How many doctors did you see before getting diagnosis?

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site. When purchasing from Amazon.com, please click here first. Thank you.

Dedicated to the Bachmann Family

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please click on the "Make a Donation" button to the left, or send your donations to:
The Lyme Disease Network of New Jersey
43 Winton Road
East Brunswick, NJ 08816 USA
In the United States, your donations are tax deductible.

Topic Closed

LymeNet Flash

Medical Questions

How many doctors did you see before getting diagnosis? (Page 1)

profile | register | preferences | faq | search

UBBFriend: Email This Page to Someone!
This topic is 5 pages long: 1 2 3 4 5

next newest topic | next oldest topic

Author	Topic: How many doctors did you see before getting diagnosis?
Tincup Frequent Contributor Posts: 2234 From: The Moon Registered: Jun 2004	posted 27 February 2005 00:28 Just a total number.. not the kind of duck. Thanks! IP: Logged
Melanie Reber Frequent Contributor Posts: 3119 From: Colorado Registered: Mar 2003	posted 27 February 2005 00:49 13...I think ------------------ C O L O R A D O * S U P P O R T * S Y S T E M melaniereber@netscape.com IP: Logged
Aniek Frequent Contributor Posts: 1285 From: Washington, DC Registered: Mar 2004	posted 27 February 2005 00:49 At least 14. This number is low, because I don't know every doctor I saw when I was in high school. IP: Logged
lhm312 Frequent Contributor Posts: 331 From: SW Florida Registered: Sep 2002	posted 27 February 2005 01:40 Two, I was very lucky and hit the jackpot right away with an LLMD. IP: Logged
Paisley Frequent Contributor Posts: 289 From: Registered: Nov 2004	posted 27 February 2005 02:06 Just off the top of my head...46...I would have to check med records for more. IP: Logged
Corinne E Frequent Contributor Posts: 424 From: Abbotsford, BC, Canada Registered: Oct 2003	posted 27 February 2005 02:49 2 - family doc wouldn't send me to anyone else, said he could treat everything. Then eventually found the only LLMD in I suppose at that time Canada. IP: Logged
yankee in black Frequent Contributor Posts: 463 From: Registered: Jul 2003	posted 27 February 2005 03:00 One, I got real lucky Actually I questioned the doctor if it was the right DX, and the second opinion agreed with him--that it was borrelia IP: Logged
HaplyCarlessdave Frequent Contributor Posts: 3748 From: ithaca, NY, usa Registered: Nov 2000	posted 27 February 2005 03:06 3. IP: Logged
shadow13 Frequent Contributor Posts: 780 From: Binghamton, NY Registered: Aug 2001	posted 27 February 2005 03:49 Close to 20 during an eleven-year period and living in two different states. IP: Logged
dontlikeliver Frequent Contributor Posts: 1324 From: Registered: Oct 2003	posted 27 February 2005 04:28 In 14 years, probably somewhere around 25. DLL IP: Logged
shassler64 Frequent Contributor Posts: 773 From: Kiama,Australia Registered: Dec 2002	posted 27 February 2005 06:27 5 docs IP: Logged
DC Frequent Contributor Posts: 94 From: USA Registered: Dec 2004	posted 27 February 2005 09:03 The very first one I saw and it was at one of those "Stat Care" places. IP: Logged
CA quest Frequent Contributor Posts: 63 From: CA, USA Registered: Jan 2005	posted 27 February 2005 09:35 16 doctors over a 3 year period. (at that point self diagnosed & LLMD & WB confirmed) IP: Logged
Troup Brazelton Frequent Contributor Posts: 61 From: Aubur,Al. USA Registered: Oct 2004	posted 27 February 2005 09:59 1 -didn't have a clue (GP) 2 -neuros = CFS 1 -neuro = ALS 1 -LLMD =lyme for a total of 5 IP: Logged
duramater Frequent Contributor Posts: 464 From: western MA (we say buttER and pizzA) Registered: Nov 2004	posted 27 February 2005 10:39 4. IP: Logged
lynnic86 Frequent Contributor Posts: 162 From: PA Registered: Feb 2003	posted 27 February 2005 11:29 at least 15 over a 15 yr span of time.. only dx in the past 4 yrs.. since then only 5 IP: Logged
kam Frequent Contributor Posts: 2661 From: CA USA Registered: Dec 2002	posted 27 February 2005 11:37 35 after my body crashed in Oct. 2001 ? during 80's and 90's but ignored symptoms most of the time and would only see doc when I would realized maybe something needs to be done. Found it didn't help so went back to ignoring symptoms if at all possible or rather avoiding docs. Note: I had an HMO when this first hit, then a PPO and now MediCAl. Each group would not accept the other groups records so they all did the same testing 3 different times for the same things. I was told that testing for MS, Myasthenia Gravis, ALS, etc. was often inadequate so they wanted their own people and labs to tdo them. NOT very cost efficient, but I needed to jump through the hoops in hopes of getting results. I also had to do see Workmen's comp docs and SSDI docs. Very few seemed to have the goal of getting my health back and finding out why it went south. I haven't finished with UCSF and SAmsun Clinic. Ran out of insurance with Samsun Clinic. And really didn't feel it would be worth all the time and effort and cost of traveling to UCSF anymore. Last I left off with them, I was told I didn't have ALS, or Myasthenia Gravis. I was to return to the MS Center doc for further consultation. A pulmonologist was also mentioned. But, gee's or peat...enough is enough. It takes so much out of me just to make the trip financially and health wise. You got to wonder if it is really worth it when two out of four neuro's just want to put you on antidepressants even after you tell them you tried that and it took the wind right out of your sails or other hazards to your health. [This message has been edited by kam (edited 27 February 2005).] IP: Logged
monkeyshines Frequent Contributor Posts: 169 From: Northern VA Registered: Oct 2004	posted 27 February 2005 11:46 8 MDs 5 alternative practitioners (to try to treat symptoms pre-dx) IP: Logged
Mathias Frequent Contributor Posts: 644 From: NJ, USA Registered: Feb 2004	posted 27 February 2005 11:47 14 IP: Logged
Lymetoo Frequent Contributor Posts: 16145 From: Missouri Texan Registered: Feb 2001	posted 27 February 2005 11:54 I really have no idea since I've had this almost all my life and to my knowledge was never tested for it. So maybe 40? ------------------ oops! Lymetutu IP: Logged
ShelleyA Frequent Contributor Posts: 568 From: Bel Air, Md Registered: Oct 2000	posted 27 February 2005 11:59 10+ ? But...........1982 PCP tested 1992 PCP suggested 2001 another doc with true diagnosis IP: Logged
lymiecanuck Frequent Contributor Posts: 856 From: ontario canada Registered: Jan 2004	posted 27 February 2005 13:03 11+ lymiecanuck IP: Logged
NP40 Frequent Contributor Posts: 669 From: Northern Wisconsin Registered: Jan 2005	posted 27 February 2005 13:22 Anybody have a calculator ? 18, I believe. IP: Logged
Ms. Myoclonus Frequent Contributor Posts: 51 From: Texas Registered: Jan 2005	posted 27 February 2005 13:36 13 IP: Logged
kare Frequent Contributor Posts: 123 From: Brick, NJ, USA Registered: Dec 2003	posted 27 February 2005 13:46 4 IP: Logged

This topic is 5 pages long: 1 2 3 4 5 All times are ET (US)	next newest topic \| next oldest topic
Administrative Options: Open Topic \| Archive/Move \| Delete Topic
	Hop to:

Contact Us | LymeNet Home Page | Privacy Statement