tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Hi All!!
Okay my arms hurt so bad all the way down to my hands. It hurts so bad ....sometimes it even hurts to write. Has anyone experienced this with Bartonella??
Thanks!
Hope everyone has a good day!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
I highly suspect that I have Bart (will know next week). I have developed pain in both arms that feels like nerve pain, runs down to the outside of my hands. Also my fingers ache and shoulders also. I went to open a jar the other day and hurt my wrist. I can barely hold a glass of water now.
Posts: 319 | From Mass | Registered: Feb 2010
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posted
Wow, I have this too. Its really bad in my right arm, but some times my left arm hurts too. Is this from bartonella?
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I dont know sometimes it just burnss like someone has a lighter on my forearm. My shoulders also crack alot
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
My shoulders have cracked for months now.
Posts: 319 | From Mass | Registered: Feb 2010
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
I had this too.
Taking an anti-inflammatory really helped. Most prescription ones have been taken off the market.
But, Zyflamend (made by New Chapter) is an amazing all natural anti-inflammatory. You can get it pretty much at any vitamin store. Online, you can get the best price at vitaminshoppe.com
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
Thanks, Lymeinhell.
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I had the same thing but I thought it was related to lyme. I could not use my arm for a month.
Then I got tendonitis from levaquin and it was in the same arm and shoulder.
Taking DL Methionine helped it. I also took cysteine and lysine at the same time. Perhaps a coincidence but after 8 months of pain, it went away quickly using this.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I could barely use my left arm most of last year. Was misdiagnosed with Fibromyalgia - finally diagnosed w/ Lyme in November, but have had it for 10 years.
Five years ago I had such intense pain in both shoulders I could not stand it. Had Xrays on both shoulders, but nothing. Finally in 2004 they put me on elavil, then Cymbalta for Fibro. It helped with the pain somewhat, but was only treating the symptoms and not the cause.
I thank God everday that I found Lymenet and my LLMD. Slowly getting my life back.
On Flagyl, Amoxycilin, Biaxin, Plaquenil. Still taking Cymbalta which is an antidepressent but plan to cut back and eliminate that this year.
Take care and be well everyone.
Posts: 54 | From Northern NY State | Registered: Oct 2010
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posted
Yes, after two months on abx and yeast/free sugar free diet my pain level has gone way down. I lost 30 pounds in the last two months so I do feel a little weak.
The one thing I haven't done during this time is excercise. I need to get that going, but was having some bad GI issues for most of the last two months so excercise was just not practical.
Lyme really gets into tendons and joints. Last summer both my achilles tendonds hurt so bad I had trouble walking. That's gone now, so is the arm pain. Now just have to work on building up muscle.
I'm taking Amoxycilin, Flagyl, Biaxin, Plaquenil, Propenecid, Nystatin and many supplements.
Hop this helps. I know how hard this pain can be. It drove me crazy last summer. And my GP (his PA actually) looked at me like I was a drug addict. All they would do is increase my Cymbalta (which was prescribed when i was misdiagnosed with FMS). I think the term they use is "drug seeking behavior".
I'm not a mean person, but if there was a way for me to make them feel my pain for just a minute then they would open up the pharmacy for me.
I know a lot of people do misuse prescription drugs and that's too bad as it really makes it difficult for those of us who could benefit from a little pain relief. Unrelenting pain wears you down, takes your life from you. But alas, too many pain pills will do the same. Finally getting at the root of my problem.
Sorry to ramble about this. Hope you feel better!
Posts: 54 | From Northern NY State | Registered: Oct 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
PTrain, I felt they looked at me as a person getting off on abx! I never asked for pain killers except before i was diagnosed and boy I needed them.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Yes, agreed nefferdun, Once I was diagnosed I didn't even think about pain meds.
I Knew then there was a way to get over this and dedicated myself to the diet and protocol.
Take care!
Posts: 54 | From Northern NY State | Registered: Oct 2010
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Three years now and still hellish arm pain.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
I have had bad left arm pain since I was 23... I just turned 40. I was told it was "chronic reactive arthritis." and I would have to live with it.
Unfortunately, I believed them.
Then my son got sick with Lyme... and I started wondering if they were wrong all these years.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
So, what is the answer? Is the arm pain from lyme or bart? I ask because a few years ago I had pain in the upper arm that went away. This week I've had pain in my lower arm that is excrutiating, I've never had this. There's nothing I've done physical that could have caused this, I've been lying in bed with the flu.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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posted
Arm pain and mostly weakness. Leg pain but mostly weakness in all muscles. Shoulder pain too.
Posts: 348 | From MA | Registered: Dec 2010
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posted
I'm getting frustrated with my arm and hand pain too. It hurts most all the time, but it gets much worse at times.
I don't really have weakness in my legs, and my arm pain stays in my right arm.
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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posted
I've had pain in the left arm, particularly on the inside right of the left elbow. It sometimes extends down the forearm sometimes I even feel something in my hand.
I also have little round white spots on the lower bicep area. It kinda looks as if you just pressed on it with your finger and took your finger off and the blood has not had a chance to circulate back into the area again.
I thought these arm issues were Babesia, not Borrelia or Bart.
-------------------- -chaps �Listen to the bell, Borrelia. It tolls for thee!� Posts: 631 | From A little place called, "we'll see." | Registered: Apr 2010
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posted
Hmmm... In an old journal I once described it as this:
"Every movement I make, walking, grabbing something, lying down, turning, seems to cause some type of reaction and 'zap' of pain through the nerves in arms and back. I turned on the sink faucet and screamed."
Not sure if that's what you're talking about? It was something neurological, not like arthrits/joint-related pain. I have both bart and Lyme so I'm unsure of which was causing it.
little olive
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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