posted
I was diagnosed with childhood benign epilepsy, tic disorder, ADD, generalized anxiety disorder, chronic gastritis, IBS, lactose/food intolerances, ocular migraines, TMJ, and mild scoliosis (obviously not caused by Lyme, but it was blamed for the back pain).
Other things that might be related are iron deficiency anemia and vitamin D deficiency.
They could never figure out a diagnosis to explain the joint pain, fatigue, and brain fog.
-------------------- Contracted Lyme 1999. Diagnosed January 2011.
"The seed of suffering in you may be strong, but don't wait until you have no more suffering before allowing yourself to be happy." � Thich Nhat Hanh Posts: 64 | From North Carolina | Registered: Jan 2011
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-------------------- We really know so little about the body and the microbiome. Posts: 261 | From Southern California | Registered: Jan 2011
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
NOTHING.....it's all the crap I've been diagnosed with SINCE I've had Lyme Disease, including Myasthenia Gravis. Having had a bacterial infection for so long has caused me a ton of other issues.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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And don't forget the ever popular diagnosis of "it's all in your head. You must be stressed."
20 years ago, after telling me the results of my first MRI on my head, the doctor actually patted me on the head and said, "Don't worry, it's just your nerves." He was talking down to me and saying there was nothing wrong. He didn't know how right he was - it IS my nerves. Nerves attacked by spirochete critters.
-------------------- "To eat is a necessity, but to eat intelligently is an art" - LaRochefoucauld
Lyme neuro symptoms for 20+ years. Infected in Maryland. Diagnosed with Lyme Jan 2011. (previously diagnosed with CFS, Fibro, peripheral neuropathy) Posts: 261 | From Colorado | Registered: Oct 2010
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one doctor diagnosed me as bi-polar when i told him that i have a few okay days, and then a few really bad days. my therapist assured me i was definitely NOT bi-polar... surprise!!!
at my last appointment when i asked for a diagnosis, but llmd said "i don't know, ecoli" ... yes, i have had ecoli for over 8 years, and have no symptoms of it... that makes sense! *rolls eyes:
Posts: 442 | From usa | Registered: Oct 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Diagnosed with anxiety, depression, gastritis, and labyrinthitis.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
chronic reactive arthritis, walking pneumonia, jawbone infection, it's all in your head, gallbladder attack, sphincter of oddi, it's nothing, hypochondria...
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Diagnosed with heart arrithymias(PAC's), depression and fibromyalgia.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
GERD, irritable bowel syndrom, Tourette's, depression, general anxiety disorder, PTSD, yeast/fungus infection, leaky gut syndrome, chronic fatigue, benign prostate disease, who can remember all the non-diagnoses...
Posts: 1927 | From se usa | Registered: Mar 2010
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
Vascular headaches, colitis, Raynaud's disease, GERD, sleep apnea, depression, "all in your head-itis", temporal arteritis, chronic sinusitis, chronic earaches, hematuria (blood in urine), osteoarthritis in neck, fatigue supposedly caused by motherhood & age.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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posted
Paryting too much. I was in college, and the doctor assumed I was fatigued all the time because I was always out partying, which I wasn't because I was fatigued all the time. I maybe got out once a week and drank about a quarter of what everyone else did.
Somatization Disorder.
In general, I was considered to be a hypochondriac even though I never was asking for meds.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
IBS, "crazy", "all in head", non specific autoimmune, colitis, crohns, GERD, gastritis, non specific inflammatory bowel, depression, TMJ, migraines, "adolescence", GROWING PAINS!, stress, possible lupus, possible porphyria.
Posts: 341 | From NY/FL | Registered: Apr 2010
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posted
Tendonitis, Thyroid related problems which turned out to be cancer, migraines, vasculitis, perifial neuropathy and after multiple lesions on brain and spine, MS was being considered as the next Dx , although lesions were atypical.
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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posted
First they kept telling me I had some sort of virus although no one knew what virus that would be.
