posted
I have severe neuro lymes and wondering if people have had more luck with minocycline or docyclcline? also, is 200 mg of doxy basically ineffective?thank you!!
Posts: 38 | From idaho | Registered: Aug 2010
| IP: Logged |
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I noticed no effect from mino.
I have had a decrease in pain being on doxy 200 mg twice daily.
I have been on doxy 3 times so far. The first time (months 1-3 of treatment) I herxed but had no improvement because it was too early in treatment.
The 2nd and 3rd time on doxy has helped me alot.
For a short time in Sept I took only 100 mg twice daily while the sun was still hot.
I still noticed improvement, but it took 11 days to see any difference compared to 3 days on 200 mg twice daily.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
posted
I got no results from Minocycline alone but Doxy alone definitely helped.
That said, when I added Mino to Ceftin, it made a difference.
Dr. B discredits Minocycline as a Lyme drug but seems popular with some LLMDs...?
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Mino seems to help many with brain issues better than doxy; however, mino also can be much harder on the ears and balance system (for some).
That is explored here, along with suggestions for what can help protect ears when ototoxic drugs are needed. -----------------
ALL EARS. Specifically for LYME patients - lots of details about ears and what can help:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
mino's effect on the ear and balance, is it mostly temporary or often permanent?
On wikipedia the side effects sound aweful but at the same time so many people have used this drug, even for acne, it's hard to believe it would be that bad..
-------------------- We will win Posts: 135 | From California | Registered: Jul 2010
| IP: Logged |
posted
I have found mino to be much more effective for my neurolyme. I took doxy first for about 5 months and that seemed very good, once I was over the initial herx. But then I started to get headaches again and switched to mino.
It took some time to be effective, but I think mino crosses the blood brain barrier better than doxy does. I feel that my headaches are much better now than when I was taking the doxy.
I think that 300 to 400 mg a day is considered the minimum dosage for doxy. It is lower for mino because of the possible side effects.
Posts: 40 | From New York | Registered: Mar 2010
| IP: Logged |
-------------------- We will win Posts: 135 | From California | Registered: Jul 2010
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Don't know how often but you asked: mino's effect on the ear and balance, is it mostly temporary or often permanent?
It could be either. NAC, B-6, vinpocetine and liver support may help offset vertigo that often goes with it. More detail in the tinnitus thread and in Bauman's book. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I took mino twice daily.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
penguingirl
Frequent Contributor (1K+ posts)
Member # 28688
posted
I just started on mino but will be upping the dosage to twice daily.
How do you know if you are dizzy/unbalanced from the mino or dizzy from your lyme. I was dizzy before I started treatment but seems like the mino is bringing it out more or maybe it is just an added side effect? So I'm trying to know how I will gauge when I know I am getting better for the neuro symptoms or not.
Also how long does mino's side effects stay in your system? I.e if you only take one pill in the morning, shouldn't it wear off by the evening?
-------------------- Posts: 1204 | From USA | Registered: Oct 2010
| IP: Logged |
posted
thank you!! was also wondering about the combinaton of amoxicillin and minoclycline..just relized that was prescribed together??
Posts: 38 | From idaho | Registered: Aug 2010
| IP: Logged |
posted
Why would I need the amoxicillin 6,000...it even says it is not supposed to be taken together?
Posts: 38 | From idaho | Registered: Aug 2010
| IP: Logged |
posted
I was on both when I didn't know I had lyme disease, I got kind of crazy on Mino and didn't know why. I was on Doxy for a number of years before that for acne..low dose, I think I was taking it at the time of infection, I'm not sure as I didn't get any of the tell tale rash and flu symptoms.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic