posted
I've been treating lyme with LLMD since 7/2010 and, while things were slow at first, I am making progress!
I can actually THINK again, I'm not in some black fog. I have gained a little strength managing to blow dry my hair in the standing position with arms over my head instead of hunched over with elbows on knees! And the rage is subsiding which I know my family is very happy about!!
One thing that has not improved is nerve pain and muscle cramps. I ended up in the ER in Oct of 2010 because of severe chest pain and leg numbness. The ER doc recommended I see a Neuro. which I did, and to no surprise, he did not agree with the lyme diagnosis. He wanted to do a spinal tap to diagnose lyme but with the advise of my LLMD, I did not have it done.
LLMD has given me some meds to help me sleep at night (that's when the symptoms are the worst) and recommended I take cal/mag/zinc for the cramps. I also take alpha lipoic acid. But even with that, it doesn't seem to be helping.
One symptom that has gotten even worse is headaches. I used to get them once or twice a month but now it's a few times per week! I am so grateful that I found my LLMD here and I'm wondering if there's a way to find an LL Neuro in IL?
Posts: 95 | From IL | Registered: Jun 2010
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posted
You need to post in "Seeking a Doctor" and ask if anyone can refer your to a LL Neurologist in IL (I don't know of any).
Posts: 8981 | From Illinois | Registered: May 2006
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chiquita incognita
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posted
The neurologist who originally diagnosed me with lyme was a chiropractic neurologist. If I rave, you have to understand that this man is noted for being outstanding and has been awarded for critical thinking skills, and more. He is amazing.So not all chiro-neuro's may live up to my rave review here. Everything is always as good as the doctor, after all, and that is true no matter what specialty we are talking about.
The chiropractic neurology field does have diagnostic methods and tools that far outshine the mainstream, at least in my experience. My chiro-neuro put me through 90 minutes of physical exercises/tests, plus xrays, exam et al. He was able to track things that were so subtle that even I had not noticed them, living in my own body, and yet ultimately he proved to be absolutely correct. I was amazed at the details he could pick up on.
Once, my eyes had been burned by a particularly bright light, it was glaring at a group of us like the headlights of a plane, said the man standing next to me. Both of us were seeing purple after the event. I couldn't tolerate even the tiniest amount of light thereafter, had to go to work and draw the shades shut while wearing shades, myself and my eyes still hurt. The eye doc could find nothing wrong. The ER doc could find nothing wrong. Yet the chiro-neuro spotted a blind spot in my visual field, based on simple charts and asking me to trace the course of a pencil on a page, something just that simple. He said there was a blind spot the size of a dime in my visual field, yet no other docs had found anything wrong! Geez.
Thank god lutein healed my eyes, to make a long story short, and I was/am fine now.
If you are interested in a chiropractic neurologist, you can find one here www.acnb.org (Or is it .com? Not sure, sorry you could try both).
These are chiropractors who also are licensed neurologists. So at least in the state where I live, they can order tests, diagnose et al and they are very, very sharp. At least, this guy sure is. Further, when I was misdiagnosed with MS by one of the best mainstream neurologists in this area, who then did an MRi and found nothing wrong, again my chiro-neuro was the one who correctly diagnosed lyme.
He refused to treat me. He booted me out his door, said "I want you to have the best of the best, and not just someone who has treated a lyme case or two" and referred me to my top-notch LLMD.
posted
hopingandpraying, i re-posted in seeking a doctor section with hopes of more responses, thanks for the tip!
CI - thanks for the link! (it is .org by the way i'm going to do a little research and see if i can find one close to me. i'm just worried that since the headaches have been getting worse over time that there could be something else at play or maybe my LLMD needs to change my meds.
i'm glad to hear that your chiro/neuro told you to see a LLMD instead of trying to treat you unsuccessfully!
Posts: 95 | From IL | Registered: Jun 2010
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chiquita incognita
Unregistered
posted
So pleased and glad if this could help you, Catdog! I hope you have a great experience with this.
I Love the idea of chiropractic neurology.
My chiro-neuro was explaining to me a bit about how it works.
He said that receptor sites in the joints communicate with brain centers. So as they adjust the body, they are targeting specific brain centers, strategically.
Further, they have exercises for restoring brain function, both physical and very interesting cognitive exercises too.
My chiro-neuro is noted as one of the top neurologists in this area and works with post-operative stroke and brain tumor patients. It's no small sophisticated work and the methods are beautifully simple, and beautifully accurate, in my experience. Again far better than in mainstream neurology.
I qualify as before that it's always as good as the doctor and I never make anyone a guarantee, or I would be misleading. That said, I have a lot of faith in this method.
Hope this helps you very well, and someone else too! Best wishes, CI
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i'm going to do a little research and see if i can find one close to me. i'm just worried that since the headaches have been getting worse over time that there could be something else at play or maybe my LLMD needs to change my meds.
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