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» LymeNet Flash » Questions and Discussion » Medical Questions » Something still doesn't fit for lyme

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Author Topic: Something still doesn't fit for lyme
Energyman
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Member # 29178

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hey there. be journey of being sick began in 2004. i woke up and everything was ****ed up. i live in a epidemic area in germany and the doctors dont even know about lyme at all. i never had an EM but a lot of ticks throughout my entire life.

after day X, i had a really hard time. i felt like thats it im gonna die soon. i went to hospitals every day but they couldn't find anything. despite the extreme fatigue/fog and neck pain, neurological symptoms like numb skin, i had an extreme hairloss too. after 7 months they found a thyroid problem. i began to treat that but from that day on i lost weight. i began to feel a bit more healthy and better...

but i still had neurological symptoms and a lot of fatigue. sometimes i just felt as sick as in the past. but i could live with it. 2 years after that, i still had a lot of energy. i lived my life, went to university and i ignored the fatigue and neuro issues because the doctors (i've seen over 200) didn't find anything except this thyroid stuff.

in 2008 i began slowly to lose control. i had no idea why but everything came back. how's that possible.the only thing that i remember was they tried to put me on low dose cortison to treat the adrenal fatigue that i suspected and i reacted very bad from day one.

after that i had negative lyme tests but a positive MELISA and we trated 7 months with ABX.
i felt a lot more worse than before but i still have all the symptoms. all my LLMDs say i clearly have lyme and maybe barts too. but i sometimes think well it's an LLMD, thats what you get if you ask him. i still have burning nerves, numb skin and the fatigue is even worse after the 7 months of abx. only the brain fog is a bit better.

what do you think?

Posts: 159 | From Germany | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
Energyman
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i sometimes just think i created a candida monster
Posts: 159 | From Germany | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
Jin
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Dear Energyman,
I know exactly what you mean! Candida is a major issue for me as well. I have Thyroid Disease on top of Estrogen Dominance, and Lyme is still inconclusive. Tests were too vague, but the LLMD believes I have it and wants to treat. Having no insurance, I had to cancel the trips to see him.

A friend of mine went to Germany to have the Bionic 880 treatment, and has done much better since. Contact sixgoofykids. She can help you with information on who to see. There were many barriers for her. It took six long years of extreme suffering for the health issues to begin healing. Ever since doing the Bionic 880, her progress improved rapidly.

Sincerely,
Jin

--------------------
Celiac Disease (2007)
Candida Overgrowth (2006)
Thyroid Disease (2004)
Gallbladder Disease (removed- 2003)
Fibromyalgia (2001)
Ovarian Cysts (5 in less than 10 months - 2000)
Anemia (2000)
IBS (1999)
Acid Reflux (1999)

Posts: 369 | From Midwest | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
Energyman
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i thought that that bionic 880 is some kind of quackery?

do you have lyme according to your symptome? how do you treat that?

Posts: 159 | From Germany | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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quote:
Originally posted by Energyman:
i thought that that bionic 880 is some kind of quackery?

I got rid of my borrelia with the Bionic 880. You still need to treat toxins, parasites, KPU, and other issues separately, but the Bionic 880 worked for the borrelia.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
BoxerMom
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I don't know the prevalence of Babesia in Germany, but in the US, most of us have Borrelia, Bartonella and Babesia.

If you treat for Lyme, but not for Babesia, the Babesia population will grow and symptoms related to that pathogen will get worse.

That happens with both co-infections and opportunistic infections. One population comes down, and another takes its place.

There is some great new research on multiple infections in biofilm and how they vie for space.

Your history of tick exposure and your symptoms point to Lyme and co-infections. You need a doctor who will take these seriously and treat ALL of your infections.

Also, Lyme is difficult to eradicate in 7 months, unless the exposure is recent. You probably need more treatment for Lyme as well.

But please look into co-infections first.

The numb skin is interesting. I've read that European Lyme strains cause more skin symptoms.

Here's a brief article on Acrodermatitis Chronica Atrophicans. It begins with neuropathy, which is what you are describing.

Please don't let your condition progress to this stage.

http://emedicine.medscape.com/article/1051695-overview

--------------------
 - Must...find...BRAIN!!!

Posts: 2867 | From Pacific NW | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Brussels
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My lyme disease got finally dormant for almost 2 years now with photons and the protocol proposed by dr. W with the Bionic. I used another infrared machine though.

This is not fake. After years fighting lyme I caught in Switzerland AND Belgium, it was photons and homeopathy that got it dormant. And the same for my daughter who first caught lyme in Belgium, then multiple bites in Switzerland.

You saw 200 doctors, right? How could THEY be right if you are still sick? Just change strategy!!

I got this numbness in my fingers all the time too.

In Switzerland and Germany, we got that all too, babesia, borrelia, bartonela, mycoplasma, all the hosts of infections, and on top, the awful TBE that causes Fruhsommer Meningoencephalitis. My daughter got that too!

I had thyroide problem, like most lyme sufferers have, but healing it won't heal lyme!

I would just run to dr. W if I were you. At least, putting borrelia dormant makes things easier to treat later. That is my opinion after visiting only 15 doctors. I found good practioners after (number 16 and 17!!).

After visiting these 15 doctors in 3 countries, I decided I would NEVER anymore step into a conventional doctor to treat lyme disease anymore. I was done with them.

I got no help in Belgium, no help from the so called THE lyme specialist from Switzerland (a fake doctor!!).

The Bionic is not fake, it worked for most people, that is why they stop posting! It won't heal disease as a whole, but it will help your body kill borrelia, that's it.

Some people in this forum fight for DECADES against lyme and still don't get healed. Many people on many YEARS of antibiotics, combos of all sorts, still NOT HEALED.

7 months of abx will only heal the fortunate ones if you are chronic. If you are healed in 12 months of abx, you are a lucky guy too. Many chronic sufferers take years to heal.

It's a pretty good deal to get MUCH better after 2 or 3 weeks of photon treatment! I wouldn't miss that opportunity if I were you!

Posts: 6199 | From Brussels | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
   

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