MARYLAND Lyme patients- please read

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MARYLAND Lyme patients- please read (Page 1)

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Author	Topic: MARYLAND Lyme patients- please read
Tincup Frequent Contributor Posts: 2234 From: The Moon Registered: Jun 2004	posted 18 February 2005 22:43 It is time to get some things done here to help Lyme patients... and the FEW doctors we have who will treat them. If you were living in Maryland... bitten in Maryland... were in any way diagnosed or misdiagnosed in Maryland... OR... saw a Maryland doctor... Please email me so I can make a list of folks who may be able to help us get the ball rolling here... We are ready to rock and could use ALL the support we can get. Please keep this post near the top of the board for a while.. if you don't mind. THANKS! AfterTheBite@toad.net IP: Logged
Corinne E Frequent Contributor Posts: 424 From: Abbotsford, BC, Canada Registered: Oct 2003	posted 18 February 2005 23:31 UP quote: Originally posted by Tincup: It is time to get some things done here to help Lyme patients... and the FEW doctors we have who will treat them. If you were living in Maryland... bitten in Maryland... were in any way diagnosed or misdiagnosed in Maryland... OR... saw a Maryland doctor... Please email me so I can make a list of folks who may be able to help us get the ball rolling here... We are ready to rock and could use ALL the support we can get. Please keep this post near the top of the board for a while.. if you don't mind. THANKS! AfterTheBite@toad.net IP: Logged
ziggy Frequent Contributor Posts: 228 From: Sonoma County, CA Registered: Jul 2002	posted 19 February 2005 05:18 put me down for about... one zillion MD tick bites in the 1970s ------------------ http://www.wildernetwork.org IP: Logged
GiGi Frequent Contributor Posts: 2923 From: Washington State Registered: Oct 2000	posted 19 February 2005 11:03 up IP: Logged
JillF Frequent Contributor Posts: 1233 From: USA Registered: Apr 2004	posted 19 February 2005 11:21 hey tin i sent you an email but not sure it went through. hotmail sucks. let me know if you didn't get one. IP: Logged
ShelleyA Frequent Contributor Posts: 568 From: Bel Air, Md Registered: Oct 2000	posted 19 February 2005 13:14 Diagnosed and treated in Maryland.......thankgoodness I moved here........altho docs (2) in Louisiana came up with it but you know the CDC! I have that chronic lyme brain tho......so don't ask too much of me........ IP: Logged
proud pup Frequent Contributor Posts: 114 From: Eastern Shore. Maryland USA Registered: Jun 2003	posted 19 February 2005 14:03 Hey, Tincup Please add me on. Already getting info from our Salisbury Support Group. But, if you get anything new let me know. We know Sen. Colbourn. He lives in our county. One of the bills is his doing. I know he will be pushing hard for this. Bobbie IP: Logged
lymemomtooo Frequent Contributor Posts: 748 From: SE PA Registered: Mar 2004	posted 19 February 2005 14:22 up IP: Logged
lymemomtooo Frequent Contributor Posts: 748 From: SE PA Registered: Mar 2004	posted 20 February 2005 17:01 UP IP: Logged
Barngirl Frequent Contributor Posts: 62 From: MD Registered: Oct 2004	posted 20 February 2005 20:31 Hi Tincup, Tried to email you but I don't know how. Yes, I have been bitten in Maryland (very many times) I was originally diagnosed in Maryland and doxy was started. But my Mono test came back first before my lyme titer from Lab corp. So they put me on a course of prednisone first. Had to find a LLMD, which I did and the rest is history. I have or had all the tick borne diseases. Been on treatment for 1 and a half years. I gave it to my daughter. She has been on treatment for over a year. Got my mother checked. She has Lyme & babesia & ehrlichia IP: Logged
lymemomtooo Frequent Contributor Posts: 748 From: SE PA Registered: Mar 2004	posted 20 February 2005 20:45 Have had a lot of MD ticks on me but hope my arthritis, CRS syndrome, etc isn't lyme disease..Or I gave it to my child and have had it for too many years..But until things get better here, I will never know.. Count me a "?" IP: Logged
Katherine Frequent Contributor Posts: 82 From: Maryland Registered: Mar 2002	posted 20 February 2005 22:01 Tincup: I was bitten in Maryland, misdiagnosed multiple times in Maryland, finally (due to your help and others at lymenet) correctly diagnosed for lyme and babesia by a Maryland LLMD. Thanks for all your hard work, Katherine IP: Logged
JillF Frequent Contributor Posts: 1233 From: USA Registered: Apr 2004	posted 20 February 2005 23:35 Have Lyme, Babesia and they think Bartonella, and it had to have happened in good ol' PG County. Went to several doctors in MD - neurologist, infectious disease, my primary, my new primary, throat specialist, rheumatologist, etc, and Lyme was never suspected since all my LabCorp tests were negative... Found Dr S through referrals from Lymenet. Thank God I finally found a doctor that knows what he is doing. IP: Logged
sizzled Frequent Contributor Posts: 3031 From: US Registered: Jul 2001	posted 21 February 2005 07:39 Up! IP: Logged
