up a sign in one hand, a hat in the other. My husband joined me there later in the wheelchair when he got sick also!

Now I am trying to tell you a way to avoid that - to get well as we did. But sadly - you said "I never believe that"!

Don't believe it, fine; and please quit asking these personal questions. It is impolite, it is bad manners, it is one of those things one doesn't do. If you haven't learned that yet, you might want to start now. It's never too late to learn to respect one's fellowman.

That said, take care.

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HEATHERKISS
Frequent Contributor

Posts: 947
From: ABERDEEN, NJ 07747
Registered: Jan 2005

posted 04 February 2005 23:46     Click Here to See the Profile for HEATHERKISS   Click Here to Email HEATHERKISS     Edit/Delete Message   Reply w/Quote
I don't care for this
question either.

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Kara Tyson
Frequent Contributor

Posts: 5571
From: Mobile, AL
Registered: Apr 2001

posted 04 February 2005 23:59     Click Here to See the Profile for Kara Tyson   Click Here to Email Kara Tyson     Edit/Delete Message   Reply w/Quote
I dont see a problem with the questions.

In fact, if you look at the Lyme Quilt people say how much they have spent on the illness.

I think it is interesting to note.

Right now my parents support me and my income from a severence package from a lay off.

I spent 33% of my allowance (from my parents) on medical bills.

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yankee in black
Frequent Contributor

Posts: 463
From:
Registered: Jul 2003

posted 06 February 2005 03:48     Click Here to See the Profile for yankee in black     Edit/Delete Message   Reply w/Quote
Areneli,

Well, since you are nosey.....I'll just bragg away

Independent wealth beyond your wildest dreams

If you travel at all, by plane, train or automobile.....you are adding to it!

Walking would not add to the family firm...sadily

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