LymeNet Survey Repsonses- Final tally

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LymeNet Survey Repsonses- Final tally

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Author	Topic: LymeNet Survey Repsonses- Final tally
Tincup Frequent Contributor Posts: 2234 From: The Moon Registered: Jun 2004	posted 08 March 2005 22:18 Lyme Disease Survey Responses February 27, 2005 - March 9, 2005 1. How many doctors did you have to see before being properly diagnosed? 112 responses Average number of doctors consulted before being diagnosed- 14 Answers ranged from 1- 120 different doctors 2. Have you had problems getting insurance to pay for doctors or treatment? 87 responses Yes- 63 No- 24 3. Have you lost income because of Lyme disease? 106 responses Yes- 99 No- 7 4. How much does it cost you (average) per month for Lyme related expenses? 61 responded Average cost per month per patient- $4,472.49 Low- $500.00 High- $21,492.00 5. How many different medications do you take per day? 77 responded Average - 14 different medications per day Low- 3 High- 25 IP: Logged
Tincup Frequent Contributor Posts: 2234 From: The Moon Registered: Jun 2004	posted 08 March 2005 22:24 YOU ARE WONDERFUL!!! These results are being copied off and will be entered into testimony at the hearing.. both the Senate and the House. Even though some of you may not be there in person.. You WILL be heard. Thank each and every one of you for helping with this project. Now.. let me get rolling.. I have a PARTY to go to... in Annapolis! Wish us luck!!! IP: Logged
arg82 Frequent Contributor Posts: 1779 From: Rochester, MA Registered: Oct 2000	posted 08 March 2005 22:44 Tincup, You did such an awesome job on this. Thanks for all your hard work! It's amazing to see the results from these surveys. I can't believe someone saw 120 different doctors before being diagnosed! That's amazing and sickening! I hope this helps with the hearings! Peace and healing, Annie ------------------ Click here to join Lyme Pals. Click here to see my Lyme journal. Lyme Out Retreat Information Webpage IP: Logged
Lymetoo Frequent Contributor Posts: 16145 From: Missouri Texan Registered: Feb 2001	posted 08 March 2005 23:04 Wow.......thanks, Tincup! ------------------ oops! Lymetutu IP: Logged
hatsnscarfs Frequent Contributor Posts: 353 From: MA Registered: Nov 2004	posted 09 March 2005 00:13 Good Luck Tincup- Awesome job with the poll. Great questions. Many thanks for tackling this project. When you get back let's think about where else the poll results might be publicized! h&s IP: Logged
ibrakeforticks Frequent Contributor Posts: 124 From: Registered: Jan 2005	posted 09 March 2005 00:22 Does the "medications" mean prescription medications? Or does that include over the counter medications, or nutritional supplements also? IP: Logged
Paisley Frequent Contributor Posts: 289 From: Registered: Nov 2004	posted 09 March 2005 03:03 Thank you. I hope they hear you and your significant research to contribute. Wish you the best on your adventure. IP: Logged
lymemomtooo Frequent Contributor Posts: 748 From: SE PA Registered: Mar 2004	posted 09 March 2005 08:59 MAY THE FORCE BE WITH YOU..And know it is really killing me to not be able to go..I hate what this disease does to my daughter..I can't even advocate in person for her..because she is so screwed up at the moment.. Stay healthy and win!!!! IP: Logged
duramater Frequent Contributor Posts: 464 From: western MA (we say buttER and pizzA) Registered: Nov 2004	posted 09 March 2005 11:58 TC: Two things: First, I hope the hearing goes well and that the insurance lobby makes a wrong turn prior to arriving at the statehouse and ends up treading water in the bay. Second, because of the huge variance in the numbers (e.g., number of docs, costs, etc), you should use medians not averages. Any help needed with stats, computations, etc, I'll gladly whip them off for you (will take me 2 min). Best of luck at the hearing. ~DM IP: Logged
HEATHERKISS Frequent Contributor Posts: 947 From: ABERDEEN, NJ 07747 Registered: Jan 2005	posted 09 March 2005 13:34 GOOD LUCK!!! IP: Logged
JavaBeing Frequent Contributor Posts: 126 From: Portland, OR USA Registered: Oct 2004	posted 09 March 2005 14:09 Wonderful, wonderful job Tincup! I am sure I'm not the only one who wishes you the best of luck, and all the positive energy we can send your way as you go to fight the good fight for all of us here. I sent emails to many involved with SB596. I hope it helps along with everyone elses that were able to send along their testimonials. You are our inspiration TC...go stir it up girl!! Health and Healing, JavaBeing IP: Logged
bettyg Frequent Contributor Posts: 1767 From: Central Iowa, USA Registered: Aug 2004	posted 09 March 2005 14:16 ibrakeforticks Yes, it's ALL meds....prescriptions, over the counter, herbal, etc. TC, thank you for the labor of love, and I'm going to copy the figures off as well. Betty G., Iowa IP: Logged
Tincup Frequent Contributor Posts: 2234 From: The Moon Registered: Jun 2004	posted 09 March 2005 14:42 DURA.. Go for it! I am horrible at numbers.. I only have these figures.. but if you can make them look better and sound better.. I would love it. Beats counting black jelly beans for a no.. and red ones for a yes. THANKS! IP: Logged
duramater Frequent Contributor Posts: 464 From: western MA (we say buttER and pizzA) Registered: Nov 2004	posted 09 March 2005 16:34 TC: email me the list of numbers for each category (i'll import it into my research play things), i'll return the goods (surveybrain@comcast.net) ~DM IP: Logged

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