posted
I had the same Problem. I spent a year and a half with no sleep until my doctor & I found a combo of meds that worked....give the following a try.....
Nortriptyline & Gabapentin or Carbatrol + Temazepam + Nortriptyline
Good Luck!
Posts: 59 | From NH, USA | Registered: Oct 2004
| IP: Logged |
What finally worked was combining Lunesta and Lyrica, neither alone would work, but both together would. My LLMD has found that Lyrica helps you reach deep sleep.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
posted
This is no quick fix, but it sure helped me: If you feel somewhat tired but once you go to bed you're wide awake, then I'd try to sleep in on a new place. Change beds, or try the couch.
It helped me.
Posts: 275 | From Home | Registered: May 2007
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
nothing has helped me.
i've tried diphahydramine but it gives me really bad irregular heartbeats. and besides raises my bp bad too.
i've gone days er nights with no sleep at all.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
Remember to Smile
Unregistered
posted
quote:Originally posted by peter j: If you feel somewhat tired but once you go to bed you're wide awake, then I'd try to sleep in on a new place.
Change beds, or try the couch.
It helped me.
BRAVO, peter j! That works for me!
I find it best to read a bit of a pleasant (but not thrilling) book in somewhat dim light where i can doze off right there, be it couch, loveseat, or on the guest bed. Have a beloved pillow and cozy blankie there so you'll be comfortable.
Interestingly, many members have issues with electrical supply and water pipes impacting how they feel and sleep.
My couch and loveseat are in corners of the house furthest from electrical panels and water/sewer pipes. Unfortunately, master bedroom isn't...
Another idea: A dear member suggested incline bed therapy and I LOVE IT! Easy & cheap to add a few blocks under the feet of your bed.
My LLRN says overall, these LD sleep disturbances need to be managed by re-training and substituting better habits. Esp turn off all electronics (computer, tv, cell phones) at dusk. Reprogram yourself to live in the daylight and don't allow exposure to artificial light stimulation in the night.
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
| IP: Logged |
posted
Working out help (if you're able to). A jog.
Melatonin should be used regularly before it helps (if it helps). I am on melatonin now. 2 mg time release. I am not sure how much good it does. But anyway, take it an hour before sleep, and take it regularly for some time (perhaps a month) until it works like it should.
If it isn't completely dark where you sleep, then I'd make it. Just the smallest light can affect sleep mechanisms negativly (even though it doesn't feel that way).
I can't sleep as it is, but with these advices it works a little better. I am on ambien now, regularly. I take 5 mg and crush it withmy teeth and swallow. It helps to give it quick absorption which in turn makes it act stronger (the max level rises) and faster.
Posts: 275 | From Home | Registered: May 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As many sleep and pain meds are toxic and hard on the liver and kidneys, here are some suggestions for sleep support that can safely nourish & calm the body: ---------------------------
kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
My daughter's LLMD just put her on 5-HTP to try and help with sleep issues. The jury is still out as to whether it's going to help or not.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
| IP: Logged |
posted
My LLMD started me on melatonin, more specifically "Melazandra" which has a few more things than the melatonin alone. I take 3 caps in the late evening (5mg melatonin per cap). It works wonderfully. Before this, I could not fall asleep before 2am, and even then, would often wake up throughout the night. Now I fall asleep right away, but do not feel "drugged". I also wake up feeling rested, and do not feel like I have a hangover from sleeping pills. Very mellow, but very effective for me.
Posts: 427 | From Pacific Northwest | Registered: Oct 2010
| IP: Logged |
posted
Lavender oil works for me. I get it at bath and body works. It helps me get to sleep, my problem is staying asleep (constant pain keeps me up all night)
Posts: 111 | From northeast Iowa | Registered: Oct 2006
| IP: Logged |
posted
My LLND just recommended "Phosphatydal serine" 100-200 mg at bed time. She said it either works or doesn't and that you would know shortly after starting. I am waiting for mine to arrive at my health food store to try it.
I noticed it's harder to sleep on days that I exercise. Not sure what the relation is.
Also, deep deep breathing sometimes helps me. Not all the time, but sometimes. I mostly only have troubles falling asleep and rarely wake up and stay up.
posted
Lunexor ( herbal sleep aid ) works for me. Tried every Pharm sleeping pill, none worked. Was only sleeping 2-3 hours broken. now get 6-7 & less broken as well. recently added 5 htp, because even Lunexor could not get rid of anxiety attacks once awakened & it has made them less severe & it is now easier to fall back to sleep once awakened
Posts: 5 | From N.Y | Registered: Nov 2010
| IP: Logged |
posted
Licorice and Ashwagandha tea up to 1 hr before bed, followed by 50 mg benadryl at lights out. Also extra sodium and magnesium to prevent nocturia and fasciculations in that order. This works well for me.
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[sleepy]](graemlins/sleepy.gif)
Printer-friendly view of this topic