Then after that I was told I had Post Viral Fatigue Syndrome and then I was diagnosed with Chronic Fatigue Syndrome.
7 years later I tested positive for Lyme and company.
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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posted
Fibromyalgia, Rheumatoid Arthritis (because of my consistently elevated rheumatoid factors), Irritable Bowel Syndrome.
But most of my symptoms, when I persisted with doctors in finding a diagnosis, were blamed on depression, anxiety, OCD, suspected anorexia nervosa, hypochondriasis ("it's all in your head"), or my favorite..."suspected schitzophrenia".
-------------------- Urge Congress on EMF Safety, FCC Must Change Exposure Guidelines for Microwave Radiation Exposure: http://tinyurl.com/2cjq54y Halt Universal Broadband, A Public Health Hazard: http://tinyurl.com/3x7xrmq Posts: 495 | From USA | Registered: Mar 2010
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CherylSue
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Member # 13077
posted
chronic fatigue syndrome
Posts: 1954 | From Illinois | Registered: Aug 2007
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
No diagnosis. When I asked if my symptoms could be Lyme, my MD simply said, "Oh you wouldn't want Lyme" and sent me out the door.
It took two more visits and nine months after first getting sick when he did an ELISA and it was positive.
In retrospect, I don't know why I stayed with him for a few years. There were probably no LLMDs here in 1992 and the concept was unknown to me.
Posts: 1297 | From USA | Registered: Dec 2002
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Only thing I was ever diagnosed with was OCD.
About a year before Lyme I was diagnosed with Lichen Schlerosus and Hypothyroidism.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Fibromyalgia, depression, anxiety, anemia, and my favorite, 'your bloodwork doesn't show anything remarkable.'
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
Possible thyroid problems...possible stroke...possible brain tumor...heart arrhythmias needing a pacemaker...'forget what else...
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Epstein Barr Virus, Copper Toxicity, possible Wilson's Disease, Heavy Metal Toxicities, Hypothyroidism, Adrenal Exhaustion, Chronic Fatigue Syndrome, Depression, Fibromyalgia, Hypoglycemia, Sleep Apnea, possible Ankylosing Spondylitis, Narcolepsy (Seriously? I hadn't slept in like 15 years!)
posted
I was first diagnosed with sinusitis, then Meniers Disease, then advised that an unk. viral infection caused my hearing problems. I was finally diagnosed (clinical diagnosis, Lyme tested negative) with Lyme by my PCP, who specializes in Infectious Disease.
Posts: 21 | From ohio | Registered: Jan 2011
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posted
I went to my primary care doctor and she looked right in my face and told me I was depressed and to go on antidepressants and go for more walks.
HAHAHAHAHAHA. ya. okay. I had a positive lyme test she kept telling me it wasnt "active lyme"
I then went to an allergist who diagnosed me with a rare form of "chronic sinusitis" because I didnt have any discharge just pressure all around the sinuses. I took flonase for a week and it did NOTHING so i stopped
Rheumatologist was stumped. Only thing she could suggest was fibromyalgia so she gave me a panphlet on it. Although my fibromyalgia trigger point test was TOTALLY negative
I must have went to the ER like 15 times. I even went to the best hospital in my state. and they told me I had a virus and to go home sleep and drink plenty of fluids. HAHAHA. YA A 3 MONTH VIRUS RIGHT? ohhh boy.....
I think we all get misdiagnosed.
Posts: 995 | From somewhere out there | Registered: Oct 2010
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posted
Asperger's Syndrome (part of Autistic Spectrum), along with ADHD, anxiety and depression, multiple food allergies, sinusitis, and PANDAS (Pediatric Autoimmune NeuroPsychiatric Disorder Associated with Strep).
The correct diagnosis is Lyme (borrelia), Babesia, Bartonella, Rocky Mountain Spotted Fever, H. Pylori, HHV1, Mycoplasma, Chlamydia Pneumonia.
Posts: 28 | From USA | Registered: Aug 2010
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