posted
I had the PICC line placed on Mon. and am doing rocephin everyday. I see my Dr. on Mon. and he is giving me a script for flagyl to start in a week.
I keep reading about needing to be on cyst buster meds.
Is Flagyl a cyst buster or does he also need to put me on something else?
This Dr. knows about lyme and is treat me with IV Rocephin and flagyl but I really don't think he is "Lyme Literate."
I had to request to be put on actigall and I put myself on probiotics.
I am still searching for a LLMD in case anyone has anyone they want to suggest to me.
I am terrified, and I do mean terrified, of flying. I haven't flown in over 22yrs, once my son was born my fear got even worse. However, I have family in New York and if it gets to that point I'll find a way to get myself on a plane if there is a good lyme Dr. up there.
Thanks for the help.
Posts: 86 | From Fort Lauderdale, Florida | Registered: Sep 2010
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posted
great, thanks cheffer.
Posts: 86 | From Fort Lauderdale, Florida | Registered: Sep 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
So is Tindamax. Usually easier to handle than flagyl.
You can get it as Tinidazole(generic) or Fasign (brand) made by Pfizer if you are out of the U.S., as it was never marketed in the U.S. and I understand it's cheaper.
In the old days before Tindamax came on the market it was not that expensive to have tinidazole compounded and it was the only way to get is besides getting it from outside the U.S.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Hope your protocol helps the lyme and RSD...pls let me know
Posts: 871 | From orange county, ca. | Registered: Jan 2006
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Rocephin and Flagyl is a good protocol. An addition of Doxycycline wouldn't hurt.
I use to have a fear of flying and I am completely over it. I remember when the fear went away. I was going through a very dark time in my life (my divorce). I had to get on a plane. My thoughts were "I don't care if this plane goes down" at the time. I never had the fear again. Strange isn't it?
Posts: 2232 | From USA | Registered: Aug 2009
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posted
**Abxnomore is Tinidazole available here in the U.S.? Can I switch to it from the flagyl if it bothers me or would you suggest just starting with Tinidazole?
**sk8ter I will definitelt let you know how it goes.
**Haley Wow I'm glad you're past that!
Posts: 86 | From Fort Lauderdale, Florida | Registered: Sep 2010
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posted
Thanks Lymetoo.
Posts: 86 | From Fort Lauderdale, Florida | Registered: Sep 2010
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
vrtualchik, you might want to try Flagyl first as it is MUCH cheaper. A bottle of Flagyl cost us $5. 30 pills of Tindamax was $110.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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Wow big diff in price. Thanks for that info kids. And I am so sorry that your kids are going through this .
That is good information to know. I wonder if it is covered on my insurance? I think I'll call my pharmacist 2morrow and ask. He is awesome believe it or not, and so helpful!
If it is not covered than I will probably have to try the Flagyl first.
Is Flagyl that bad when it comes to side effects?
Posts: 86 | From Fort Lauderdale, Florida | Registered: Sep 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I'll just re-post what I said above:
quote: So is Tindamax. Usually easier to handle than flagyl.
You can get it as Tinidazole(generic) or Fasign (brand) made by Pfizer if you are out of the U.S., as it was never marketed in the U.S. and I understand it's cheaper.
In the old days before Tindamax came on the market it was not that expensive to have tinidazole compounded and it was the only way to get is besides getting it from outside the U.S
So yes it's a cyst buster and much easier to handle than flagyl....easier on the system.
Yes Tindamax is very expensive but you may want to look into having Tinidazole/Fasign compounded or see if you have a way to get it abroad or from Canada or Mexico and see if it is cheaper that way.
In the old days it was not expensive, as I mentioned above. I don't know about know. You would have to research it.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
vrtualchik, for my daughter, there was no difference in side effects. Both of them caused her nervous system to go haywire.
A lot of people are able to handle the Flagyl though, so I would try it first.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Neither medication is a cake walk and yes everyone will handle it differently. But some find the Tinidazole a bit easier to handle.
Either way it's a tough medication but a necessary medication that needs to be in the lyme mix.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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onbam
Unregistered
posted
According to Dr.Betty M (not practicing) in MN, Flagyl, Tini, Tigecycline, and actually Mepron too. So this may explain why some with -babs tests respond to Mepron/Zith.
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