posted
This was my worst symptom before i found out i had Lyme it was SOOO unbarable. When i started Doxy it subsided now it feels like its getting worse everyday & i think thats whats helping raise my anxiety because i dont think i can go back down that road again.. Why could it possibly be coming back???
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Are you still on doxy? If so, it can increase cranial hypertension, which can cause the headaches and pressure. It used to be called Pseudotumor Cerebri.
If it's bad enough, you may need to ask your dr to change you to a different med.
As you get better, this symptom should improve, however. But in the meantime, you need relief. Talk to your LLMD.
Posts: 3770 | From around | Registered: Mar 2008
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posted
Rumgirl- Yes im stiil on Doxy, i thought maybe i was herxing, i didnt know it was from the abx. If it continues im definetly changing it!
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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posted
if i go to the ER can a catscan see inflamation?
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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posted
Wow. So how would i know if its inflamation or not?
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
I agree about the doxy.. I would ask to be switched to something else. I'm not sure how you would know for sure if it's inflamation, but if you are feeling alot of pressure I think it's safe to assume it is.
posted
What would you DO if it WAS inflammation?? As long as you are taking supplements that address that issue, there really isn't much you can do but wait for the abx to get rid of the Lyme & Co.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
Lymetoo- I'm actually only taking vitamin C. I dont know any supplements that can help me, what should i take?
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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momintexas
Frequent Contributor (1K+ posts)
Member # 23391
posted
I just looked at momintexas' link.. pretty well covers it!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
What if the doxy is pushing back the lyme and the Bart (if that's what's causing the eye pain) is coming to the foreground. Maybe treating for Bart would help.
Make sure to tell your new LLMD all of this. Write it down and let him read it - remember, his visits are short!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
I tooo think it is obviously inflammation , which means your immune system is leading the war against the pathogen so there is not much you can do, except maybe temporarily reduce the dose of your abx...
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
Shahbah- Is that a good thing that immune system is leading the war against the pathogen?
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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posted
Nicole, yes it is, of course, when the immune system fights a pathogen, it creates inflammation, thus the pain... But you also have to keep that inflammation under control somehow, thus the supplements, the detox... but I don't think anybody can hope for a cure without having to go through this inflammatory process... That's also why we are against immune supressant drugs, they do supress the inflammation (so we don't feel the pain as much) but the bugs keep progressing even more...
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
Shahbah- Thank you so much for explaining that to me.. do you think by me taking Vitamin C to boost my immune system is adding to the inflamation
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Parasites - if you have not treated them, do some reading. I am now fully convinced more than ever that you cannot get rid of any symptoms totally unless you seriously start treating parasites.
The parasites enter all areas of the body - they are not restricted to the gut.
REPEAT THE LAST SENTENCE.
They also live in the brain. This just was one heck of a full moon - mark your calender to note your experience when we are coming up to a full moon. Parasites replicate at that time! The longer you wait with treatment, the longer they take your food. They live off your blood and the myelin and who knows what else.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
I think vitamin C reduces inflammation, as it is an antihistamine, so go for it:-)
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
GigI, have you treated for parasites? When I tried to do so, i got so terribly sick, even more pressure and nerve pain than ever... I did not feel much benefit from that...what if there was also an "auto immune" dimension to consider in all this?
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
I told my Dr im having pressure in my eyes & forehead & he told me to but tyenol sinus.. What does that do?
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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posted
Nicole, for me it did not do much, maybe the doc thought you are having a sinus infection... anyway it would not hurt to try in case...
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
I recently just got over a sinus infection in Jan, is it normal to get it again? & im on zithromax & i was told that helps sinus infections
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Some do have chronic sinus infections. I've recently read that biofilm can be the reason why these infections don't clear up. Here is a good product that addresses the biofilm issue and keeps the sinuses clear. It does contain grapefruit seed extract so be aware that it can cause a herx reaction.
posted
But i thought it was inflamation? this is so confusing
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
Sinus infection, or sinusitis, is an inflammation of the sinuses and nasal passages. A sinus infection can cause a headache or pressure in the eyes, nose, cheek area, or on one side of the head.
A person with a sinus infection may also have a cough, a fever, bad breath, and nasal congestion with thick nasal secretions. Sinusitis is categorized as acute (sudden onset) or chronic (long term, the most common type).
posted
i know what the symptoms are because i had it already but i thought the inflamation was from the disease
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Regarding raised ICP. I have had raised intracranial pressure from my chiari malformation - not from Doxy.
The way that I was diagnosed is via a LP (not saying you should get one). My opening pressure was quite high and I needed to go on medication to reduce the pressure and then eventually surgical intervention for the chiari.
While it can be diagnosed via clinical symptoms an LP is really the only way to know what your pressure reading is.
If you do have raised ICP, in addition to headaches that get worse with activity you would also have vision issues (double vision, field deficits), coordination and balance issues, seizures, personality changes......
You can have your LLMD take a look at your optic nerve to see if there is any indication of pressure on it - another sign of raised ICP.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
The disease is caused by a bacterial infection which triggers an immune response which in turn causes inflammation.
Many experts now see inflammation as arising from an immune system response that�s out of control. When you catch a cold or sprain your ankle, your immune system switches into gear. Infection or injury trigger a chain of events called the inflammatory cascade.
The familiar signs of normal inflammation � heat, pain, redness, and swelling � are the first signals that your immune system is being called into action.
posted
ok so basically its a good thing that im feeling pressure or inflamation?
-------------------- Neuro-Lyme (possible bart) Symptoms started Jan 2011::Diagnosed Feb 11th,2011:: *Anything is possible thru God who strengthens me* Posts: 775 | From Pennsylvania | Registered: Feb 2011
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
It depends if you're feeling inflammation from herx reaction or if you're not addressing the bacterial load.
If it's being caused by the herx reaction this is a simple explanation:
When these antibiotics begin to destroy the Lyme spirochete, a toxin is given off causing either direct reactions or indirect actions through stimulation of the immune system.
Remember whichever is causing the immune response you can react with inflammation.
IMO, since you are on combination treatment, most likely you are addressing the bacteria and could be experiencing a die off.
However, when we were treating with abx, the herx reaction was only temporary after taking the antibiotics(couple hours). Not sure what others are experiencing.
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