lymemomtooo Frequent Contributor Posts: 748 From: SE PA Registered: Mar 2004	posted 21 February 2005 12:03 Harford County may be able to get a bus for the trip..If there is any action involved. [This message has been edited by lymemomtooo (edited 21 February 2005).] IP: Logged
sarabear Frequent Contributor Posts: 160 From: Frederick, Maryland Registered: Nov 2004	posted 21 February 2005 15:34 I, too, was misdiagnosed for 5 years in Maryland, and finally diagnosed here in Maryland. I have Lyme and babesia. Thanks, sara IP: Logged
MammaLyme Frequent Contributor Posts: 2173 From: Maryland Registered: Jun 2001	posted 21 February 2005 18:50 I too was bitten here at a dinner theater, Toby's to be exact in 1994. Howard County of course. It was packed and someone carried the nice fellow in and it crawled on me. We were celebrating our anniversay. Nice present! Went to 16 docs in MD until my daughter diagnosed me. This was in the year 2000. I plan on going to the MD assembly on March 10. IP: Logged
sizzled Frequent Contributor Posts: 3031 From: US Registered: Jul 2001	posted 21 February 2005 22:36 Please keep this at the top! IP: Logged
lymemomtooo Frequent Contributor Posts: 748 From: SE PA Registered: Mar 2004	posted 22 February 2005 06:13 up IP: Logged
Tincup Frequent Contributor Posts: 2234 From: The Moon Registered: Jun 2004	posted 22 February 2005 22:39 You guys are great. I am sorry I have been working on the bill stuff a LOT lately behind the scenes... and I have not had a chance to come visit. Here is some new information. I would appreciate it if you could share this with everyone who could help. Thanks! ``````````````````````````````````````````` Greetings: Concerned citizens across Maryland are in the early stages of trying to get bills passed to help Lyme disease patients. The bill that is now scheduled for a hearing (Lyme Disease Bill SB596) will include insurance coverage, provisions for long term treatment when necessary, and protection for the doctors who treat Lyme disease. Please share this message with everyone you know who has been affected by Lyme and tick borne diseases.. especially in and around Maryland. In a letter... Briefly tell the politicians how Lyme disease has affected you and/or your family. To help them understand our situation, please include the following information. 1. The difficulty getting a doctor to properly diagnose or treat you. Approximately how many did you see? Did you have to go out of state for treatment? 2. How long were you sick before getting a diagnosis? What were you misdiagnosed with prior to a proper diagnosis? 3. Insurance problems you have had. The cost to you and your family in dollars (estimate). There is a hearing scheduled for March 10, 2005. Please make 20 copies of your story so they can be submitted ... and IMMEDIATELY mail the copies to: Lynette Kenny Senator Richard F. Colburn 315 James Senate Office Building Annapolis, MD 21401 OR- Email your stories to the address below so I can make copies and submit them for you: AfterTheBite@toad.net Thank you for helping all of us have a fighting chance. To see the bill: http://mlis.state.md.us/2005rs/bills/sb/sb0596f.pdf ------------------ If you get the choice to sit it out or dance... IP: Logged
Tincup Frequent Contributor Posts: 2234 From: The Moon Registered: Jun 2004	posted 22 February 2005 22:47 Lyme Disease Bill Set for Hearing Maryland residents who are at risk for contracting Lyme disease, or who have been suffering with it over the years, finally have some hope. Thanks to Senators Colburn, Dyson, Jacobs and Stolzfus, a Lyme Disease Bill (SB596) has been introduced that will help people obtain proper medical care for tick borne diseases. If the bill passes, limited treatment guidelines, poor insurance coverage, and the lack of physician availability will no longer be an issue that impedes the recovery process for the growing numbers of patients who need help. The public is encouraged to attend a hearing which will be in Annapolis, Maryland on March 10, 2005 at 1:00 PM. For more information on the hearing or instructions on how to submit written testimony to support the bill, please contact Senator Colburn�s office at 1-800-492-7122, ext. 3590. ```````````````````````````````````````````` ```````````````````````````````````````````` Can you come? We could use the support!!! Thanks!!! Please see my note below about dancing... ------------------ If you get the choice to sit it out or dance... IP: Logged
lymemomtooo Frequent Contributor Posts: 748 From: SE PA Registered: Mar 2004	posted 23 February 2005 10:14 up IP: Logged
lymemomtooo Frequent Contributor Posts: 748 From: SE PA Registered: Mar 2004	posted 24 February 2005 06:59 up IP: Logged
lymemomtooo Frequent Contributor Posts: 748 From: SE PA Registered: Mar 2004	posted 24 February 2005 12:06 up for Tincup IP: Logged
lymemomtooo Frequent Contributor Posts: 748 From: SE PA Registered: Mar 2004	posted 24 February 2005 17:49 up IP: Logged

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